Overview
What is National Niemann-Pick Disease Foundation Inc?
The National Niemann-Pick Disease Foundation Inc, situated in Fort Atkinson, Wisconsin, is a compassionate nonprofit organization dedicated to supporting families and individuals impacted by Niemann-Pick Disease. Their mission involves providing emotional support, patient advocacy, and valuable resources. The organization advocates for patient access to medications and experimental therapies and offers guidance on various health and human service programs. They offer regular communications, such as monthly newsletters and social media updates, and host an annual conference to connect families, scientists, and medical professionals. The Foundation's activities aim to empower and educate individuals and families facing Niemann-Pick Disease, providing assistance during crises and offering practical suggestions for day-to-day care. With a team of three dedicated individuals, they strive to foster collaboration and research to support Niemann-Pick affected patients and families.
Official website here: www.nnpdf.org
Is National Niemann-Pick Disease Foundation Inc legitimate?
National Niemann-Pick Disease Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Niemann-Pick Disease Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $134,895
Professional Fundraising Fees: $0
Other Salaries and Wages: $84,877
For more financial information, click here
Official website here: www.nnpdf.org
What is the mission statement of National Niemann-Pick Disease Foundation Inc?
The National Niemann-Pick Disease Foundation Inc is a non-profit organization dedicated to supporting and empowering individuals and families affected by Niemann-Pick disease. They accomplish this through various means, including education, collaboration, and research. The foundation provides family support services to those with a family member diagnosed with the disease and engages in patient advocacy efforts to facilitate access to necessary medications and experimental therapies. Emotional support is offered to individuals and families dealing with various types of Niemann-Pick disease, and assistance is provided during crises. The organization also disseminates information through communications like monthly newsletters, e-news, and social media updates. An annual conference brings together families, scientists, and medical professionals to share information and offer support.
Official website here: www.nnpdf.org
Who is the CEO of National Niemann-Pick Disease Foundation Inc?
Joslyn Crowe is the Chair of National Niemann-Pick Disease Foundation Inc.
Official website here: www.nnpdf.org
What is the revenue of National Niemann-Pick Disease Foundation Inc?
National Niemann-Pick Disease Foundation Inc's revenue in 2022 was $556,671.
Official website here: www.nnpdf.org
Who are the executives of National Niemann-Pick Disease Foundation Inc and what are their salaries?
The average compensation at National Niemann-Pick Disease Foundation Inc during 2022 was $73,257. There are 3 employees and 50 volunteers at National Niemann-Pick Disease Foundation Inc.
Here are 15 key members and their salaries:
- Joslyn Crowe (Executive Director)
- Becky Mcguire (Chair) [Trustee/Director]
- Liz Heinze (Vice Chair) [Trustee/Director]
- Meghann Ferguson (Secretary) [Trustee/Director]
- Mike Smith (Treasurer) [Trustee/Director]
- Mary Frances Harmon (Director)
- Chrystelle Bougault (Director)
- Gail Koujaian (Director)
- Cara Gilmore (Director)
- Kari Lato (Director)
- Anthony Leoni (Director)
- Paul Merrigan (Director)
- Travis Obermeyer (Director)
- Taylor Sabky (Director)
- Justin Hopkin (Chair Emeritus) [Trustee/Director]
Official website here: www.nnpdf.org
Where can I find the form 990 for National Niemann-Pick Disease Foundation Inc?
The National Niemann-Pick Disease Foundation Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.nnpdf.org
Learn more at the official website: www.nnpdf.org
Mission Statement of National Niemann-Pick Disease Foundation Inc
The National Niemann-Pick Disease Foundation Inc is a dedicated non-profit organization, committed to supporting and empowering patients and families affected by Niemann-Pick Disease. This mission is accomplished through three key areas: education, collaboration, and research.
In the realm of education, the Foundation serves as a valuable resource for families, providing them with essential information about the disease. This includes assistance with navigating various health and human service programs, as well as practical suggestions for day-to-day care. Regular communications, such as newsletters, e-news, and social media updates, keep the community informed and engaged.
Collaboration is another crucial aspect of the Foundation's mission. They work closely with medical professionals, scientists, and other organizations to advance research and improve the understanding of Niemann-Pick Disease. This collaboration aims to facilitate access to medications and experimental therapies, offering hope to affected families.
The patient advocacy efforts of the National Niemann-Pick Disease Foundation Inc extend beyond research and education. They provide emotional support to individuals and families dealing with the disease, offering assistance during crises and offering guidance on topics like doctors, clinics, insurance companies, and other relevant services.
In summary, the National Niemann-Pick Disease Foundation Inc is a vital organization that supports and empowers families affected by Niemann-Pick Disease. Through education, collaboration, and patient advocacy, they strive to improve the lives of those affected by this disease, offering a much-needed source of support and hope.
Impact
This information is meant to be a general summary of National Niemann-Pick Disease Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Wednesday, July 24, 2024
The National Niemann-Pick Disease Foundation Inc has a significant impact on supporting and empowering patients and families affected by Niemann-Pick disease. Through their patient advocacy efforts, they work to provide access to medications and experimental therapies. They offer valuable emotional support to individuals and families dealing with all types of Niemann-Pick disease, assisting through crises and providing practical suggestions for day-to-day care. Their communication tools, such as newsletters and social media updates, keep the community informed.
Furthermore, the foundation organizes the annual NNPDF Family Support and Medical Conference, bringing together families, scientists, and medical professionals to share information and provide support. Overall, their dedication to education, collaboration, and research helps to improve the lives of those impacted by Niemann-Pick disease.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE
Revenue
$24,017
Organization Details
Founding Year
1992
Phone
(877) 287-3672
Principal Officer
Joslyn Crowe
Main Address
PO BOX 49, FORT ATKINSON, WI, 535380049
Website
www.nnpdf.org
NTEE Category
Code: H110 - Medical research
If you are a representative of National Niemann-Pick Disease Foundation Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.