Overview
What is National Ataxia Foundation Incorporated?
The National Ataxia Foundation Incorporated is a nonprofit organization situated in Minneapolis, Minnesota. Committed to its mission, the foundation works tirelessly to improve the lives of individuals living with Ataxia. Through their patient education program, they organize annual conferences, webinars, and distribute fact sheets, empowering individuals to better manage their health and enhance their quality of life. The advocacy program engages policy makers and pharmaceutical companies, fostering awareness about Ataxia and expediting the development of treatments. Additionally, the foundation offers support groups, enabling the Ataxia community to connect, share experiences, and learn from one another. With a dedicated team of 17 employees, the National Ataxia Foundation is a vital resource for those affected by Ataxia, striving to accelerate treatment advancements and enhance patient well-being.
Official website here: www.ataxia.org/
Is National Ataxia Foundation Incorporated legitimate?
National Ataxia Foundation Incorporated is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Ataxia Foundation Incorporated submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $498,042
Professional Fundraising Fees: $0
Other Salaries and Wages: $697,927
For more financial information, click here
Official website here: www.ataxia.org/
What is the mission statement of National Ataxia Foundation Incorporated?
The National Ataxia Foundation Incorporated's mission is focused on accelerating the advancement of treatments and ultimately finding a cure for Ataxia. Simultaneously, they strive to enhance the lives of those currently living with this condition. To accomplish this, they provide various educational, advocacy, and support programs. Their patient education initiatives include annual conferences, webinars, and informational fact sheets, aiming to assist individuals in managing their health and improving their quality of life. Through advocacy, they engage with policy makers and pharmaceutical companies, raising awareness of Ataxia and pushing for increased drug development and access to care and treatment services. Additionally, their support group program allows the Ataxia community to connect and learn from one another.
Official website here: www.ataxia.org/
Who is the CEO of National Ataxia Foundation Incorporated?
Andrew Rosen is the President of National Ataxia Foundation Incorporated.
Official website here: www.ataxia.org/
What is the revenue of National Ataxia Foundation Incorporated?
National Ataxia Foundation Incorporated's revenue in 2022 was $4,581,188.
Official website here: www.ataxia.org/
Who are the executives of National Ataxia Foundation Incorporated and what are their salaries?
The average compensation at National Ataxia Foundation Incorporated during 2022 was $70,351. There are 17 employees and 350 volunteers at National Ataxia Foundation Incorporated.
Here are 16 key members and their salaries:
- Lauren Moore (Chief Scientific Officer)
- Andrew Rosen (Executive Director)
- Joel Sutherland (Development Director)
- Samuel Kirton (President) [Trustee/Director]
- Linda Snider (Vice President) [Trustee/Director]
- Greg Rooks (Treasurer) [Trustee/Director]
- John Mauro (Secretary) [Trustee/Director]
- David Brunnert (Board Member) [Trustee/Director]
- Cindy Demint (Board Member) [Trustee/Director]
- Michael Cammer (Board Member) [Trustee/Director]
- Jim Keene (Board Member) [Trustee/Director]
- Greg Klassen (Board Member) [Trustee/Director]
- Ann Riley (Board Member) [Trustee/Director]
- Denise Kolpack (Board Member) [Trustee/Director]
- John Dwyer (Board Member) [Trustee/Director]
- Serena Hung (Board Member) [Trustee/Director]
Official website here: www.ataxia.org/
Where can I find the form 990 for National Ataxia Foundation Incorporated?
The National Ataxia Foundation Incorporated’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.ataxia.org/
Learn more at the official website: www.ataxia.org/
Mission Statement of National Ataxia Foundation Incorporated
The National Ataxia Foundation, a notable organization, is committed to accelerating the discovery of treatments and working towards finding a cure for Ataxia. Their primary mission is to enhance the lives of individuals living with this condition. By engaging with policy makers and pharmaceutical companies, the foundation aims to raise awareness about Ataxia and expedite drug development. Additionally, the National Ataxia Foundation provides valuable resources to its community through patient education programs. These initiatives include an annual conference, webinars, and fact sheets, all designed to empower individuals to manage their health and improve their quality of life. Furthermore, the foundation offers a support group program, enabling those affected by Ataxia to connect and learn from one another, fostering a sense of community and shared understanding.
Impact
This information is meant to be a general summary of National Ataxia Foundation Incorporated. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The National Ataxia Foundation Incorporated works diligently to accelerate the development of treatments and a cure for Ataxia while also striving to enhance the lives of those affected by this condition. Through their patient education initiatives, including annual conferences, webinars, and informational materials, they empower individuals to better manage their health and quality of life. Additionally, the Foundation's advocacy efforts engage policymakers and pharmaceutical companies to raise awareness about Ataxia, expedite drug development, and advocate for access to necessary care and treatment services. By providing support group programs that facilitate community connections and shared learning, the National Ataxia Foundation plays a crucial role in fostering a supportive environment for individuals impacted by Ataxia.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Drug Development Colla
Revenue
$800,000
Conference income
Revenue
$309,574
Organization Details
Founding Year
1957
Phone
(763) 553-0020
Principal Officer
Andrew Rosen
Main Address
PO Box 27986, Minneapolis, MN, 55427
Website
www.ataxia.org/
NTEE Category
Code: G50 - Disease
If you are a representative of National Ataxia Foundation Incorporated and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.