Overview
What is Spina Bifida Association Of America?
The Spina Bifida Association of America is a nonprofit organization situated in Arlington, Virginia. Its mission is to create a brighter future for individuals affected by spina bifida, encompassing education, advocacy, research, and service. The association works collaboratively with various stakeholders, including medical professionals, parents, and adults with spina bifida, to improve healthcare through the Spina Bifida Collaborative Care Network (SBCCN). This network aims to monitor, track, and evaluate care provided in spina bifida clinics and other healthcare settings. Additionally, the organization collaborates with the National Center on Birth Defects and Developmental Disabilities to conduct research through the National Spina Bifida Patient Registry (NSBPR). The association's activities and mission are centered around providing information, facilitating research, and educating professionals to enhance the lives of individuals living with spina bifida.
Official website here: www.sbaa.org
Is Spina Bifida Association Of America legitimate?
Spina Bifida Association Of America is a legitimate nonprofit organization registered as a 501(c)(3) entity. Spina Bifida Association Of America submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $461,815
Professional Fundraising Fees: $0
Other Salaries and Wages: $674,535
For more financial information, click here
Official website here: www.sbaa.org
What is the mission statement of Spina Bifida Association Of America?
The Spina Bifida Association of America has a mission to construct a better and brighter future for individuals impacted by spina bifida. This is achieved through providing information about the birth defect and related conditions, offering support to those living with it, conducting research into the causes, effects, and treatments of spina bifida, and educating and training professionals involved in its treatment. The association works towards these goals through initiatives like the Spina Bifida Collaborative Care Network, which aims to improve health care for people with spina bifida and continues research through the National Spina Bifida Patient Registry. The network also produces guidelines for the care of individuals with spina bifida, utilizing data from the patient registry.
Official website here: www.sbaa.org
Who is the CEO of Spina Bifida Association Of America?
Sara Struwe is the Chair of Spina Bifida Association Of America. The CEO's salary of Spina Bifida Association Of America is $144,612 and their total compensation is $175,293.
Official website here: www.sbaa.org
What is the revenue of Spina Bifida Association Of America?
Spina Bifida Association Of America's revenue in 2022 was $2,183,431.
Official website here: www.sbaa.org
Who are the executives of Spina Bifida Association Of America and what are their salaries?
The average compensation at Spina Bifida Association Of America during 2022 was $71,022. There are 16 employees and 615 volunteers at Spina Bifida Association Of America.
Here are 17 key members and their salaries (Spina Bifida Association Of America's CEO's salary is $144,612 and their total compensation is $175,293):
- Sara Struwe (President And Ceo)
- Michael Wood (Coo)
- Glenrae Brown (Cfo)
- Maria Bournias Esq Cpa (Chair) [Trustee/Director]
- Michael Harty Jr (Immediate Past Chair) [Trustee/Director]
- Anshul Varma (Treasurer/Secretary) [Trustee/Director]
- Nancy Gore (Chair-Elect) [Trustee/Director]
- Doug Burns (Board Member) [Trustee/Director]
- Dawne Widener Burrows (Board Member) [Trustee/Director]
- Tracy Dinunzio (Board Member) [Trustee/Director]
- Melissa May (Board Member) [Trustee/Director]
- John Weinermd (Board Member) [Trustee/Director]
- Wilson Neyland (Board Member) [Trustee/Director]
- Chase Phillips (Board Member) [Trustee/Director]
- Kathryn Smith (Board Member) [Trustee/Director]
- Marie Thoming (Board Member) [Trustee/Director]
- Eric Tobin (Board Member) [Trustee/Director]
Official website here: www.sbaa.org
Where can I find the form 990 for Spina Bifida Association Of America?
The Spina Bifida Association Of America’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.sbaa.org
Learn more at the official website: www.sbaa.org
Mission Statement of Spina Bifida Association Of America
The Spina Bifida Association of America is dedicated to creating a brighter future for individuals affected by spina bifida and related conditions. Their mission encompasses four key areas: providing information, advocacy, research, and service. They strive to educate the public about spina bifida, offering support to those living with this birth defect through various means.
In terms of education, the Spina Bifida Association of America works tirelessly to disseminate knowledge about spina bifida and its associated conditions. They foster an environment of learning and understanding, not only for individuals living with the condition but also for healthcare professionals involved in its treatment.
Furthermore, the association is committed to facilitating research into the causes, effects, and treatment of spina bifida. They collaborate with various organizations, including the Centers for Disease Control and Prevention (CDC), to continue research through the National Spina Bifida Patient Registry (NSBPR). This collaborative effort enables the collection and analysis of data, ultimately leading to advancements in the understanding and treatment of spina bifida.
Additionally, the Spina Bifida Association of America focuses on service, providing support to individuals living with spina bifida through their Spina Bifida Collaborative Care Network (SBCCN). This network brings together a diverse group of individuals, including SBA staff, chapter leaders, doctors, nurses, psychologists, parents of children with spina bifida, and adults with spina bifida. By working together, they aim to improve healthcare for people with spina bifida, establish a system for monitoring and evaluating care, and produce guidelines for the treatment of spina bifida based on research from the NSBPR.
In summary, the Spina Bifida Association of America is a nonprofit organization that is passionate about improving the lives of individuals affected by spina bifida and related conditions. They achieve this by providing education, advocating for research, and offering support through their services. By collaborating with various organizations and individuals, they aim to advance the understanding and treatment of spina bifida, ultimately leading to a brighter future for those affected by this birth defect.
Impact
This information is meant to be a general summary of Spina Bifida Association Of America. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The Spina Bifida Association of America's impact is significant in the field of healthcare and research related to spina bifida. Through initiatives like the Spina Bifida Collaborative Care Network (SBCCN), the organization has been pivotal in improving the health care of individuals with spina bifida. By bringing together a diverse group of stakeholders, including medical professionals, researchers, and individuals with spina bifida, the SBCCN has developed guidelines for the care of people living with spina bifida. Additionally, their collaboration with the National Center on Birth Defects and Developmental Disabilities has led to the continuation of research through the National Spina Bifida Patient Registry (NSBPR).
Overall, the Spina Bifida Association of America's efforts in research, clinical care, and advocacy have contributed to building a better and brighter future for all those impacted by spina bifida. Their work not only provides support and information to individuals living with spina bifida but also facilitates important research into the causes, effects, and treatment of this birth defect.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE & MEETINGS
Revenue
$67,671
Organization Details
Founding Year
1973
Phone
(202) 944-3285
Principal Officer
Sara Struwe
Main Address
1600 WILSON BOULEVARD 800, ARLINGTON, VA, 22209
Website
www.sbaa.org
NTEE Category
Code: G55Z - Disease
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