Overview
What is The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation for 4H Leukodystrophy is a nonprofit organization based in Minneapolis, Minnesota. Established with a mission, it has launched an international collaboration network, known as 4H Leukodystrophy Collaboration Network (4HLCN), to bring together patients, families, researchers, and healthcare professionals. The primary objective of this network is to drive therapeutic advancements for 4H Leukodystrophy, a rare genetic disorder, enabling those afflicted to live healthier and more fulfilling lives for a longer period. The foundation, with a small workforce of two individuals, is dedicated to making significant strides in the medical field related to this specific leukodystrophy.
Official website here: www.yayafoundation4hl.org
Is The Yaya Foundation For 4H Leukodystophy legitimate?
The Yaya Foundation For 4H Leukodystophy is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Yaya Foundation For 4H Leukodystophy submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $95,192
Professional Fundraising Fees: $0
Other Salaries and Wages: $68,750
For more financial information, click here
Official website here: www.yayafoundation4hl.org
What is the mission statement of The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation for 4H Leukodystrophy has established the 4H Leukodystrophy Collaboration Network (4HLCN), a global initiative. This network brings together patients, families, researchers, and clinicians in a cross-functional collaboration. The primary objective of this collaboration is to foster therapeutic discoveries. These discoveries aim to enhance the quality of life and extend the lifespan of individuals affected by 4H (POLR3-Related) Leukodystrophy. The foundation's mission is centered around advancing research and fostering a collaborative environment to improve the lives of those affected by this condition.
Official website here: www.yayafoundation4hl.org
Who is the CEO of The Yaya Foundation For 4H Leukodystophy?
Christina Butterworth is the Executive Dir. of The Yaya Foundation For 4H Leukodystophy.
Official website here: www.yayafoundation4hl.org
What is the revenue of The Yaya Foundation For 4H Leukodystophy?
The Yaya Foundation For 4H Leukodystophy's revenue in 2022 was $542,579.
Official website here: www.yayafoundation4hl.org
Who are the executives of The Yaya Foundation For 4H Leukodystophy and what are their salaries?
The average compensation at The Yaya Foundation For 4H Leukodystophy during 2022 was $81,971. There are 2 employees and 12 volunteers at The Yaya Foundation For 4H Leukodystophy.
Here are 12 key members and their salaries:
- Christina Butterworth (Executive Dir.) [Trustee/Director]
- Gabriel Bassin (Cfo & Director)
- Zhu Cheng (Vice Chair) [Trustee/Director]
- Chris Cleary (Director)
- Marcia Cleary (Director)
- Ron Garber (Secretary) [Trustee/Director]
- Daniel Grossman (Director)
- Soloman Lieberman (Director)
- Rachel Schonbachler (Director)
- Kurt Triptow (Director)
- Debbie Triptow (Director)
- Valerie Gregor (Research Direct) [Trustee/Director]
Official website here: www.yayafoundation4hl.org
Where can I find the form 990 for The Yaya Foundation For 4H Leukodystophy?
The The Yaya Foundation For 4H Leukodystophy’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.yayafoundation4hl.org
Learn more at the official website: www.yayafoundation4hl.org
Mission Statement of The Yaya Foundation For 4H Leukodystophy
The Yaya Foundation for 4H Leukodystrophy has a mission to make a significant impact in the lives of individuals affected by 4H (POLR3-Related) Leukodystrophy. To accomplish this, the foundation launched the 4H Leukodystrophy Collaboration Network (4HLCN). This global initiative brings together patients, families, researchers, and clinicians in a cross-functional collaboration. The primary goal of this network is to advance therapeutic discoveries. The aim is to enable those living with 4H Leukodystrophy to not only survive but also improve their quality of life. By fostering collaboration and knowledge sharing among various stakeholders, the foundation hopes to drive progress towards finding effective treatments for this condition.
Impact
This information is meant to be a general summary of The Yaya Foundation For 4H Leukodystophy. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
The Yaya Foundation For 4H Leukodystophy has made a significant impact through the creation and launch of the 4H Leukodystrophy Collaboration Network (4HLCN). This global collaboration brings together patients, families, researchers, and clinicians with the common goal of advancing therapeutic discovery for individuals affected by 4H (POLR3-Related) Leukodystrophy. By fostering this cross-functional network, The Yaya Foundation is working towards enabling those impacted by 4H Leukodystrophy to live longer and better lives.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2017
Phone
(347) 268-7066
Principal Officer
Christina Butterworth
Main Address
PO BOX 80685, MINNEAPOLIS, MN, 55408
Website
www.yayafoundation4hl.org
NTEE Category
Code: E12 - Health
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