Overview
What is Friedreich's Ataxia Research Alliance?
The Friedreich's Ataxia Research Alliance (FARA) is a nationwide, nonprofit organization, classified as a 501(c)(3), dedicated to spearheading scientific research aimed at discovering treatments and a potential cure for Friedreich's ataxia. This committed group works tirelessly to fund research, raise public awareness, and forge collaborations with various entities, such as scientists, patients, clinicians, government agencies, and pharmaceutical companies, all with the shared goal of conquering Friedreich's ataxia and related disorders. FARA's mission is to pool and direct the necessary resources and connections to cure this condition.
Official website here: www.curefa.org
Is Friedreich's Ataxia Research Alliance legitimate?
Friedreich's Ataxia Research Alliance is a legitimate nonprofit organization registered as a 501(c)(3) entity. Friedreich's Ataxia Research Alliance submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $327,439
Professional Fundraising Fees: $0
Other Salaries and Wages: $700,894
For more financial information, click here
Official website here: www.curefa.org
What is the mission statement of Friedreich's Ataxia Research Alliance?
The Friedreich's Ataxia Research Alliance (FARA) aims to treat and eradicate Friedreich's Ataxia (FA) by propelling research, awareness, and collaborations. Their mission is to amass and direct the necessary resources and connections to cure FA by securing funds for research, advocating for public awareness, and uniting scientists, patients, healthcare professionals, government entities, pharmaceutical companies, and other organizations committed to curing FA and related disorders. They strive to advance research in the field of FA with the ultimate goal of discovering treatments and a definitive cure.
Official website here: www.curefa.org
Who is the CEO of Friedreich's Ataxia Research Alliance?
Jennifer Farmer is the President/Director of Friedreich's Ataxia Research Alliance. The CEO's salary of Friedreich's Ataxia Research Alliance is $150,000 and their total compensation is $155,228.
Official website here: www.curefa.org
What is the revenue of Friedreich's Ataxia Research Alliance?
Friedreich's Ataxia Research Alliance's revenue in 2022 was $11,042,911.
Official website here: www.curefa.org
Who are the executives of Friedreich's Ataxia Research Alliance and what are their salaries?
The average compensation at Friedreich's Ataxia Research Alliance during 2022 was $64,271. There are 16 employees and 500 volunteers at Friedreich's Ataxia Research Alliance.
Here are 21 key members and their salaries (Friedreich's Ataxia Research Alliance's CEO's salary is $150,000 and their total compensation is $155,228):
- Barbara A Tate (Chief Scientific Officer)
- Jennifer M Farmer (Chief Executive Officer)
- Elisabetta Soragni (Director Of Research)
- Ronald Bartek (President/Director)
- Ruth Acton (Treasurer/Dir Of Finance Admin, Hr) [Trustee/Director]
- Paul Avery (Chairman/ Director)
- Marilyn E Downing (Secretary/ Director)
- Dr Sanjay Bidichandani (Director)
- Brigid Brennan (Director/ General Counsel)
- Thomas Brenninkmeijer (Director)
- Alex Fielding (Director)
- Jennifer Good (Director)
- Thomas Hamilton (Director)
- Dr Holly Hedrick (Director)
- Derek G Hennecke (Director)
- Dr Steve Klasko (Director)
- Dr Kathy Mathews (Director)
- Dr James Mcarthur (Director)
- Tony Plohoros (Director)
- Patrick Ritschel (Director)
- Dr James R Rusche (Director)
Official website here: www.curefa.org
Where can I find the form 990 for Friedreich's Ataxia Research Alliance?
The Friedreich's Ataxia Research Alliance’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.curefa.org
Learn more at the official website: www.curefa.org
Mission Statement of Friedreich's Ataxia Research Alliance
The Friedreich's Ataxia Research Alliance (FARA) is a committed, national organization with a mission to combat Friedreich's Ataxia (FA) by fostering research, awareness, and collaborations. Their primary objective is to assemble and concentrate the necessary resources and connections to eradicate FA by raising funds for scientific studies, advocating for public understanding, and coordinating scientists, patients, healthcare professionals, government agencies, and pharmaceutical companies who are devoted to curing FA and related disorders.
FARA serves as a vital catalyst in bringing together various stakeholders with a shared goal of finding a cure for FA. By harnessing financial support, amplifying public awareness, and fostering partnerships, FARA aims to drive cutting-edge research and accelerate the development of effective treatments for this debilitating neurological disorder. Their mission is to leverage their network and influence to mobilize and direct the resources required to overcome FA, ultimately leading to a much-needed breakthrough in medical science.
Impact
This information is meant to be a general summary of Friedreich's Ataxia Research Alliance. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The Friedreich's Ataxia Research Alliance has a significant impact in the field of medical research focused on treating and curing Friedreich's ataxia (FA). By raising funds for research, promoting public awareness, and aligning various stakeholders including scientists, patients, clinicians, government agencies, and pharmaceutical companies, FARA is dedicated to advancing scientific research that leads to potential treatments and ultimately a cure for FA and related disorders. Their mission is to marshal and focus resources and relationships necessary to cure FA, making a tangible contribution to the pursuit of a solution for this debilitating condition.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
1998
Phone
(484) 879-6160
Principal Officer
Jennifer Farmer
Main Address
PO BOX 1537, SPRINGFIELD, VA, 22151
Website
www.curefa.org
NTEE Category
Code: H99 - Medical research
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