Overview
What is Texas Neurofibromatosis Foundation?
The Texas Neurofibromatosis Foundation is a nonprofit organization situated in Irving, Texas. Their primary mission is to fund research projects related to neurofibromatosis and raise public awareness about the condition. They actively participate in a coalition, Neurofibromatosis National Affairs, to ensure sufficient funding from federally funded programs. In addition to research, the foundation offers support groups to individuals and families battling neurofibromatosis, providing a sense of community and resources during challenging times. With a team of five dedicated employees, the Texas Neurofibromatosis Foundation continues its mission to advance understanding and support for neurofibromatosis.
Official website here: www.texasnf.org
Is Texas Neurofibromatosis Foundation legitimate?
Texas Neurofibromatosis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Texas Neurofibromatosis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $87,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $82,012
For more financial information, click here
Official website here: www.texasnf.org
What is the mission statement of Texas Neurofibromatosis Foundation?
The Texas Neurofibromatosis Foundation is committed to funding research and education related to neurofibromatosis. Their mission extends to providing support groups for individuals and families affected by this illness. The organization actively participates in the Neurofibromatosis National Affairs Coalition to boost public awareness and advocate for increased funding from federally funded programs. In essence, their goal is to contribute to the advancement of neurofibromatosis knowledge and offer emotional support to those impacted by the condition.
Official website here: www.texasnf.org
Who is the CEO of Texas Neurofibromatosis Foundation?
Laura Lyon is the Director of Texas Neurofibromatosis Foundation.
Official website here: www.texasnf.org
What is the revenue of Texas Neurofibromatosis Foundation?
Texas Neurofibromatosis Foundation's revenue in 2022 was $564,208.
Official website here: www.texasnf.org
Who are the executives of Texas Neurofibromatosis Foundation and what are their salaries?
The average compensation at Texas Neurofibromatosis Foundation during 2022 was $33,802. There are 5 employees and 100 volunteers at Texas Neurofibromatosis Foundation.
Here are 17 key members and their salaries:
- Cindy Hahn (Executive Director)
- John Lowe (Director)
- Laura G Lyon (Director/President)
- Laina Olinger (Director/ Vp)
- Janie Perelman (Director)
- Tammy Benson O'Brien (Director)
- Tricia Madden (Director/Secretary)
- Bob Boronow (Director)
- Scott Remphrey (Director)
- Kathryn Loo (Treasurer) [Trustee/Director]
- John Slopis Md (Director)
- Paul Schrier (Director)
- Edel Cuadra (Director)
- Jeff Davison (Director)
- Jane Hoskins (Director)
- Jon Keith (Director)
- Katie Lange (Director)
Official website here: www.texasnf.org
Where can I find the form 990 for Texas Neurofibromatosis Foundation?
The Texas Neurofibromatosis Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.texasnf.org
Learn more at the official website: www.texasnf.org
Mission Statement of Texas Neurofibromatosis Foundation
The Texas Neurofibromatosis Foundation is committed to a mission that encompasses two primary objectives. Firstly, it funds extensive research into neurofibromatosis, a debilitating illness. By investing in projects that delve into the complexities of this condition, the foundation aims to uncover potential treatments and advancements to improve the lives of those afflicted.
Secondly, the organization extends its support beyond the realm of research. It provides educational resources to raise public awareness about neurofibromatosis and advocates for increased funding from federally-backed programs. Additionally, the Texas Neurofibromatosis Foundation establishes and backs support groups for individuals and families grappling with the challenges posed by this illness. By offering a platform for connection and shared experiences, these groups serve as a source of strength and encouragement for those navigating their neurofibromatosis journey.
Impact
This information is meant to be a general summary of Texas Neurofibromatosis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
Texas Neurofibromatosis Foundation's impact is significant as it funds neurofibromatosis research and education, supports individuals facing the illness through support groups, and actively participates in advocacy efforts to raise public awareness and secure increased funding from federally funded programs through the Neurofibromatosis National Affairs Coalition. Their work is crucial in advancing research, providing support, and increasing awareness about neurofibromatosis.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
1980
Phone
(972) 739-6086
Principal Officer
Laura Lyon
Main Address
511 East John Carpenter Freeway, Irving, TX, 75062
Website
www.texasnf.org
NTEE Category
Code: G50 - Disease
If you are a representative of Texas Neurofibromatosis Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.