Overview
What is Spondylitis Association Of America?
Spondylitis Association of America (SAA) is a nonprofit organization based in Encino, California, with a mission to advance research, accelerate diagnostics, and promote optimal treatment for individuals affected by spondyloarthritis. They achieve this goal through various means, including patient educational seminars, webinars, and health education content delivered via digital platforms. SAA's interactive website, spondylitis.org, is a comprehensive resource, attracting over 500,000 unique visitors annually. Their virtual conferences and podcast series provide opportunities for learning and support, while their publications offer in-depth coverage of spondyloarthritis-related topics. SAA's support groups offer a safe and compassionate environment for individuals to share experiences and learn from one another. The organization also partners with healthcare professionals and other organizations to further its mission.
Official website here: www.spondylitis.org
Is Spondylitis Association Of America legitimate?
Spondylitis Association Of America is a legitimate nonprofit organization registered as a 501(c)(3) entity. Spondylitis Association Of America submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $248,226
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,025,964
For more financial information, click here
Official website here: www.spondylitis.org
What is the mission statement of Spondylitis Association Of America?
The Spondylitis Association of America is dedicated to advancing research, accelerating diagnosis, promoting optimal treatment, raising awareness, and providing educational resources for individuals with spondyloarthritis. Their mission involves directly sponsoring spondyloarthritis research, accelerating diagnosis, supporting optimal treatment, advancing awareness, and educating both the public and healthcare professionals regarding spondyloarthritis. They deliver patient educational seminars, webinars, and health education content through various digital outlets, and their comprehensive website offers thousands of pages of spondyloarthritis information. The organization also offers patient educational publications, a magazine, a podcast series, and virtual storytelling events. They continue to provide support groups, update COVID-19 resources, and organize global summits on spondyloarthritis.
Official website here: www.spondylitis.org
Who is the CEO of Spondylitis Association Of America?
Cassie Shafer is the Secretary of Spondylitis Association Of America. The CEO's salary of Spondylitis Association Of America is $246,302 and their total compensation is $252,791.
Official website here: www.spondylitis.org
What is the revenue of Spondylitis Association Of America?
Spondylitis Association Of America's revenue in 2023 was $2,348,536.
Official website here: www.spondylitis.org
Who are the executives of Spondylitis Association Of America and what are their salaries?
The average compensation at Spondylitis Association Of America during 2023 was $84,946. There are 15 employees and 165 volunteers at Spondylitis Association Of America.
Here are 15 key members and their salaries (Spondylitis Association Of America's CEO's salary is $246,302 and their total compensation is $252,791):
- Cassie Shafer (Chief Executive Officer)
- Richard Howard (Chief Mission Delivery Officer)
- Diann Peterson (Chief Philanthropy Officer)
- Ellen Carroll (Secretary) [Trustee/Director]
- Craig Gimbel (Director)
- Eric Goldstein (Treasurer) [Trustee/Director]
- Pamela Weiss (Director)
- Arnold M Podolsky (Director)
- Mary Ann Poladian (Director)
- Jill Miller (Director)
- Michael Pianin (Board Chair) [Trustee/Director]
- Batya Bilmes Lemler (Director)
- John D Reveille (Director)
- James Rosenbaum (Director)
- Paula Olsiewski (Vice Chair) [Trustee/Director]
Official website here: www.spondylitis.org
Where can I find the form 990 for Spondylitis Association Of America?
The Spondylitis Association Of America’s most recent form 990 was submitted in 2023 and can be accessed here
Official website here: www.spondylitis.org
Learn more at the official website: www.spondylitis.org
Mission Statement of Spondylitis Association Of America
The Spondylitis Association of America (SAA) is dedicated to advancing research, accelerating diagnosis, and promoting optimal treatment for individuals suffering from spondyloarthritis. By directly sponsoring research, SAA aims to improve understanding of the condition and identify effective treatments. Additionally, the organization strives to increase public awareness and provide educational resources for both patients and healthcare professionals.
In pursuit of its mission, SAA delivers patient educational seminars, webinars, and health education content through various digital outlets. Their interactive website, spondylitis.org, offers thousands of pages of spondyloarthritis information, reaching over 500,000 unique visitors and 1.4 million page views annually. Furthermore, SAA hosts a robust virtual conference platform for patient educational seminars, providing attendees with live presentations and moderated Q&A sessions, which are later made available for future use on their website.
To support patients, SAA offers a variety of publications, including 14 updated English language educational brochures and 10 Spanish language brochures. They also publish Spondylitis Plus, a premier print publication, which provides in-depth coverage of issues such as pain, fatigue, and other complications, featuring prominent rheumatologists and researchers, personal stories from individuals living with spondyloarthritis, and more. Over 4,500 copies are distributed quarterly.
In addition to these resources, SAA is currently rewriting and redesigning Straight Talk on Spondyloarthritis, a legacy publication, with 12 new chapters written by content experts. They have also launched Spondylcast, a new podcast series specifically for people with spondyloarthritis, featuring interviews with experts in various fields. SAA is actively engaged in Storytellers, Your Stories on Stage, a virtual community storytelling show where five members of the spondyloarthritis community share personal stories about their experiences with the condition, inspiring, entertaining, and connecting individuals with similar experiences.
In summary, the Spondylitis Association of America's mission is to advance research, accelerate diagnosis, and improve treatment for individuals with spondyloarthritis. They accomplish this by providing educational resources and support programs through various digital outlets, publications, and events. Their mission is essential in fostering understanding, empowering patients, and promoting better health outcomes for individuals living with spondyloarthritis.
Impact
This information is meant to be a general summary of Spondylitis Association Of America. Please take the time to review official sources before making any decisions based upon the content provided here.
Sunday, July 21, 2024
The Spondylitis Association of America has a significant impact on advancing research, accelerating diagnosis, supporting optimum treatment, and promoting public awareness and health care professional education in spondyloarthritis. Through various initiatives such as patient educational seminars, webinars, health education content, and patient support programs delivered via digital outlets, the organization reaches over 500,000 unique visitors and 1.4 million page views annually on its interactive website.
Additionally, the Spondylitis Association of America publishes educational brochures, produces a quarterly magazine, hosts a podcast series, facilitates storytelling events, and distributes an electronic newsletter to over 36,000 subscribers each month. The organization also offers support groups across the United States, engaging patients in a vast peer network for sharing experiences and providing mutual support.
Moreover, the association collaborates with partners to develop educational programs for patients and clinicians, organizes global summits, and sponsors research studies to better understand the impact of ankylosing spondylitis on individuals worldwide. The Spondylitis Association of America's efforts have a far-reaching impact on the spondyloarthritis community, providing valuable resources, support, and educational opportunities to enhance disease management and improve quality of life for those affected by the condition.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PUBLICATION SALES
Revenue
$5,120
Organization Details
Founding Year
1983
Phone
(818) 892-1616
Principal Officer
Cassie Shafer
Main Address
16430 VENTURA BLVD 300, ENCINO, CA, 91436
Website
www.spondylitis.org
NTEE Category
Code: G55Z - Disease
If you are a representative of Spondylitis Association Of America and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.