Overview
What is Kif1Aorg Inc?
Kif1Aorg Inc is a nonprofit organization based in New York City, specifically at 808 Columbus Avenue, 10A. Their mission is to improve the lives of individuals affected by KIF1A-associated neurological disorders and accelerate research to find a cure. They operate as a global community, collaborating on translational research to rapidly discover treatments for KIF1A, a neurodegenerative disorder causing a range of medical challenges. Kif1Aorg Inc manages various programs to de-risk and accelerate therapeutic development, such as the KIF1A Research Network, direct research funding, and open-access tools for development, including natural history data, disease models, and biomarkers. With a team of five dedicated individuals, their work aims to provide support for families and patients, as well as advance scientific understanding of the disorder.
Official website here: www.kif1a.org
Is Kif1Aorg Inc legitimate?
Kif1Aorg Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Kif1Aorg Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $215,186
For more financial information, click here
Official website here: www.kif1a.org
What is the mission statement of Kif1Aorg Inc?
Kif1Aorg Inc is a global community committed to enhancing the lives of individuals affected by KIF1A-associated neurological disorders and expediting research to find a cure. Their mission is to improve the quality of life for those battling these disorders and to advance research with the ultimate goal of discovering treatments. By managing several programs, such as the KIF1A Research Network, they aim to de-risk and accelerate therapeutic development, providing essential tools like natural history data, disease models, and biomarkers for researchers. Kif1Aorg Inc also engages in family support and patient advocacy to further their cause.
Official website here: www.kif1a.org
Who is the CEO of Kif1Aorg Inc?
What is the revenue of Kif1Aorg Inc?
Who are the executives of Kif1Aorg Inc and what are their salaries?
The average compensation at Kif1Aorg Inc during 2022 was $43,037. There are 5 employees and 20 volunteers at Kif1Aorg Inc.
Here are 10 key members and their salaries:
- Dominique Lessard (Chief Science Officer) [Trustee/Director]
- Dylan Verden Ph D (Chief Science Officer) [Trustee/Director]
- Kathryn Atchley (President) [Trustee/Director]
- Charlotte Klinepeter (Board Member) [Trustee/Director]
- Michelle Tao (Director Of Strategy)
- Luke Rosen (Board Chair) [Trustee/Director]
- Sally Jackson (Director)
- Hans Christenger (Board Member) [Trustee/Director]
- Nicole Boice (Board Member) [Trustee/Director]
- Bobby Flay (Board Member) [Trustee/Director]
Official website here: www.kif1a.org
Where can I find the form 990 for Kif1Aorg Inc?
The Kif1Aorg Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.kif1a.org
Learn more at the official website: www.kif1a.org
Mission Statement of Kif1Aorg Inc
Kif1Aorg Inc, a global community dedicated to improving the lives of those affected by KIF1A-associated neurological disorders, is on a mission to accelerate research and find a cure. This nonprofit organization is committed to providing support and advocacy for individuals living with KAND, a neurodegenerative disorder caused by mutations in the KIF1A gene. KAND presents a range of medical challenges, including spastic paraplegia, epilepsy, intellectual disability, optic nerve atrophy, cerebellar atrophy, peripheral neuropathy, and autism. The disorder has a progressive course and can cause severe, life-threatening complications.
In addition to family support and patient advocacy, Kif1Aorg Inc powers collaborative and translational research to rapidly discover treatments for KAND. The organization manages several programs to de-risk and accelerate therapeutic development. These include the Kif1A Research Network, direct research funding, and open-access tools for development, such as natural history data, disease models, and biomarkers. By enabling researchers to share and access critical information, Kif1Aorg Inc is helping to speed up the discovery of effective treatments for KAND.
In summary, Kif1Aorg Inc is a beacon of hope for those affected by KIF1A-associated neurological disorders. Through its mission, the organization is dedicated to improving the lives of those living with KAND, accelerating research to find a cure, and providing support and advocacy for patients and their families.
Impact
This information is meant to be a general summary of Kif1Aorg Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
Kif1Aorg Inc's impact lies in its dedication to improving the lives of those affected by KIF1A-associated neurological disorders, such as KAND, and accelerating research to find a cure. By providing family support, patient advocacy, and powering collaborative research efforts, Kif1Aorg Inc is actively working to address the medical challenges presented by these disorders, including spastic paraplegia, epilepsy, intellectual disability, optic nerve atrophy, and more. Through programs like the KIF1A Research Network and direct research funding, the organization is contributing to the development of treatments for KAND and related conditions. In doing so, Kif1Aorg Inc is making a significant impact on the lives of individuals and families affected by these rare and debilitating disorders, offering hope for a better future.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2017
Phone
(212) 896-2925
Principal Officer
Sally Jackson
Main Address
808 COLUMBUS AVENUE 10A, NEW YORK, NY, 10025
Website
www.kif1a.org
NTEE Category
Code: F01 - Mental health
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