Overview
What is National Foundation For Celiac Awareness?
The National Foundation For Celiac Awareness, operating under the name Beyond Celiac, is a nonprofit organization dedicated to supporting individuals with celiac disease and related disorders. Based in Ambler, Pennsylvania, Beyond Celiac funds research grants for scientists and medical professionals, aiding in the advancement of celiac disease research beyond the gluten-free diet. They work with a scientific advisory board to uncover discoveries about celiac disease, non-celiac gluten sensitivity, and associated disorders. Beyond Celiac has awarded major research grants to distinguished scientists, such as Paul Klenerman and Jocelyn Silvester, to further investigate celiac disease mechanisms and treatment options. The organization partners with various entities, including the National Minority Quality Forum and Janssen Pharmaceuticals, to target inequities in celiac disease diagnosis and treatment, and support critical research in risk detection, prevention, and interception. Beyond Celiac also emphasizes diversity, equity, and inclusion in its mission, fostering a sense of belonging for underrepresented voices in its community.
Official website here: www.beyondceliac.org
Is National Foundation For Celiac Awareness legitimate?
National Foundation For Celiac Awareness is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Foundation For Celiac Awareness submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $470,639
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,105,034
For more financial information, click here
Official website here: www.beyondceliac.org
What is the mission statement of National Foundation For Celiac Awareness?
The National Foundation for Celiac Awareness, operating under the name Beyond Celiac, is committed to driving diagnosis, advancing research, and accelerating the discovery of new treatments and a potential cure for celiac disease. Their vision is to create a world where individuals with celiac disease can live healthy lives, free from social stigma and fear of gluten exposure. The organization also prioritizes diversity, equity, and inclusion, aiming to foster a sense of belonging and empower marginalized populations. Through research grants and partnerships, Beyond Celiac supports celiac disease scientists in making groundbreaking discoveries, working towards treatments beyond the gluten-free diet and, eventually, a cure.
Official website here: www.beyondceliac.org
Who is the CEO of National Foundation For Celiac Awareness?
Alice Bast is the Ceo of National Foundation For Celiac Awareness. The CEO's salary of National Foundation For Celiac Awareness is $243,245 and their total compensation is $249,663.
Official website here: www.beyondceliac.org
What is the revenue of National Foundation For Celiac Awareness?
National Foundation For Celiac Awareness's revenue in 2022 was $2,656,405.
Official website here: www.beyondceliac.org
Who are the executives of National Foundation For Celiac Awareness and what are their salaries?
The average compensation at National Foundation For Celiac Awareness during 2022 was $65,653. There are 24 employees and 147 volunteers at National Foundation For Celiac Awareness.
Here are 19 key members and their salaries (National Foundation For Celiac Awareness's CEO's salary is $243,245 and their total compensation is $249,663):
- Alice Bast (Ceo) [Trustee/Director]
- Salvatore Alesci (Csso)
- Mary Kate Carofano (Cao)
- Alan Ehrlich Md (Chair) [Trustee/Director]
- C Kane Brenan (Vice Chair) [Trustee/Director]
- Gerald Bertiger Md (Treasurer) [Trustee/Director]
- Barbara Weir Powers (Secretary) [Trustee/Director]
- Lisa Agdern (Director)
- Brittany Baker (Director)
- Robert Beall Phd (Director)
- Ed Lewin (Director)
- Todd Hammer (Director)
- Gregg Melinson (Director)
- Bennett Muskin (Director)
- Jennifer Platzkere Snyder (Director)
- Ritu Verma Md (Director)
- Carole Haas Gravagno (Director)
- Jennifer Brownstein (Director)
- Lawrence P Flynn Cpa (Director)
Official website here: www.beyondceliac.org
Where can I find the form 990 for National Foundation For Celiac Awareness?
The National Foundation For Celiac Awareness’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.beyondceliac.org
Learn more at the official website: www.beyondceliac.org
Mission Statement of National Foundation For Celiac Awareness
The National Foundation For Celiac Awareness, commonly known as Beyond Celiac, is dedicated to driving diagnosis, advancing research, and accelerating the discovery of new treatments and a potential cure for celiac disease. Their mission statement aims to unite patients and partners in this quest, envisioning a world where individuals with celiac disease can live healthily, free from social stigma and fear of gluten exposure. Beyond Celiac pursues diversity, equity, and inclusion, advocating for underrepresented voices and promoting meaningful opportunities to empower marginalized populations within their community.
In line with its mission, Beyond Celiac offers research grants to members of the scientific and medical communities, supporting researchers in their quest to advance celiac disease knowledge. With the help of Beyond Celiac grants, celiac disease scientists are making groundbreaking discoveries, such as investigating killer T-cells that cause tissue damage in celiac disease or studying the role of CD8 T-cells in establishing antigen specificity. These research initiatives aim to go beyond the gluten-free diet and eventually lead to a celiac disease cure.
Furthermore, Beyond Celiac collaborates with organizations like the National Minority Quality Forum and Janssen Pharmaceuticals to support critical celiac disease research. These partnerships aim to address inequities in celiac disease diagnosis and treatment, map diagnosed celiac disease across the United States, and fund multiple grants focusing on risk detection, prevention, interception, and cure of celiac disease. By fostering these collaborations, Beyond Celiac is actively contributing to the broader celiac disease research community and working towards a future where individuals with celiac disease can live healthy lives free from bias and barriers.
Impact
This information is meant to be a general summary of National Foundation For Celiac Awareness. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The National Foundation For Celiac Awareness, operating as Beyond Celiac, plays a crucial role in driving diagnosis, advancing research, and accelerating the development of new treatments and a cure for celiac disease. Through research grants and collaborations with the scientific and medical communities, Beyond Celiac is making significant strides in understanding the mechanisms of celiac disease and related disorders. Recent major grant awards have supported important research projects focused on areas such as tissue damage, genetic markers, neurological implications, and disparities in diagnosis among different populations. Additionally, partnerships with organizations like the National Minority Quality Forum and Janssen Pharmaceuticals have allowed Beyond Celiac to expand its impact and support critical research initiatives. Through its initiatives, Beyond Celiac is actively working towards a world where individuals with celiac disease can live healthy lives free from social stigma and fear of gluten exposure.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CORPORATE SUPPORT
Revenue
$198,676
CLINICAL TRIALS FEES
Revenue
$106,350
PHARMA CONSORTIUM
Revenue
$98,333
OTHER PROGRAM REVENUE
Revenue
$63,659
ROYALTY PROGRAM
Revenue
$38,275
Organization Details
Founding Year
2003
Phone
(215) 325-1306
Principal Officer
Alice Bast
Main Address
PO BOX 544, AMBLER, PA, 19002
Website
www.beyondceliac.org
NTEE Category
Code: G40 - Disease
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