Overview
What is The Champ Foundation?
The Champ Foundation, based in Durham, North Carolina, is a nonprofit organization dedicated to advancing research and potential treatments for rare diseases caused by mitochondrial DNA deletions, such as Pearson syndrome. In 2022, the foundation continued its mission by supporting various studies, including a Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia, and the Champ Foundation Registry, focusing on individuals with Single Large-Scale Mitochondrial DNA Deletions (SLSMDS). Furthermore, The Champ Foundation aids in patient travel to participate in these studies. In addition to research funding, the foundation hosted an international scientific and family conference to foster collaboration and knowledge sharing. The organization's goal is to make significant strides towards finding better treatments and ultimately, a cure for these rare diseases.
Official website here: www.thechampfoundation.org
Is The Champ Foundation legitimate?
The Champ Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Champ Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.thechampfoundation.org
What is the mission statement of The Champ Foundation?
The Champ Foundation is dedicated to advancing research and seeking better treatments, as well as a potential cure, for diseases caused by mitochondrial DNA deletions. These conditions, such as Pearson syndrome, are relatively rare, with approximately 100 reported cases recorded. The foundation's mission is primarily focused on supporting research initiatives, including a multi-site Natural History Study and the Champ Foundation Registry. They also provide assistance for patients to participate in these studies, and fund various research projects at institutions like the Children's Hospital of Philadelphia, University of Cambridge, University of Pittsburgh, and University College of London. Additionally, they organize international scientific and family conferences to foster collaboration and share knowledge in the field.
Official website here: www.thechampfoundation.org
Who is the CEO of The Champ Foundation?
Jeffrey Reynolds is the Director of The Champ Foundation.
Official website here: www.thechampfoundation.org
What is the revenue of The Champ Foundation?
The Champ Foundation's revenue in 2022 was $473,565.
Official website here: www.thechampfoundation.org
Who are the executives of The Champ Foundation and what are their salaries?
- Walker Cole Arledge (Director)
- Jeffrey Reynolds (President)
- Elizabeth Reynolds (Vice President)
- Elizabeth Haviland (Secretary)
- Tyler Albright (Treasurer)
Official website here: www.thechampfoundation.org
Where can I find the form 990 for The Champ Foundation?
The The Champ Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.thechampfoundation.org
Learn more at the official website: www.thechampfoundation.org
Mission Statement of The Champ Foundation
The Champ Foundation, named after an individual affected by rare mitochondrial DNA deletion diseases, is dedicated to advancing research aimed at improving treatments and ultimately finding a cure for these conditions. These diseases, such as Pearson syndrome, are characterized by a low number of functioning mitochondria, leading to a range of symptoms that can impact various body systems. With only around 100 reported cases of Pearson syndrome worldwide, these diseases remain relatively uncharted territories in the medical field.
In line with its mission, The Champ Foundation supports several initiatives. One of these is a multi-site Natural History Study at the Cleveland Clinic and Children's Hospital of Philadelphia, as well as the Champ Foundation Registry, a research study focusing on individuals with single large-scale mitochondrial DNA deletions (SLSMDS). The organization also provides financial assistance for patients to participate in these studies, furthering the understanding of these rare diseases.
Moreover, The Champ Foundation hosts international scientific and family conferences, bringing together researchers and affected families to share insights, learn about the latest developments, and foster a sense of community. Additionally, the foundation funds research projects at various renowned institutions, including the University of Cambridge, University of Pittsburgh, and University College of London, contributing to the global effort to uncover the mysteries of mitochondrial DNA deletion diseases and pave the way for better treatments and a potential cure.
Impact
This information is meant to be a general summary of The Champ Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
The Champ Foundation's impact is profound in supporting research towards better treatments and a cure for diseases caused by mitochondrial DNA deletions, specifically focusing on rare conditions like Pearson syndrome. Despite the rarity of these diseases, with only around 100 reported cases of Pearson syndrome, The Champ Foundation's efforts are remarkable. In 2022, the foundation continued its support for a multi-site Natural History Study and the Champ Foundation Registry, both crucial research initiatives. Additionally, they funded research projects at esteemed institutions like CHOP, University of Cambridge, University of Pittsburgh, and University College of London. The foundation's commitment is evident through activities like hosting international scientific and family conferences and facilitating patient travel for participation in research studies. This dedication has a tangible impact on advancing medical research in this challenging field.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2015
Phone
(727) 871-2667
Principal Officer
Jeffrey Reynolds
Main Address
4711 Hope Valley Road 4F PMB 1171, DURHAM, NC, 27707
Website
www.thechampfoundation.org
NTEE Category
Code: H12 - Medical research
If you are a representative of The Champ Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.