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Restless Legs Syndrome Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 561784846 ✦ Austin, TX ✦ Designated as a 501(c)(3)

Overview

What is Restless Legs Syndrome Foundation?

The Restless Legs Syndrome Foundation is a dedicated nonprofit organization based in Austin, Texas. Their primary mission is to raise awareness, educate, and support research into causes and cures for Restless Legs Syndrome (RLS), also known as Willis-Ekбом Disease. They achieve this through various means, including publications, webinars, an informative website, social media platforms, and direct communications. Their publications cater to both individuals and healthcare providers, addressing topics like general information, child-specific cases, and specialist guides for medical professionals. Thousands participate in their webinars, and their online resources attract a substantial number of visitors annually. The foundation also has a significant social media presence and a YouTube channel, further disseminating information. Additionally, they execute a public policy initiative program to advocate for increased medical research funding and improved treatment access for RLS patients.


Official website here: www.rls.org

Is Restless Legs Syndrome Foundation legitimate?

Restless Legs Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Restless Legs Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $98,788
Professional Fundraising Fees: $36,483
Other Salaries and Wages: $67,005

For more financial information, click here


Official website here: www.rls.org

What is the mission statement of Restless Legs Syndrome Foundation?

The Restless Legs Syndrome Foundation's mission is centered around raising awareness, educating the public, and supporting research into better treatments and potential cures for the Willis-Ekbom Disease, commonly known as Restless Legs Syndrome (RLS). The organization aims to encourage and provide funding for research that could lead to solutions for this condition. Furthermore, the foundation offers support to individuals affected by RLS, serving as a leading resource for information on various aspects of the disease, its treatments, and potential cures. The board of the foundation has the authority to designate other activities related to RLS, its treatments, and potential cures whenever necessary.


Official website here: www.rls.org

Who is the CEO of Restless Legs Syndrome Foundation?

Karla Dzienkowski is the Executive Di of Restless Legs Syndrome Foundation.


Official website here: www.rls.org

What is the revenue of Restless Legs Syndrome Foundation?

Restless Legs Syndrome Foundation's revenue in 2022 was $944,438.


Official website here: www.rls.org

Who are the executives of Restless Legs Syndrome Foundation and what are their salaries?

The average compensation at Restless Legs Syndrome Foundation during 2022 was $41,448. There are 4 employees and 93 volunteers at Restless Legs Syndrome Foundation.

Here are 13 key members and their salaries:

    Karla Dzienkowski (Executive Di)
  • Compensation: $90,000
  • Related: $0
  • Other: $9,000

    • Carla Rahn Phillips (Chairman) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Linda Secretan (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Greg Oberland (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Lewis Phelps (Chairman Eme) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Marcia Ball (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jacquelyn Bainbridge (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jeffrey Durmer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Laura Scott Hoffman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Peter Nussbaum (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • David J Loskutoff (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Shalini Paruthi (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Paul Rochester (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.rls.org

    Where can I find the form 990 for Restless Legs Syndrome Foundation?

    The Restless Legs Syndrome Foundation’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.rls.org

    Learn more at the official website: www.rls.org

    Mission Statement of Restless Legs Syndrome Foundation

    The Restless Legs Syndrome Foundation is committed to raising awareness, educating the public, and promoting research to identify better treatments and potentially discover cures for Restless Legs Syndrome (RLS), also known as the Willis-Ekbom Disease. With a mission to serve as a leading authority on the disease, the organization aims to increase scientific understanding of RLS and encourage funding for research that could lead to effective treatments.

    Beyond research, the Restless Legs Syndrome Foundation is dedicated to supporting individuals suffering from the condition. By providing resources and information, the organization seeks to become the go-to source for all aspects of RLS, including its causes, treatments, and potential cures. In addition to this, the foundation is committed to carrying out various activities related to the disease, as directed by its board of directors. Overall, the Restless Legs Syndrome Foundation is dedicated to advancing knowledge, supporting those affected, and working towards finding solutions for this debilitating condition.

    Impact

    This information is meant to be a general summary of Restless Legs Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    The Restless Legs Syndrome Foundation has made a significant impact by raising awareness about Restless Legs Syndrome (RLS), also known as Willis-Ekbom Disease. Through educational initiatives, publications, webinars, and direct communications, the foundation provides trusted and unbiased information about RLS to both individuals and healthcare providers.

    With a wide range of resources such as brochures, guides, handouts, newsletters, and webinars, the foundation has reached a large audience and engaged over 5,395 participants in RLS-related topics. The organization's website, social media platforms, and YouTube channel attract tens of thousands of visitors, creating a strong online presence for information dissemination.

    Furthermore, the foundation's public policy initiative program aims to raise awareness, provide education, and advocate for increased medical research funding and appropriate treatment access for individuals with RLS. By serving as a leading center for information on RLS and supporting those affected by the disease, the Restless Legs Syndrome Foundation plays a crucial role in advancing scientific understanding and improving the lives of individuals with RLS.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $7,016
  • Program Service Revenue: $0
  • Gross Receipts: $1,030,451

    • Assets and Liabilities:
  • Total Assets: $795,669
  • Total Liabilities: $58,751
  • Net Assets: $736,918
  • Organization Details

    Founding Year

    1993

    Principal Officer

    Karla Dzienkowski

    Main Address

    3006 BEE CAVE RD D-206, AUSTIN, TX, 78746

    NTEE Category

    Code: H99Z - Medical research

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