Overview
What is Ehlers-Danlos Society?
The Ehlers-Danlos Society is a global organization based in New York, dedicated to advancing and accelerating research and education in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). They bring together medical professionals worldwide to work on groundbreaking management and care, with a focus on the Global EDS and HSD Registry. This registry serves as a new research opportunity, enabling the identification of links between EDS and HSD and other conditions. The society awards funding for research grants in Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders, aiming to ensure consistent and groundbreaking research globally to help individuals living with these conditions. Their mission includes global learning conferences, collaborative research, education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population.
Official website here: www.ehlers-danlos.com
Is Ehlers-Danlos Society legitimate?
Ehlers-Danlos Society is a legitimate nonprofit organization registered as a 501(c)(3) entity. Ehlers-Danlos Society submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $228,753
Professional Fundraising Fees: $0
Other Salaries and Wages: $724,877
For more financial information, click here
Official website here: www.ehlers-danlos.com
What is the mission statement of Ehlers-Danlos Society?
The Ehlers-Danlos Society is committed to driving research and education in Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorders (HSD). Their goal is to accelerate the development of effective and equitable therapies for these conditions. They achieve this by organizing global learning conferences, collaborative research, education initiatives, awareness campaigns, advocacy, community-building, and providing care for individuals affected by EDS and HSD. The organization is a global community of individuals, caregivers, healthcare professionals, and supporters, dedicated to improving and saving lives of those affected by EDS, HSD, and related conditions.
Official website here: www.ehlers-danlos.com
Who is the CEO of Ehlers-Danlos Society?
Lara Bloom is the Ceo of Ehlers-Danlos Society. The CEO's salary of Ehlers-Danlos Society is $0 and their total compensation is $151,230.
Official website here: www.ehlers-danlos.com
What is the revenue of Ehlers-Danlos Society?
Ehlers-Danlos Society's revenue in 2022 was $4,514,528.
Official website here: www.ehlers-danlos.com
Who are the executives of Ehlers-Danlos Society and what are their salaries?
The average compensation at Ehlers-Danlos Society during 2022 was $63,575. There are 15 employees and 40 volunteers at Ehlers-Danlos Society.
Here are 14 key members and their salaries (Ehlers-Danlos Society's CEO's salary is $0 and their total compensation is $151,230):
- Lara Bloom (Ceo) [Trustee/Director]
- Eric Alley (Finance Director)
- Elizabeth Herndon (Director)
- Melanie Macleod (Director)
- Edward Fitzgerald Iii (Director)
- Woodrow Gandy (Director)
- Susan Haskel (Director)
- Amy Rochlin (Director)
- Mitul Modi (Director)
- Michelle Jalali (Director)
- Clair Francomano (Director)
- Susan Hawkins (President) [Trustee/Director]
- John Zonarich (Secretary) [Trustee/Director]
- Robert Rubin (Treasurer) [Trustee/Director]
Official website here: www.ehlers-danlos.com
Where can I find the form 990 for Ehlers-Danlos Society?
The Ehlers-Danlos Society’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.ehlers-danlos.com
Learn more at the official website: www.ehlers-danlos.com
Mission Statement of Ehlers-Danlos Society
The Ehlers-Danlos Society is a global community dedicated to saving and improving the lives of individuals affected by Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorders (HSD), and related conditions. This nonprofit organization is committed to advancing and accelerating research and education in EDS and HSD. They strive to develop effective and equitable therapies for these conditions by collaborating with various stakeholders.
In line with its mission, the Ehlers-Danlos Society organizes global learning conferences, undertakes collaborative research, and initiates education programs. They also conduct awareness campaigns, advocate for the affected population, and foster community building. Furthermore, they provide care and support to individuals with EDS and HSD, ensuring they have access to necessary resources and services.
In essence, the Ehlers-Danlos Society serves as a beacon of hope for those affected by EDS, HSD, and related conditions. By pursuing research, education, and advocacy efforts, they aim to improve the lives of affected individuals and their families, providing them with the resources and support they need to navigate their challenges.
Impact
This information is meant to be a general summary of Ehlers-Danlos Society. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
The Ehlers-Danlos Society is making a significant impact in advancing research and education in Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD). By bringing together medical professionals from around the world, they are working on groundbreaking management and care practices for these conditions. One of their key initiatives is the Global EDS and HSD Registry, which not only facilitates better care but also opens up new avenues for research to uncover connections between EDS, HSD, and other conditions. Through funding research grants and supporting collaborative efforts, the Ehlers-Danlos Society is ensuring consistent and innovative research that directly benefits individuals living with these conditions worldwide.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE
Revenue
$572,083
Organization Details
Founding Year
1988
Phone
(410) 670-7577
Principal Officer
Lara Bloom
Main Address
447 BROADWAY 2ND FLOOR 670, NEW YORK, NY, 10013
Website
www.ehlers-danlos.com
NTEE Category
Code: E99Z - Health
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