Overview
What is Dystonia Medical Research Foundation?
The Dystonia Medical Research Foundation, situated in Chicago, Illinois, is a dedicated nonprofit organization with a mission to advance research for more effective treatments and ultimately a cure for dystonia. They accomplish this by funding grants for researchers, promoting awareness and education, and supporting affected individuals and families. The foundation awards grants to investigators committed to finding the cause and cure for all forms of dystonia. They also educate medical professionals and the general public about dystonia and advocate for the needs of the dystonia community. Additionally, they sponsor patient support groups and educational programs, including virtual meetings and online networks for dystonia-affected individuals. The foundation has also partnered with Frontiers Media to publish the "Dystonia" journal, dedicated to the disorder, and has been serving as the administrative center for the Dystonia Coalition for 13 years. The coalition aims to advance clinical and translational research into dystonia, leading to better treatments and a cure.
Official website here: www.dystonia-foundation.org
Is Dystonia Medical Research Foundation legitimate?
Dystonia Medical Research Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dystonia Medical Research Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $199,374
Professional Fundraising Fees: $0
Other Salaries and Wages: $520,062
For more financial information, click here
Official website here: www.dystonia-foundation.org
What is the mission statement of Dystonia Medical Research Foundation?
The Dystonia Medical Research Foundation's mission is centered around advancing research to discover more effective treatments and ultimately a cure for dystonia. The organization also focuses on promoting awareness and education about dystonia, and providing support for individuals and families affected by the condition. To achieve these goals, the foundation has three main objectives. Firstly, it awards grants to researchers and institutions dedicated to finding the root causes and cures for various types of dystonia. Secondly, it promotes dystonia awareness through educational workshops, symposiums, and advocacy efforts. Lastly, it sponsors patient and family support groups and educational programs, including virtual meetings and electronic networks, to cater to those who may not be able to attend in-person events.
Official website here: www.dystonia-foundation.org
Who is the CEO of Dystonia Medical Research Foundation?
Janet Hieshetter is the Sec/Exec Dir of Dystonia Medical Research Foundation.
Official website here: www.dystonia-foundation.org
What is the revenue of Dystonia Medical Research Foundation?
Dystonia Medical Research Foundation's revenue in 2022 was $2,569,110.
Official website here: www.dystonia-foundation.org
Who are the executives of Dystonia Medical Research Foundation and what are their salaries?
The average compensation at Dystonia Medical Research Foundation during 2022 was $79,937. There are 9 employees and 725 volunteers at Dystonia Medical Research Foundation.
Here are 32 key members and their salaries:
- Janet Hieshetter (Sec/Exec Dir)
- Deborah Durrer (Dir Development)
- Jennifer Mcnabola (Dir Finance)
- Jessica Feeley (Dir Commun & Educ)
- Mark Rudolph (President) [Trustee/Director]
- John Downey (Treasurer) [Trustee/Director]
- Richard Lewis (Vice President) [Trustee/Director]
- Barbara Kessler (Vice President) [Trustee/Director]
- Karen Ross (Vice President) [Trustee/Director]
- Carole Rawson (Vice President) [Trustee/Director]
- Paula Schneider (Vice President) [Trustee/Director]
- Ron Hersh (Vice President) [Trustee/Director]
- Allison London (Director)
- Frances Belzberg (Director)
- Marilynne Herbert (Director)
- Stefanie Jackson (Director)
- Diane Rudolph (Director)
- Joel Perlmutter Md (Scientific Dir) [Trustee/Director]
- Erwin Jackson (Director)
- Bill Mclaughlin (Director)
- Art Kessler (Director)
- Sandra Weil (Director)
- Rosalie Lewis (Director)
- Pamela Sloate (Director)
- Jon Davis (Director)
- Dennis Kessler (Director)
- Liz Rawson (Director)
- Donna Driscoll (Director)
- Brian Keane (Director)
- Marc Miller (Director)
- Robin Miller (Director)
- Dan Lewis (Director)
Official website here: www.dystonia-foundation.org
Where can I find the form 990 for Dystonia Medical Research Foundation?
The Dystonia Medical Research Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.dystonia-foundation.org
Learn more at the official website: www.dystonia-foundation.org
Mission Statement of Dystonia Medical Research Foundation
The Dystonia Medical Research Foundation, an organization dedicated to dystonia, has a threefold mission. Its primary objective is to advance research aimed at discovering more effective treatments and ultimately a cure for dystonia. To accomplish this, the foundation grants funds to researchers and institutions who are committed to unraveling the mysteries of this neurological disorder.
Beyond research, the foundation also works to promote awareness and education about dystonia. This is achieved through sponsoring workshops, symposiums, and other events for medical professionals and patients. Furthermore, the foundation engages with legislators to advocate for the needs of the dystonia community and produces educational materials to disseminate information about the condition.
Lastly, the Dystonia Medical Research Foundation offers support to individuals and families affected by dystonia. This includes sponsoring patient and family support groups, as well as providing educational programs. The foundation also fosters virtual meetings and electronic social networks to accommodate those unable to attend in-person events. In essence, the Dystonia Medical Research Foundation is dedicated to advancing research, promoting awareness, and offering support to those affected by dystonia.
Impact
This information is meant to be a general summary of Dystonia Medical Research Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Sunday, July 21, 2024
The Dystonia Medical Research Foundation is making significant strides in advancing dystonia research to find more effective treatments and ultimately a cure for this disorder. Through funding research grants, managing the peer review process, collaborating with other organizations like the Dystonia Coalition, and organizing international scientific symposiums, the foundation is actively working to enhance our understanding of the pathophysiology of dystonia and develop improved treatment options. Additionally, by promoting awareness, educating healthcare professionals and the public, and supporting individuals and families affected by dystonia, the foundation is making a tangible impact on the well-being of the dystonia community worldwide. This dedication to research, education, and support is crucial in the ongoing efforts to improve the lives of those living with dystonia.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
1977
Phone
(312) 755-0198
Principal Officer
Janet Hieshetter
Main Address
ONE EAST WACKER DRIVE 1730, CHICAGO, IL, 60601
Website
www.dystonia-foundation.org
NTEE Category
Code: H48Z - Medical research
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