Overview
What is Hypertrophic Cardiomyopathy Association?
The Hypertrophic Cardiomyopathy Association (HCMA) is a renowned nonprofit organization situated in Denville, New Jersey. Their primary mission is to offer support, advocacy, and education to patients, families, medical professionals, and the public regarding Hypertrophic Cardiomyopathy (HCM). This condition, affecting an estimated one in 250 individuals, often goes unrecognized due to its complexity. The HCMA addresses this issue by promoting specialized management strategies, with a focus on multiple subspecialty care modalities including imaging, cardiology, intervention, electrophysiology, surgery, genetics, psychosocial services, and cardiac oversight for non-cardiac procedures. To achieve these objectives, the HCMA has established 50 Recognized Centers of Excellence in the United States, with additional programs under review. They also engage in international programming development. The association's initiatives directly impact patient safety and overall outcomes, as patients treated in high-volume centers experience better results compared to those in low-volume centers. With a team of 15 dedicated individuals, the HCMA supports research and encourages the advancement of treatments for HCM. Their activities extend beyond patient care, as they advocate for policies that prioritize maternal and child health at both state and federal levels.
Official website here: www.4hcm.org
Is Hypertrophic Cardiomyopathy Association legitimate?
Hypertrophic Cardiomyopathy Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hypertrophic Cardiomyopathy Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $105,192
Professional Fundraising Fees: $0
Other Salaries and Wages: $284,270
For more financial information, click here
Official website here: www.4hcm.org
What is the mission statement of Hypertrophic Cardiomyopathy Association?
The Hypertrophic Cardiomyopathy Association (HCMA) is committed to providing support, advocacy, and education about Hypertrophic Cardiomyopathy (HCM) to patients, their families, the medical community, and the public. This organization also supports research and fosters the development of treatments for HCM, which affects an estimated one in 250 individuals in the general population and is currently significantly underdiagnosed. The HCMA has established 50 Recognized Centers of Excellence in the United States, with 17 under review, to provide specialized care for HCM patients, leading to better patient outcomes compared to low-volume centers. The association's activities involve building relationships, evaluating programs, and providing administrative support to create these specialized care centers.
Official website here: www.4hcm.org
Who is the CEO of Hypertrophic Cardiomyopathy Association?
Lisa Salberg is the Ceo of Hypertrophic Cardiomyopathy Association. The CEO's salary of Hypertrophic Cardiomyopathy Association is $99,596 and their total compensation is $105,192.
Official website here: www.4hcm.org
What is the revenue of Hypertrophic Cardiomyopathy Association?
Hypertrophic Cardiomyopathy Association's revenue in 2022 was $1,106,885.
Official website here: www.4hcm.org
Who are the executives of Hypertrophic Cardiomyopathy Association and what are their salaries?
The average compensation at Hypertrophic Cardiomyopathy Association during 2022 was $25,964. There are 15 employees and 98 volunteers at Hypertrophic Cardiomyopathy Association.
Here are 13 key members and their salaries (Hypertrophic Cardiomyopathy Association's CEO's salary is $99,596 and their total compensation is $105,192):
- Lisa Salberg (Ceo) [Trustee/Director]
- Amit Kalia (Chair) [Trustee/Director]
- Susan Blakey (Director)
- Billur Dowse (Legislative Committee Chair) [Trustee/Director]
- Gordon Fox (Education Committee Chair) [Trustee/Director]
- Carlton Hornung (Medical Affairs Committee) [Trustee/Director]
- Robert Lorfink (Director)
- Martin Maron Md (Medical Affairs Committee) [Trustee/Director]
- Richard Melia (Director)
- Lynn Perry (Director)
- Isaac Rodriguez-Chavez (Director)
- Adam Salberg (Director)
- Stephen Winters Md (Director)
Official website here: www.4hcm.org
Where can I find the form 990 for Hypertrophic Cardiomyopathy Association?
The Hypertrophic Cardiomyopathy Association’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.4hcm.org
Learn more at the official website: www.4hcm.org
Mission Statement of Hypertrophic Cardiomyopathy Association
The Hypertrophic Cardiomyopathy Association (HCMA) is committed to providing support, advocacy, and education regarding Hypertrophic Cardiomyopathy (HCM) to patients, their families, the medical community, and the public. This mission encompasses supporting research and fostering the development of treatments for HCM, a complex diagnosis requiring specialized management strategies.
HCM impacts an estimated one in 250 individuals in the general population, yet it remains significantly underdiagnosed. Currently, only about 150,000 individuals in the United States are receiving treatment for the disease. Managing HCM necessitates multiple subspecialty care modalities, including cardiology, interventional cardiology, electrophysiology, cardiac surgery, genetics, psychosocial services, and cardiac oversight for non-cardiac procedures, such as pregnancy or orthopedic issues.
The HCMA plays a pivotal role in this endeavor by operating 50 Recognized Centers of Excellence programs in the United States. These centers provide specialized care for HCM patients, resulting in better outcomes than those treated in low-volume centers. This program directly contributes to patient safety and optimal outcomes. The association is also actively developing international programming to extend its reach and impact. In addition to these initiatives, the HCMA provides relationship building, program evaluation, and administrative support to establish and maintain these centers.
Impact
This information is meant to be a general summary of Hypertrophic Cardiomyopathy Association. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The Hypertrophic Cardiomyopathy Association has a significant impact on the diagnosis, treatment, and support of individuals affected by hypertrophic cardiomyopathy (HCM). By providing support, advocacy, and education to patients, families, the medical community, and the public about HCM, the association plays a crucial role in raising awareness about this condition. Additionally, their focus on supporting research and fostering the development of treatments contributes to advancements in HCM management.
The association's recognition of Centers of Excellence for HCM highlights their commitment to ensuring that patients receive specialized care from experienced healthcare providers. By establishing these centers, the association improves access to high-quality and comprehensive treatment options for individuals with HCM. This initiative not only enhances patient safety but also leads to better outcomes compared to treatment in low-volume centers.
Overall, the Hypertrophic Cardiomyopathy Association's efforts have a direct impact on the well-being and quality of life of individuals living with HCM. Their dedication to supporting patients, advocating for improved healthcare practices, and promoting education and research in the field of hypertrophic cardiomyopathy contributes to a more informed, empowered, and supported HCM community.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM FEES
Revenue
$261,455
Organization Details
Founding Year
1996
Phone
(973) 983-7429
Principal Officer
Lisa Salberg
Main Address
66 FORD ROAD 213B, DENVILLE, NJ, 07834
Website
www.4hcm.org
NTEE Category
Code: G43 - Disease
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