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Immune Deficiency Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 521214782 ✦ Hanover, MD ✦ Designated as a 501(c)(3)

Overview

What is Immune Deficiency Foundation?

The Immune Deficiency Foundation (IDF) is a nonprofit organization, headquartered in Hanover, Maryland. Its primary mission is to enhance the diagnosis, treatment, and quality of life for individuals affected by primary immunodeficiencies (PI). IDF achieves this by fostering a supportive community through advocacy, education, and research. In 2022, around 7,798 individuals engaged with more than 335 educational presentations, including events, meetings, and online gatherings. The organization also distributed over 103,209 educational materials and catered to over 881,747 website visitors seeking information and support. With a dedicated workforce of 44 individuals, IDF strives to ensure that all Americans with PI have a comprehensive understanding of their diagnosis, treatment options, and available support within the PI community.


Official website here: www.primaryimmune.org

Is Immune Deficiency Foundation legitimate?

Immune Deficiency Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Immune Deficiency Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $402,903
Professional Fundraising Fees: $0
Other Salaries and Wages: $3,161,073

For more financial information, click here


Official website here: www.primaryimmune.org

What is the mission statement of Immune Deficiency Foundation?

The Immune Deficiency Foundation's mission is to enhance the diagnosis, treatment, and quality of life for individuals affected by primary immunodeficiency. They achieve this by fostering a community empowered by advocacy, education, and research. The foundation aims to ensure that individuals in the U.S. with primary immunodeficiency have a comprehensive understanding of their diagnosis, available treatment options, the standard of care, and the opportunities for connection and support within the primary immunodeficiency community.


Official website here: www.primaryimmune.org

Who is the CEO of Immune Deficiency Foundation?

Jorey Berry is the President & of Immune Deficiency Foundation.


Official website here: www.primaryimmune.org

What is the revenue of Immune Deficiency Foundation?

Immune Deficiency Foundation's revenue in 2022 was $8,852,448.


Official website here: www.primaryimmune.org

Who are the executives of Immune Deficiency Foundation and what are their salaries?

The average compensation at Immune Deficiency Foundation during 2022 was $80,999. There are 44 employees and 250 volunteers at Immune Deficiency Foundation.

Here are 20 key members and their salaries:

    Jorey Berry (President &) [Trustee/Director]
  • Compensation: $215,354
  • Related: $0
  • Other: $27,790

    • Sarah Rose (Cfo)
  • Compensation: $134,904
  • Related: $0
  • Other: $24,854

    • Tammy Black (Vp Communica)
  • Compensation: $134,742
  • Related: $0
  • Other: $15,169

    • Aimee Simpson (Vp Instituti)
  • Compensation: $132,431
  • Related: $0
  • Other: $13,974

    • Lynn Albizo (Vp Public Po)
  • Compensation: $121,346
  • Related: $0
  • Other: $23,882

    • Kathy Antilla (Vp Education)
  • Compensation: $117,495
  • Related: $0
  • Other: $22,160

    • Christopher Duckett (Dir Of Talen)
  • Compensation: $109,265
  • Related: $0
  • Other: $28,585

    • Jason Angelos (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Pete Atherton (Seroc Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Joel Buckberg (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Steve Fietek (Finance Chai) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Terry Halper (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Seth Kaufman (Development) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kate Sullivan Md (Mac Vice-Cha) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Rebecca Buckley Md (Mac Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Seymour Phd (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Tracy A Shaw (Board Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Smith (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Harper Spero (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Sonia Vohnout (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.primaryimmune.org

    Where can I find the form 990 for Immune Deficiency Foundation?

    The Immune Deficiency Foundation’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.primaryimmune.org

    Learn more at the official website: www.primaryimmune.org

    Mission Statement of Immune Deficiency Foundation

    The Immune Deficiency Foundation, abbreviated as IDF, aims to enhance the diagnosis, treatment, and overall quality of life for individuals afflicted by primary immunodeficiency. To achieve this, IDF fosters a supportive community driven by advocacy, education, and research. By doing so, they strive to ensure that every person in the United States affected by primary immunodeficiency is well-informed about their diagnosis, the available treatment options, the standard of care expected, and the numerous opportunities for connection and assistance within the primary immunodeficiency community. The organization's mission is geared towards empowering these individuals, providing them with the necessary resources and support to navigate their condition effectively.

    Impact

    This information is meant to be a general summary of Immune Deficiency Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    The Immune Deficiency Foundation's impact includes improving the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency. Through fostering a community empowered by advocacy, education, and research, IDF provides educational programs for patients and families living with primary immunodeficiencies. In 2022, over 7,798 individuals attended more than 335 presentations such as IDF forums, education meetings, and various activities. Additionally, more than 103,209 educational materials were distributed, and the IDF website was accessed by 881,747 users for information and support.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $129,557
  • Program Service Revenue: $68,746
  • Gross Receipts: $17,534,180

    • Assets and Liabilities:
  • Total Assets: $14,567,941
  • Total Liabilities: $1,525,931
  • Net Assets: $13,042,010
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    SURVEY INCOME

    Revenue

    $55,545

    OTHER INCOME

    Revenue

    $13,201

    Organization Details

    Founding Year

    1980

    Principal Officer

    Jorey Berry

    Main Address

    7550 TEAGUE ROAD SUITE 220, HANOVER, MD, 21706

    NTEE Category

    Code: H9CZ - Medical research

    If you are a representative of Immune Deficiency Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.