Overview
What is International Fop Association Inc?
International Fop Association Inc, based in North Kansas City, Missouri, is a dedicated nonprofit organization primarily focused on funding research to discover a cure for Fibrodysplasia Ossificans Progressiva (FOP). The majority of their budget is allocated towards research programs and services, with significant investments in the FOP Registry, a crucial tool for scientific research, and research grants. They also support research initiatives at institutions like the University of Pennsylvania and the University of Massachusetts. Additionally, the organization provides support, connections, and advocacy for individuals with FOP and their families, raising awareness worldwide.
Official website here: www.ifopa.org
Is International Fop Association Inc legitimate?
International Fop Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Fop Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $174,666
Professional Fundraising Fees: $8,315
Other Salaries and Wages: $609,910
For more financial information, click here
Official website here: www.ifopa.org
What is the mission statement of International Fop Association Inc?
The International Fop Association Inc's mission is centered around funding research to discover a cure for Fibrodysplasia Ossificans Progressiva (FOP), while simultaneously supporting, connecting, and advocating for individuals with FOP and their families. The organization aims to raise awareness about the condition on a global scale. A significant portion of the association's budget is allocated to research programs and services, with the FOP Registry, a critical tool for scientific research, being the primary investment. The IFOPA also provides research grants to institutions like the University of Pennsylvania's Center for Research in FOP and Related Disorders and the IFOPA's ACT Grant Program at the University of Massachusetts. In addition, the association funds gene therapy research and supports a FOP Biobank and a preclinical drug testing program in partnership with the Mayo Clinic.
Official website here: www.ifopa.org
Who is the CEO of International Fop Association Inc?
Michelle Davis is the Chair of International Fop Association Inc.
Official website here: www.ifopa.org
What is the revenue of International Fop Association Inc?
International Fop Association Inc's revenue in 2022 was $3,050,181.
Official website here: www.ifopa.org
Who are the executives of International Fop Association Inc and what are their salaries?
- Michelle Davis (Executive Director)
- Danielle Kerkovich (Research Director)
- Megan Olsen (Chair) [Trustee/Director]
- Rebecca Wallace (Vice Chair) [Trustee/Director]
- Emma Albee (Secretary) [Trustee/Director]
- Gary Mcguire (Treasurer) [Trustee/Director]
- Chris Bedford-Gay (Director)
- Kyle Brinkman (Director)
- Chrissy Flexer (Director)
- Danielle Fraser (Director)
- Kristi Gonzales (Director)
- Amy Gordon (Director)
- Nadine Grossman (Director)
- Kerry Hueston (Director)
- Hollie Schmidt (Director)
Official website here: www.ifopa.org
Where can I find the form 990 for International Fop Association Inc?
The International Fop Association Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.ifopa.org
Learn more at the official website: www.ifopa.org
Mission Statement of International Fop Association Inc
The International Fop Association, Inc., is committed to funding research to find a cure for Fibrodysplasia Ossificans Progressiva (FOP), a debilitating disease. Beyond research, the organization also extends support, connection, and advocacy to individuals with FOP and their families, while raising awareness globally. This multifaceted mission aims to address the physical, emotional, and social needs of those affected by FOP, working tirelessly to improve their quality of life.
A significant part of the International Fop Association's efforts is dedicated to medical research. They invest a substantial portion of their budget in research programs and services, with the FOP Registry serving as a critical tool for scientific research. This registry is a unique resource, being the only one in the world for FOP patients. The association also funds research grants, such as those awarded to the University of Pennsylvania's Center for Research in FOP and Related Disorders, and the IFOPA's ACT (Accelerating Cures and Treatments) for FOP Grant Program at the University of Massachusetts. Furthermore, the International Fop Association supports the FOP Biobank and a preclinical drug testing program in collaboration with the Mayo Clinic.
In summary, the International Fop Association, Inc., is an organization that prioritizes funding research to find a cure for Fibrodysplasia Ossificans Progressiva. Simultaneously, they offer support, connection, and advocacy to individuals with FOP and their families. Their mission is to enhance the lives of those affected by this disease, while raising awareness worldwide.
Impact
This information is meant to be a general summary of International Fop Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The International Fop Association Inc's impact lies in its dedicated efforts to fund research aimed at finding a cure for Fibrodysplasia Ossificans Progressiva (FOP). By focusing the majority of its budget on research programs and services, particularly through initiatives like the FOP Registry - the sole registry for FOP patients globally - the organization plays a pivotal role in advancing scientific understanding of this rare disease. Additionally, their funding of research grants, collaborations with esteemed institutions like the University of Pennsylvania and the University of Massachusetts for gene therapy, and support for critical programs such as the FOP Biobank and preclinical drug testing at the Mayo Clinic, highlight the IFOPA's commitment to accelerating treatments and ultimately finding a cure for FOP. Through these endeavors, the International Fop Association Inc is making a tangible impact in the FOP community, providing vital support, resources, and hope to individuals and families affected by this challenging disease.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM SERVICE FEES
Revenue
$143,363
EVENT REGISTRATION
Revenue
$38,275
Organization Details
Founding Year
1988
Phone
(407) 365-4194
Principal Officer
Michelle Davis
Main Address
1520 CLAY ST STE H2, NORTH KANSAS CITY, MO, 64116
Website
www.ifopa.org
NTEE Category
Code: G20 - Disease
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