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The Familial Hypercholesterolemia Foundation

Family Heart Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 454597425 ✦ Pasadena, CA ✦ Designated as a 501(c)(3)

Overview

What is The Familial Hypercholesterolemia Foundation?

The Familial Hypercholesterolemia Foundation, commonly known as Family Heart Foundation, is a nonprofit organization based in Pasadena, California, dedicated to combating heart disease. With a mission to save generations from this condition, they focus on familial hypercholesterolemia (FH), a genetic disorder that increases the risk of heart disease. They achieve this through education, advocacy, and research. Their activities include collaborating on various grants, such as those with Columbia University and Boston Children's Hospital, to assess the societal value of FH screening approaches. They also employ machine learning methods and genetic screening for FH diagnosis, aiming to optimize family communication and cascade screening. Family Heart Foundation utilizes behavioral economics to facilitate outreach and engagement for patients identified as having FH. Additionally, they partner with institutions like Penn Medicine to improve cascade family screening, addressing racial, ethnic, and gender disparities. Their work is patient-centered, playing a crucial role in driving change and empowering families to manage their health.


Official website here: www.thefhfoundation.org

Is The Familial Hypercholesterolemia Foundation legitimate?

The Familial Hypercholesterolemia Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Familial Hypercholesterolemia Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $408,300
Professional Fundraising Fees: $0
Other Salaries and Wages: $988,580

For more financial information, click here


Official website here: www.thefhfoundation.org

What is the mission statement of The Familial Hypercholesterolemia Foundation?

The Familial Hypercholesterolemia Foundation, commonly known as the Family Heart Foundation, is a patient-focused organization dedicated to the education, advocacy, and research of familial hypercholesterolemia (FH). Their mission, stated in their third-party incorporated documents, is to combat generations of heart disease by ensuring prompt identification and improved care for individuals affected by FH and Lipoprotein(a). The foundation plays a significant role in driving change and empowering families to manage their health through its research, advocacy, and educational initiatives.


Official website here: www.thefhfoundation.org

Who is the CEO of The Familial Hypercholesterolemia Foundation?

Katherine Wilemon is the Chair of The Familial Hypercholesterolemia Foundation. The CEO's salary of The Familial Hypercholesterolemia Foundation is $408,300 and their total compensation is $408,300.


Official website here: www.thefhfoundation.org

What is the revenue of The Familial Hypercholesterolemia Foundation?

The Familial Hypercholesterolemia Foundation's revenue in 2022 was $2,813,780.


Official website here: www.thefhfoundation.org

Who are the executives of The Familial Hypercholesterolemia Foundation and what are their salaries?

The average compensation at The Familial Hypercholesterolemia Foundation during 2022 was $116,407. There are 12 employees and 124 volunteers at The Familial Hypercholesterolemia Foundation.

Here are 11 key members and their salaries (The Familial Hypercholesterolemia Foundation's CEO's salary is $408,300 and their total compensation is $408,300):

    Katherine Wilemon (Ceo/Board Member) [Trustee/Director]
  • Compensation: $408,300
  • Related: $0
  • Other: $0

    • Catherine Ahmed (Vp Of Policy)
  • Compensation: $180,000
  • Related: $0
  • Other: $0

    • M Mcgowan (Cmo)
  • Compensation: $162,637
  • Related: $0
  • Other: $1,048

    • E Erikson (Finance Manager (End Nov))
  • Compensation: $101,815
  • Related: $0
  • Other: $6,355

    • Dan Rader (Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Joshua Knowles (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Michael Shapiro (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Allison Jamison (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Stacey Lane (Board Member) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Brian Mittman (Board Member (Term Start Oct)) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Courtney Riley (Board Member (Term Start Feb)) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.thefhfoundation.org

    Where can I find the form 990 for The Familial Hypercholesterolemia Foundation?

    The The Familial Hypercholesterolemia Foundation’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.thefhfoundation.org

    Learn more at the official website: www.thefhfoundation.org

    Mission Statement of The Familial Hypercholesterolemia Foundation

    The Family Heart Foundation, as its name suggests, is a patient-focused nonprofit organization with a mission to combat heart disease. Specifically, they aim to accomplish this by targeting familial hypercholesterolemia (FH), a genetic condition that predisposes individuals to high cholesterol levels and an increased risk of heart disease. The Foundation's mission is threefold: education, advocacy, and research. They strive to raise awareness and educate people about FH, advocate for policies and resources that support those affected by the condition, and fund research to develop better treatments and improve care. By doing so, the Family Heart Foundation aims to break the cycle of heart disease in families affected by FH, ultimately saving generations from the burden of this condition.

    Impact

    This information is meant to be a general summary of The Familial Hypercholesterolemia Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    The Familial Hypercholesterolemia Foundation's impact is significant in the fight against heart disease. Through research partnerships, including federally-funded grants in 2022, the foundation is working to save generations of families from heart disease by focusing on timely identification and improved care of familial hypercholesterolemia (FH) and Lipoprotein(a). Their collaborative efforts with research institutions and healthcare providers aim to optimize screening approaches, develop novel strategies for family communication and cascade screening, and address disparities in care. The foundation's work in implementation science and behavioral economics is helping to design comprehensive FH cascade screening programs that can reach more families and ultimately reduce the burden of heart disease.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $31,749
  • Program Service Revenue: $952,732
  • Gross Receipts: $2,813,780

    • Assets and Liabilities:
  • Total Assets: $4,488,377
  • Total Liabilities: $554,614
  • Net Assets: $3,933,763
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    Contract fees

    Revenue

    $952,732

    Organization Details

    Founding Year

    2012

    Principal Officer

    Katherine Wilemon

    Main Address

    680 E Colorado Blvd 180, Pasadena, CA, 91101

    NTEE Category

    Code: G12 - Disease

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