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Fshd Society

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 521762747 ✦ Randolph, MA ✦ Designated as a 501(c)(3)

Overview

What is Fshd Society?

The Fshd Society, situated in Randolph, Massachusetts, is a dedicated nonprofit organization with a mission to expedite research and ultimately find a treatment and cure for FSHD muscular dystrophy. With a team of 17 individuals, their primary focus is on increasing awareness and understanding of this condition, as well as conducting extensive research into its causes. They are committed to organizing and funding these investigations, with the ultimate goal of developing effective treatments and a cure for FSHD muscular dystrophy. The Fshd Society plays a crucial role in the ongoing quest to overcome this debilitating disease.


Official website here: www.fshdsociety.org

Is Fshd Society legitimate?

Fshd Society is a legitimate nonprofit organization registered as a 501(c)(3) entity. Fshd Society submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $630,609
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,061,369

For more financial information, click here


Official website here: www.fshdsociety.org

What is the mission statement of Fshd Society?

The Fshd Society is committed to increasing awareness and understanding of Facioscapulohumeral Muscular Dystrophy. Their primary mission is to accelerate research, aiming to expedite the development of treatments and ultimately a cure for this muscular dystrophy. The organization focuses on funding and organizing research into the causes of FSHD, with the ultimate goal of creating effective treatments and finding a cure. This research-driven approach is at the heart of the Fshd Society's mission.


Official website here: www.fshdsociety.org

Who is the CEO of Fshd Society?

Mark A Stone is the Chairman of Fshd Society. The CEO's salary of Fshd Society is $223,921 and their total compensation is $272,924.


Official website here: www.fshdsociety.org

What is the revenue of Fshd Society?

Fshd Society's revenue in 2022 was $3,508,920.


Official website here: www.fshdsociety.org

Who are the executives of Fshd Society and what are their salaries?

The average compensation at Fshd Society during 2022 was $99,528. There are 17 employees and 863 volunteers at Fshd Society.

Here are 24 key members and their salaries (Fshd Society's CEO's salary is $223,921 and their total compensation is $272,924):

    Mark Stone (Ceo & President)
  • Compensation: $223,921
  • Related: $0
  • Other: $49,003

    • Jamshid Arjomand (Chief Science Officer)
  • Compensation: $197,520
  • Related: $0
  • Other: $19,717

    • Leigh Reynolds (Dir Of Research & Patient)
  • Compensation: $114,232
  • Related: $0
  • Other: $30,953

    • Lisa Schimmel (Cfo)
  • Compensation: $116,490
  • Related: $0
  • Other: $23,958

    • Kenneth Alexander Kahtava (Chief Business Officer)
  • Compensation: $108,907
  • Related: $0
  • Other: $20,523

    • Beth Johnston (Chief Community Engagement)
  • Compensation: $122,500
  • Related: $0
  • Other: $5,655

    • June Kinoshita (Senior Director Of Research And Education)
  • Compensation: $103,000
  • Related: $0
  • Other: $4,794

    • James A Chin Sr (Chairman) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Howard L Chabner Jd (Vice Chairman) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Christine Ford (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ellen K Hannan (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Amy Z Bekier (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Stuart Lai (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • David Rubin (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • William R Lewis Iii Md (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Michelle Helen Mackay (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Lee Frank Kolakowski Phd (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Linda Laurello (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • George Pollock Jr (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Neil Andrew Solomon Md Facp (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Carden Wyckoff (Former Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Marie Morrell (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jack Gerblick (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Bruce Ryskamp (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.fshdsociety.org

    Where can I find the form 990 for Fshd Society?

    The Fshd Society’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.fshdsociety.org

    Learn more at the official website: www.fshdsociety.org

    Mission Statement of Fshd Society

    The FSHD Society is dedicated to increasing awareness and understanding of Facioscapulohumeral Muscular Dystrophy (FSHD). This nonprofit organization's mission is to spearhead research in this area, with the ultimate goal of expediting treatments and finding a cure for FSHD. The society actively works towards organizing and funding research into the causes of FSHD, aiming to develop effective treatments and potentially a cure for this muscular dystrophy. The core mission of the FSHD Society is centered around accelerating research in this field, with the hope of providing relief and hope for those affected by this condition.

    Impact

    This information is meant to be a general summary of Fshd Society. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    The Fshd Society's impact lies in advancing research to accelerate the development of treatments and ultimately find a cure for Facioscapulohumeral Muscular Dystrophy (FSHD). Through organizing and funding research into the causes of FSHD, the society is dedicated to increasing awareness and understanding of this condition. Their mission is to drive progress in medical research, particularly in the field of FSHD, with the ultimate goal of improving the lives of those affected by this disease.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $133,904
  • Program Service Revenue: $304,466
  • Gross Receipts: $3,774,376

    • Assets and Liabilities:
  • Total Assets: $6,079,315
  • Total Liabilities: $1,400,698
  • Net Assets: $4,678,617
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    CORPORATE SPONSORSHIPS

    Revenue

    $207,607

    PATIENT MEETING REGIST

    Revenue

    $37,708

    RESEARCH MEETING REGIS

    Revenue

    $37,151

    CORPORATE PARTNERSHIPS

    Revenue

    $22,000

    Organization Details

    Founding Year

    1991

    Principal Officer

    Mark A Stone

    Main Address

    75 NORTH MAIN STREET 1073, RANDOLPH, MA, 02368

    NTEE Category

    Code: H20Z - Medical research

    If you are a representative of Fshd Society and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.