nonprofit logo

Foundation For Prader-Willi Research Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 311763110 ✦ Covina, CA ✦ Designated as a 501(c)(3)

Overview

What is Foundation For Prader-Willi Research Inc?

The Foundation For Prader-Willi Research Inc, situated in Covina, California, is a dedicated nonprofit organization committed to advancing research on Prader-Willi Syndrome (PWS). With a team of 12 individuals, they implement translational research programs, manage a world-class grants program, and develop PWS research tools. Their mission, under the guidance of a scientific advisory board, is to select and fund research projects that are both scientifically sound and highly relevant to individuals with PWS and their families. The foundation supports research aimed at enhancing the understanding and treatment of PWS, ultimately striving to address the challenges associated with this syndrome and improve the health and well-being of those affected.


Official website here: www.fpwr.org

Is Foundation For Prader-Willi Research Inc legitimate?

Foundation For Prader-Willi Research Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Foundation For Prader-Willi Research Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $73,478
Professional Fundraising Fees: $0
Other Salaries and Wages: $650,581

For more financial information, click here


Official website here: www.fpwr.org

What is the mission statement of Foundation For Prader-Willi Research Inc?

The Foundation For Prader-Willi Research Inc's mission is centered around eliminating the challenges associated with Prader-Willi Syndrome. They achieve this goal by advancing research and therapeutic development. The organization implements translational research programs, manages a world-class grants program, and develops Prader-Willi Syndrome (PWS) research tools. Under the guidance of their Scientific Advisory Board, they select research projects based on a collaborative input from researchers and parents, focusing on projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families. This approach aims to develop new treatments for PWS and improve the health and well-being of those affected by the syndrome.


Official website here: www.fpwr.org

Who is the CEO of Foundation For Prader-Willi Research Inc?

Susan Hedstrom is the Eff. 3/22, Treasurer Thru 3/22 of Foundation For Prader-Willi Research Inc.


Official website here: www.fpwr.org

What is the revenue of Foundation For Prader-Willi Research Inc?

Foundation For Prader-Willi Research Inc's revenue in 2022 was $5,083,937.


Official website here: www.fpwr.org

Who are the executives of Foundation For Prader-Willi Research Inc and what are their salaries?

The average compensation at Foundation For Prader-Willi Research Inc during 2022 was $60,338. There are 12 employees and 50 volunteers at Foundation For Prader-Willi Research Inc.

Here are 19 key members and their salaries:

    Theresa Strong (Director Of Research Program)
  • Compensation: $158,830
  • Related: $0
  • Other: $48

    • Susan Hedstrom (Executive Director)
  • Compensation: $73,353
  • Related: $0
  • Other: $125

    • Paul Wissman President (Eff. 3/22, Treasurer Thru 3/22) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jeannine Kowal (President Thru 3/22) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Drew Harman (Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Amber Roberson (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ian Alberg (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Scott Arant (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Brian Carucci (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Daniel Chorney (Director Thru 3/22)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jack Jones (Director Thru 3/22)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Justin Nelson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Guy Niedorkom (Director Thru 2/22)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Alicia Secor (Director Thru 6/22)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Karen Shahinian (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mike Sims (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Renee Snyder (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jason Waldrop (Director Thru 3/22)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kristin White (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.fpwr.org

    Where can I find the form 990 for Foundation For Prader-Willi Research Inc?

    The Foundation For Prader-Willi Research Inc’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.fpwr.org

    Learn more at the official website: www.fpwr.org

    Mission Statement of Foundation For Prader-Willi Research Inc

    The Foundation for Prader-Willi Research Inc is dedicated to eliminating the challenges associated with Prader-Willi Syndrome (PWS) by advancing research and therapeutic development. Through the implementation of translational research programs, the management of a world-class grants program, and the development of PWS research tools, this nonprofit organization strives to advance research, aiming to develop new treatments for PWS and improve the health and well-being of those affected by the syndrome. Guided by their Scientific Advisory Board, FPWR selects research projects based on the collaborative input of researchers and parents, choosing projects that are both scientifically meritorious and highly relevant for individuals with PWS and their families, ensuring that the organization's efforts are directed towards making a significant impact on the lives of those affected by PWS.

    Impact

    This information is meant to be a general summary of Foundation For Prader-Willi Research Inc. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    Foundation For Prader-Willi Research Inc has a significant impact in advancing the understanding and treatment of Prader-Willi Syndrome. Through translational research programs, a world-class grants program, and the development of research tools specific to PWS, this organization actively drives research to develop new treatments for PWS and improve the health and well-being of individuals affected by this syndrome. By carefully selecting research projects under the guidance of a scientific advisory board and through collaborative input from researchers and parents, Foundation For Prader-Willi Research ensures that its efforts are both scientifically meritorious and highly relevant to individuals with PWS and their families. Through their mission to eliminate the challenges of Prader-Willi Syndrome via research and therapeutic development, this organization is making a tangible impact on the lives of those affected by this condition.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $83,302
  • Program Service Revenue: $231,217
  • Gross Receipts: $5,326,703

    • Assets and Liabilities:
  • Total Assets: $8,344,580
  • Total Liabilities: $3,233,878
  • Net Assets: $5,110,702
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    CONFERENCE REVENUE

    Revenue

    $231,217

    Organization Details

    Founding Year

    2001

    Principal Officer

    Susan Hedstrom

    Main Address

    440 N BARRANCA AVE 3620, COVINA, CA, 91723

    NTEE Category

    Code: G80 - Disease

    If you are a representative of Foundation For Prader-Willi Research Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.