Overview
What is The Marfan Foundation Inc?
The Marfan Foundation Inc, based in Port Washington, New York, is a dedicated nonprofit organization that focuses on advancing research for genetic aortic and vascular conditions such as Marfan, Loey-Dietz, and Vascular Ehlers-DANLOS (VEDS) syndromes. Over the past 41 years, they have funded 170 research grants, significantly contributing to reducing life-threatening problems, identifying treatments, and improving the quality of life for those affected. The foundation collaborates with the research community and international organizations to discover new therapies and treatments. Their grant mechanisms support a pipeline of dedicated researchers, ensuring the continuation of scientific discovery in the field of rare diseases. The Marfan Foundation also convenes national and international research conferences, facilitates collaborations, and holds symposia to expedite research progress. They partner with government agencies and healthcare organizations to further their research goals and advocate for additional funding. The organization's mission is to save lives and improve the quality of life for individuals with these conditions by pursuing innovative research, educating the public and patient community, and providing relentless support to families, caregivers, and healthcare providers.
Official website here: www.marfan.org
Is The Marfan Foundation Inc legitimate?
The Marfan Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Marfan Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $816,272
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,119,490
For more financial information, click here
Official website here: www.marfan.org
What is the mission statement of The Marfan Foundation Inc?
The Marfan Foundation Inc's mission is centered around saving lives and enhancing the quality of life for individuals affected by genetic aortic and vascular conditions, such as Marfan, Loey-Dietz, and Vascular Ehlers-Danlos (VEDS) syndromes. The organization is committed to driving innovative research and ensuring adequate funding for these studies. Furthermore, they strive to foster an informed public and educated patient community, promoting early diagnosis and life-saving treatments. Lastly, The Marfan Foundation Inc provides continuous support to families, caregivers, and healthcare providers, serving as a reliable source of assistance and guidance.
Official website here: www.marfan.org
Who is the CEO of The Marfan Foundation Inc?
Michael L Weamer is the Pres/Ceo of The Marfan Foundation Inc. The CEO's salary of The Marfan Foundation Inc is $409,261 and their total compensation is $447,177.
Official website here: www.marfan.org
What is the revenue of The Marfan Foundation Inc?
Who are the executives of The Marfan Foundation Inc and what are their salaries?
The average compensation at The Marfan Foundation Inc during 2023 was $117,430. There are 25 employees and 500 volunteers at The Marfan Foundation Inc.
Here are 29 key members and their salaries (The Marfan Foundation Inc's CEO's salary is $409,261 and their total compensation is $447,177):
- Michael L Weamer (Pres/Ceo)
- Helaine Baruch (Chief Development Officer)
- Josephine Grima (Chief Science Officer)
- Eileen J Masciale (Chief Program Officer)
- Inderjeet Kaur Cpa (Cfo)
- Lauren E May (Director Of Research)
- Kimberly K Huddleston (Vp. Of Development)
- Judith Gibaldi (Coo)
- Bert Medina (Secretary) [Trustee/Director]
- Caryn E Kauffman Cpa (Treasurer) [Trustee/Director]
- Cory A Eaves (Chair) [Trustee/Director]
- Karen Murray (Immediate Past Chair) [Trustee/Director]
- Alan Braverman Md (Director)
- Alix Mclean Jennings (Director)
- Andrew Toy (Director)
- Anthony Yasick Md (Director)
- David Warren (Director)
- Dawn Reiner (Director)
- Gary Kauffman (Director)
- Heather Bergstom (Director)
- James Prutow (Director)
- Jeffrey C Lesage (Director)
- Jerry L Lerman (Director)
- Jon Tullis (Director)
- Juan Bowen Md (Director)
- Patricia Mccabe Estrada (Director)
- Ray Chevallier (Director)
- Scott D Avitabile Esq (Director)
- Sinclair Li (Director)
Official website here: www.marfan.org
Where can I find the form 990 for The Marfan Foundation Inc?
The The Marfan Foundation Inc’s most recent form 990 was submitted in 2023 and can be accessed here
Official website here: www.marfan.org
Learn more at the official website: www.marfan.org
Mission Statement of The Marfan Foundation Inc
The Marfan Foundation Inc is committed to saving lives and enhancing the quality of life for individuals afflicted with genetic aortic and vascular conditions such as Marfan, Loey-Dietz, and Vascular Ehlers-Danlos (VEDS) syndromes. In pursuit of this mission, the organization actively seeks out and supports innovative research, ensuring that it receives adequate funding. By fostering an informed and educated public, as well as a patient community, The Marfan Foundation Inc works towards early diagnosis and the provision of life-saving treatments. Furthermore, the nonprofit offers relentless support to families, caregivers, and healthcare providers, providing them with the resources they need to navigate these complex conditions.
Impact
This information is meant to be a general summary of The Marfan Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The Marfan Foundation Inc saves lives and improves the quality of life for individuals with genetic aortic and vascular conditions, including Marfan, Loeys-Dietz, and Vascular Ehlers-Danlos Syndromes. Through its robust research programs and collaborations with the scientific community, the Foundation has advanced science for over four decades, funding numerous research grants that have led to life-saving treatments and improved outcomes for those living with these conditions. By convening national and international research conferences, facilitating collaborations, and advocating for additional research funding, The Marfan Foundation is at the forefront of driving progress in the field of rare genetic diseases.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
OTHER CONFERENCES
Revenue
$146,555
MARFAN CONFERENCE
Revenue
$78,651
Organization Details
Founding Year
1981
Phone
(516) 883-8712
Principal Officer
Michael L Weamer
Main Address
22 MANHASSET AVENUE, PORT WASHINGTON, NY, 110502023
Website
www.marfan.org
NTEE Category
Code: G43 - Disease
If you are a representative of The Marfan Foundation Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.