Overview
What is Cure Lbsl?
Cure Lbsl is a small yet dedicated nonprofit organization, situated in Arlington, Virginia. With a single employee, their primary mission is to support and fund research into rare diseases, specifically Leukodystrophy - LBSL. They have allocated substantial resources to two prominent institutions: the Kennedy Krieger Institute in Baltimore, Maryland, and the Children's Hospital of Orange County in California. The funding provided has been instrumental in furthering research, including the creation of disease-affected cells, testing potential treatments, and conducting a natural history study involving known LBSL patients. The organization's goal is not only to advance medical knowledge but also to assist and uplift families affected by these rare diseases.
Official website here: www.curelbsl.org
Is Cure Lbsl legitimate?
Cure Lbsl is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cure Lbsl submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $8,465
For more financial information, click here
Official website here: www.curelbsl.org
What is the mission statement of Cure Lbsl?
Cure Lbsl's mission is centered around supporting rare disease research and assisting families affected by these conditions. Specifically, they aim to fund initiatives focused on Leukodystrophy - LBSL. Their activities include providing substantial financial contributions to reputable research institutions, such as the Kennedy Krieger Institute in Baltimore, Maryland and the Children's Hospital of Orange County in California. The funded research focuses on creating potential treatments for LBSL, involving the development of disease-related cells, testing therapeutics, and conducting a natural history study with a group of affected patients.
Official website here: www.curelbsl.org
Who is the CEO of Cure Lbsl?
What is the revenue of Cure Lbsl?
Who are the executives of Cure Lbsl and what are their salaries?
The average compensation at Cure Lbsl during 2022 was $8,465. There are 1 employees and 25 volunteers at Cure Lbsl.
Here are 8 key members and their salaries:
- Morgan Stern (Director)
- Lance Stern (Director)
- Megan Mitchell (Director)
- Chris Gulugian (Director)
- Edward Blakely (Director)
- Michael Mcginn (Director)
- Elizabeth A Mcginn (Director)
- Elizabeth Gulugian (Board Chair) [Trustee/Director]
Official website here: www.curelbsl.org
Where can I find the form 990 for Cure Lbsl?
The Cure Lbsl’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.curelbsl.org
Learn more at the official website: www.curelbsl.org
Mission Statement of Cure Lbsl
Cure LBSL, a nonprofit organization, is committed to supporting rare disease research and aiding families affected by these conditions. Their primary mission is to provide financial backing for research efforts aimed at developing treatments for Leukodystrophy - LBSL. This year, they allocated funds to two significant research programs. One was at the Kennedy Krieger Institute in Baltimore, Maryland, where they contributed $600,000. The second was at the Children's Hospital of Orange County in California, where they provided $529,010. The researchers involved in these programs are working tirelessly to create a treatment for LBSL. Their work involves building cells with the disease's attributes, testing therapeutics, and conducting a natural history study with a group of known patients. In this way, Cure LBSL is making a significant contribution to the medical community's understanding of LBSL and the development of potential treatments, ultimately offering hope to families affected by this rare disease.
Impact
This information is meant to be a general summary of Cure Lbsl. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
Cure Lbsl's impact can be seen in its substantial financial support towards rare disease research and providing assistance to affected families. The organization's funding of $600,000 to a research program at the Kennedy Krieger Institute in Baltimore, Maryland, and $529,010 to the Children's Hospital of Orange County in California demonstrates its commitment to advancing the understanding and treatment of Leukodystrophy - LBSL. By investing in research that aims to develop a treatment for this rare disease, Cure Lbsl is contributing towards improving the lives of individuals affected by LBSL and their families. Through its efforts, Cure Lbsl is playing a crucial role in driving forward progress in the field of rare disease research and providing hope for those facing the challenges of LBSL.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2013
Principal Officer
Elizabeth A Mcginn
Main Address
3520 S Wakefield St, Arlington, VA, 22206
Website
www.curelbsl.org
NTEE Category
Code: G129 - Disease
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