nonprofit logo

Epilepsy Foundation Of America

Epilepsy Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 520856660 ✦ Bowie, MD ✦ Designated as a 501(c)(3)

Overview

What is Epilepsy Foundation Of America?

The Epilepsy Foundation of America is a renowned nonprofit organization based in Bowie, Maryland, with a workforce of 111 individuals. They are dedicated to advocating for individuals, families, and communities affected by epilepsy and seizures. The foundation offers a range of programs through its network of nearly 50 chapters and affiliates, available on Epilepsy.com. Their initiatives prioritize engaging parents, children, and adults in improving their quality of life. Additionally, they have programs aimed at ending early death from epilepsy and promoting overall wellness. The foundation's efforts are culturally and ethnically diverse, and it advocates for funding for epilepsy programs at the federal and state levels with the support of its grassroots volunteers. In essence, the Epilepsy Foundation of America leads the fight against the challenges of living with epilepsy and accelerates therapies to stop seizures, find cures, and save lives.


Official website here: www.epilepsy.com

Is Epilepsy Foundation Of America legitimate?

Epilepsy Foundation Of America is a legitimate nonprofit organization registered as a 501(c)(3) entity. Epilepsy Foundation Of America submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $1,457,347
Professional Fundraising Fees: $276,575
Other Salaries and Wages: $5,586,500

For more financial information, click here


Official website here: www.epilepsy.com

What is the mission statement of Epilepsy Foundation Of America?

The Epilepsy Foundation of America strives to make a significant impact in the lives of those affected by epilepsy. Their mission is to spearhead the fight against the challenges posed by epilepsy and accelerate therapies to stop seizures, discover cures, and ultimately save lives. The foundation plays a pivotal role in advocating for individuals, families, and communities, ensuring they receive the best possible services and care. Through its network of chapters and affiliates, the foundation offers various programs designed to enhance the quality of life for people living with epilepsy, from engaging parents, children, and adults to ending early death from epilepsy and promoting overall wellness. The foundation's efforts are geared towards cultural and ethnic diversity, and its grassroots volunteers advocate at the federal and state levels to secure funding for epilepsy programs.


Official website here: www.epilepsy.com

Who is the CEO of Epilepsy Foundation Of America?

Alison Zetterquist is the Principal Officer of Epilepsy Foundation Of America. The CEO's salary of Epilepsy Foundation Of America is $403,076 and their total compensation is $457,816.


Official website here: www.epilepsy.com

What is the revenue of Epilepsy Foundation Of America?

Epilepsy Foundation Of America's revenue in 2022 was $21,897,167.


Official website here: www.epilepsy.com

Who are the executives of Epilepsy Foundation Of America and what are their salaries?

The average compensation at Epilepsy Foundation Of America during 2022 was $63,458. There are 111 employees and 100 volunteers at Epilepsy Foundation Of America.

Here are 35 key members and their salaries (Epilepsy Foundation Of America's CEO's salary is $403,076 and their total compensation is $457,816):

    Laura Thrall (Ceo) [Trustee/Director]
  • Compensation: $403,076
  • Related: $0
  • Other: $54,740

    • Rahel Rosner (Chief Finance & Operations Officer)
  • Compensation: $239,278
  • Related: $0
  • Other: $58,412

    • Brandy E Fureman (Chief Outcomes Officer)
  • Compensation: $211,831
  • Related: $0
  • Other: $62,373

    • Geoffrey Delizzio (Chief Development Officer)
  • Compensation: $216,317
  • Related: $0
  • Other: $44,625

    • Laura Weidner (Vp Gov'T Relations & Advocacy)
  • Compensation: $176,788
  • Related: $0
  • Other: $37,566

    • Nathan Devault (Vp Marketing & Communications)
  • Compensation: $146,332
  • Related: $0
  • Other: $27,711

    • Gail Pundsack (Vp Field Operations (To Dec '21))
  • Compensation: $148,548
  • Related: $0
  • Other: $22,665

    • Danielle Solomon (Vp Human Resources)
  • Compensation: $134,882
  • Related: $0
  • Other: $27,052

    • Gregg Fort (Vp Regional Teams)
  • Compensation: $123,623
  • Related: $0
  • Other: $27,431

    • Jeanette Stoltzfus (Sr. Director, Major Gifts)
  • Compensation: $125,794
  • Related: $0
  • Other: $15,192

    • Bradley Boyer (Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jeffrey Parent (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Robert W Smith (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Cynthia Hudson (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Courtney Barton (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jerilee Beaudoin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Camila Coelho (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Tony Coelho (Director (To Oct '21))
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Elizabeth Corbett (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Frank Fischer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Stephanie Fokas (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • David Hawk (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Roger Heldman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Adam Kaller (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Steve Kuehn (Director (To Aug '21))
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Greg Mayes (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jim Mcaplin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Daniel Moore (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • David Moore (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Noah Richmond (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ron Shimabuku (Director (From Sep '21))
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Randy Siegel (Director (To May '22))
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Rebekah Walker (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Courtney Watson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Howard Zwirn (Director (From Aug '21))
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.epilepsy.com

    Where can I find the form 990 for Epilepsy Foundation Of America?

    The Epilepsy Foundation Of America’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.epilepsy.com

    Learn more at the official website: www.epilepsy.com

    Mission Statement of Epilepsy Foundation Of America

    The Epilepsy Foundation of America is a leading advocacy group dedicated to improving and saving lives through community services, education, access to care, and research. With a mission to put an end to the challenges faced by people living with epilepsy and seizures, this organization strives to accelerate therapies and find cures to stop seizures and ultimately save lives.

    The Epilepsy Foundation of America stands at the forefront, helping ensure individuals, families, and communities receive the best possible services and care. By developing nationwide programs, the foundation offers support through its network of nearly 50 chapters and affiliates, as well as on Epilepsy.com. These programs cater to a diverse range of individuals, from parents and children to adults, and are designed to improve quality of life and end early death from epilepsy. The foundation's grassroots volunteers, spread across the country, advocate at the federal and state levels, securing funding for epilepsy programs.

    In their pursuit of achieving a better future for those affected by epilepsy and seizures, the Epilepsy Foundation of America engages parents, children, and adults in improving their overall well-being. The organization's initiatives aim to provide culturally and ethnically diverse resources, empowering individuals to lead fulfilling lives despite the challenges brought on by epilepsy. Through their relentless dedication and advocacy efforts, they strive for a world where everyone living with epilepsy can reach their full potential.

    Impact

    This information is meant to be a general summary of Epilepsy Foundation Of America. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    The Epilepsy Foundation of America improves and saves lives through community services, education, access to care, and research. They advocate for individuals, families, and communities, ensuring that all people living with epilepsy and seizures receive the best possible services and care. Their nationwide programs engage parents, children, and adults to enhance their quality of life and focus on ending early death from epilepsy while promoting overall wellness. The Foundation's culturally diverse initiatives are supported by grassroots volunteers who advocate at federal and state levels to secure funding for epilepsy programs.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $2,003,827
  • Program Service Revenue: $642,816
  • Gross Receipts: $24,468,946

    • Assets and Liabilities:
  • Total Assets: $20,384,765
  • Total Liabilities: $3,187,329
  • Net Assets: $17,197,436
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    AFFILIATE FEES

    Revenue

    $409,658

    Organization Details

    Founding Year

    1967

    Principal Officer

    Alison Zetterquist

    Main Address

    3540 CRAIN HIGHWAY 675, BOWIE, MD, 20716

    NTEE Category

    Code: G54Z - Disease

    If you are a representative of Epilepsy Foundation Of America and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.