Overview
What is National Scleroderma Foundation Inc?
The National Scleroderma Foundation Inc, headquartered in Danvers, Massachusetts, is a dedicated nonprofit organization that relentlessly pursues finding a cure for scleroderma. Their primary focus is on funding medical research, raising disease awareness, and offering educational and emotional support to individuals and families impacted by this condition. The organization's network of thousands of supporters across the United States plays a crucial role in their mission. During the pandemic, they transitioned their community support services to virtual platforms, enabling connection for patients nationwide. Furthermore, they provide education to both patients and healthcare providers, ensuring timely diagnoses and access to cutting-edge treatments. The annual National Scleroderma Conference attracts over 500 participants, while virtual conferences during the pandemic offered valuable resources and networking opportunities.
Official website here: www.scleroderma.org
Is National Scleroderma Foundation Inc legitimate?
National Scleroderma Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Scleroderma Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $454,933
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,796,899
For more financial information, click here
Official website here: www.scleroderma.org
What is the mission statement of National Scleroderma Foundation Inc?
The National Scleroderma Foundation's mission involves advancing medical research, promoting disease awareness, and providing support and education to individuals with scleroderma, their families, and support networks. The organization is a relentless force in finding a cure and improving the lives of those affected by the disease. It supports people living with scleroderma through access to support groups, transitioning from in-person to virtual community support during the pandemic, and creating targeted, topical groups for specific populations. The foundation also provides education about living with scleroderma, serving as a CME and CNE provider, and hosting an annual conference for over 500 participants. Due to the ongoing pandemic, a virtual conference was held in 2023, offering community support, world-class education, and networking opportunities for the scleroderma community via webinars.
Official website here: www.scleroderma.org
Who is the CEO of National Scleroderma Foundation Inc?
Mary J Wheatley is the Ceo of National Scleroderma Foundation Inc. The CEO's salary of National Scleroderma Foundation Inc is $226,252 and their total compensation is $243,412.
Official website here: www.scleroderma.org
What is the revenue of National Scleroderma Foundation Inc?
National Scleroderma Foundation Inc's revenue in 2023 was $6,915,898.
Official website here: www.scleroderma.org
Who are the executives of National Scleroderma Foundation Inc and what are their salaries?
The average compensation at National Scleroderma Foundation Inc during 2023 was $68,237. There are 33 employees and 300 volunteers at National Scleroderma Foundation Inc.
Here are 16 key members and their salaries (National Scleroderma Foundation Inc's CEO's salary is $226,252 and their total compensation is $243,412):
- Mary J Wheatley (Ceo)
- Michael B Hyde (Coo/Cfo)
- Cos Mallozzi (Director)
- Courtney Caliendo (Director)
- Christina Loccke (Director)
- Mary Blades (Director)
- Jeanne Theissen (Director)
- Mark Orozco Iii Mba (Director)
- Linda Bornstein Baum Od (Director)
- Marcia Walker (Director)
- Zeba Hyder (Director)
- Michael Pursel (Director)
- Kevin Boyanowski (Chair) [Trustee/Director]
- Carol Feghali-Bostwick Ph D (Vice Chair) [Trustee/Director]
- Mike Levengood Esq (Secretary) [Trustee/Director]
- Cyndy Besselievre Cpa (Treasurer) [Trustee/Director]
Official website here: www.scleroderma.org
Where can I find the form 990 for National Scleroderma Foundation Inc?
The National Scleroderma Foundation Inc’s most recent form 990 was submitted in 2023 and can be accessed here
Official website here: www.scleroderma.org
Learn more at the official website: www.scleroderma.org
Mission Statement of National Scleroderma Foundation Inc
The National Scleroderma Foundation is a relentless force in the fight against Scleroderma, a debilitating disease. Its mission is threefold: to advance medical research, promote awareness of the disease, and provide support and education to individuals affected by Scleroderma, their families, and support networks.
In pursuit of its mission, the National Scleroderma Foundation serves as a leading nonprofit funder of peer-reviewed research. Its goal is to discover the cause, understand the mechanisms, and ultimately overcome Scleroderma forever. The foundation's support extends to people living with Scleroderma, as well as their caregivers and family members. In response to the pandemic, the foundation pivoted from in-person to virtual community support, allowing members of the Scleroderma community to connect nationwide. This shift also facilitated the creation of targeted, topic-specific support groups, such as those for men, BIPOC, and young adults, who make up a significant portion of the Scleroderma population.
Education is another crucial aspect of the National Scleroderma Foundation's mission. The foundation provides resources for individuals living with Scleroderma and their support networks, offering guidance on how to manage the disease effectively. It also serves as a Continuing Medical Education (CME) and Continuing Nursing Education (CNE) provider, educating healthcare providers about Scleroderma's signs, symptoms, timely diagnosis, and cutting-edge treatments and therapies. The National Scleroderma Conference, attended by over 500 participants annually, is a significant educational event. Due to the ongoing pandemic, the foundation held a virtual conference in FY 2023, which provided community support, world-class education, and networking opportunities for the Scleroderma community via webinars. These webinars offered education and networking opportunities for individuals living with Scleroderma, their caregivers, families, and friends, as well as valuable information for healthcare professionals.
Impact
This information is meant to be a general summary of National Scleroderma Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The National Scleroderma Foundation Inc has made a significant impact in advancing medical research, promoting disease awareness, and providing support and education to individuals affected by scleroderma. They are a leading funder of peer-reviewed research to discover the cause, understand the mechanisms, and ultimately overcome scleroderma. Additionally, they have played a crucial role in supporting those living with scleroderma, caregivers, and family members by providing access to support groups. Even during the pandemic, the foundation successfully pivoted to virtual community support, allowing for greater connectivity and the creation of more targeted support groups to meet specific needs. Their commitment to education is evident through initiatives such as hosting virtual conferences that attract over 500 participants annually and offering webinars that provide valuable information for patients, caregivers, healthcare providers, and more. Through their relentless efforts, the National Scleroderma Foundation Inc is dedicated to improving the lives of those affected by this challenging disease.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Assets and Liabilities:
Organization Details
Founding Year
1993
Phone
(800) 722-4673
Principal Officer
Mary J Wheatley
Main Address
300 ROSEWOOD DRIVE 105, DANVERS, MA, 01923
Website
www.scleroderma.org
NTEE Category
Code: H400 - Medical research
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