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Pulmonary Fibrosis Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 841558631 ✦ Chicago, IL ✦ Designated as a 501(c)(3)

Overview

What is Pulmonary Fibrosis Foundation?

The Pulmonary Fibrosis Foundation is a dedicated nonprofit organization based in Chicago, Illinois. Their primary mission is to unite individuals and resources to offer access to superior care and spearhead research towards a cure for pulmonary fibrosis (PF) and interstitial lung diseases (ILD). They achieve this through their PFF Patient Registry program, a collaborative initiative involving patients, caregivers, family members, healthcare providers, and researchers. The registry aims to advance research and enhance the quality of life for PF and ILD patients by generating revenue from contributions, sponsorships, and program services. The organization, with a team of 41 employees, strives to improve the lifespan and well-being of people living with these conditions.


Official website here: www.pulmonaryfibrosis.org

Is Pulmonary Fibrosis Foundation legitimate?

Pulmonary Fibrosis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Pulmonary Fibrosis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $887,126
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,801,204

For more financial information, click here


Official website here: www.pulmonaryfibrosis.org

What is the mission statement of Pulmonary Fibrosis Foundation?

The Pulmonary Fibrosis Foundation's mission is to encourage action and gather resources to ensure access to top-notch care and drive research towards a cure. This endeavor aims to improve the lives of individuals battling pulmonary fibrosis, enabling them to live longer and healthier. The organization operates a Patient Registry program, which generates revenue through contributions, sponsorships, and program services. This initiative brings together various stakeholders such as patients, caregivers, healthcare providers, and researchers, working collaboratively to advance research and enhance the quality of life for patients with pulmonary fibrosis and interstitial lung disease.


Official website here: www.pulmonaryfibrosis.org

Who is the CEO of Pulmonary Fibrosis Foundation?

Scott Staszak is the Director/President And Ceo of Pulmonary Fibrosis Foundation. The CEO's salary of Pulmonary Fibrosis Foundation is $421,968 and their total compensation is $434,761.


Official website here: www.pulmonaryfibrosis.org

What is the revenue of Pulmonary Fibrosis Foundation?

Pulmonary Fibrosis Foundation's revenue in 2022 was $11,007,903.


Official website here: www.pulmonaryfibrosis.org

Who are the executives of Pulmonary Fibrosis Foundation and what are their salaries?

The average compensation at Pulmonary Fibrosis Foundation during 2022 was $89,959. There are 41 employees and 2,234 volunteers at Pulmonary Fibrosis Foundation.

Here are 22 key members and their salaries (Pulmonary Fibrosis Foundation's CEO's salary is $421,968 and their total compensation is $434,761):

    William T Schmidt (Director/President And Ceo)
  • Compensation: $421,968
  • Related: $0
  • Other: $12,793

    • Scott Staszak (Chief Operating Officer)
  • Compensation: $313,854
  • Related: $0
  • Other: $12,217

    • Laura Sadler (Chief Marketing Officer)
  • Compensation: $189,524
  • Related: $0
  • Other: $28,935

    • Seth Klein (Senior Vp, Development)
  • Compensation: $177,121
  • Related: $0
  • Other: $7,972

    • Junelle Speller (Vp, Pff Registry)
  • Compensation: $164,480
  • Related: $0
  • Other: $6,573

    • Jessica Shore (Vp, Research & Programs)
  • Compensation: $157,800
  • Related: $0
  • Other: $5,474

    • Kate Gates (Vp, Advocacy & Programs)
  • Compensation: $133,437
  • Related: $0
  • Other: $23,807

    • Janet Bianchetta (Vp, Finance)
  • Compensation: $140,557
  • Related: $0
  • Other: $13,621

    • David Mcninch (Interim Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Laurie Chandler Cfp (Interim Vice Chair/Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Terence Hales (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Martin Attwell (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • George Eliades (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Julie Halston (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jeff Harris (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mike Henderson (Member (Thru 11/21)) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Susan Jacobs (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Heather Kagel (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Pj Kamani (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Andy Limper (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Barbara Murphy (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Patricia Rosa (Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.pulmonaryfibrosis.org

    Where can I find the form 990 for Pulmonary Fibrosis Foundation?

    The Pulmonary Fibrosis Foundation’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.pulmonaryfibrosis.org

    Learn more at the official website: www.pulmonaryfibrosis.org

    Mission Statement of Pulmonary Fibrosis Foundation

    The Pulmonary Fibrosis Foundation, a notable organization, is committed to mobilizing people and resources with the primary goal of providing access to top-notch medical care and leading research towards a cure. By doing so, the foundation aims to help individuals diagnosed with pulmonary fibrosis live longer and healthier lives. This mission is carried out by bringing together various stakeholders, such as patients, caregivers, family members, healthcare providers, and researchers. The organization's efforts in this regard aim to advance research and enhance the quality of life for patients suffering from pulmonary fibrosis and interstitial lung disease (ILD). The Pulmonary Fibrosis Foundation's registry program, a significant part of its mission, generated revenue of $2,558,493, primarily through contributions, sponsorships, and program service revenue. This research initiative connects multiple parties to collaborate and contribute towards finding a cure and improving the well-being of those affected by these lung diseases.

    Impact

    This information is meant to be a general summary of Pulmonary Fibrosis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    The Pulmonary Fibrosis Foundation's impact is significant in mobilizing resources and people to provide access to high-quality care and lead research for a cure for pulmonary fibrosis. Through initiatives like the PFF Patient Registry, which has recognized total revenue of over $2.5 million, the foundation brings together various stakeholders such as patients, caregivers, healthcare providers, and researchers to advance research and improve the quality of life for individuals with pulmonary fibrosis and interstitial lung disease. Their mission is to ensure that people affected by pulmonary fibrosis can live longer and healthier lives.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $297,956
  • Program Service Revenue: $2,545,747
  • Gross Receipts: $12,668,878

    • Assets and Liabilities:
  • Total Assets: $17,064,469
  • Total Liabilities: $7,089,463
  • Net Assets: $9,975,006
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    REGISTRY SPECIFIC

    Revenue

    $2,210,840

    CORP PARTNERSHIPS

    Revenue

    $268,621

    PFF SUMMIT

    Revenue

    $65,661

    ADVOCACY LEGISLATIVE

    Revenue

    $625

    Organization Details

    Founding Year

    2000

    Principal Officer

    Scott Staszak

    Main Address

    230 East Ohio Street Suite 500, Chicago, IL, 606113270

    NTEE Category

    Code: G45 - Disease

    If you are a representative of Pulmonary Fibrosis Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.