Overview
What is International Rett Syndrome Foundation?
The International Rett Syndrome Foundation, operating under the name Rettsyndromeorg, is a dedicated nonprofit organization based in Cincinnati, Ohio. Their primary focus is to spearhead groundbreaking research aimed at finding treatments and ultimately, a cure for Rett syndrome. They achieve this by funding various research grants globally, supporting post-doctoral researchers, and hosting scientific symposia for Rett syndrome experts to share ideas and collaborate. The foundation also invests in compound development by funding high-throughput screening systems and clinical trials. To enhance treatment access and care, they support the Natural History Study and sponsor a learning collaborative for evidence-based care for Rett syndrome patients. Beyond research, the foundation empowers families by providing them with essential knowledge and resources.
Official website here: www.rettsyndrome.org
Is International Rett Syndrome Foundation legitimate?
International Rett Syndrome Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Rett Syndrome Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $429,937
Professional Fundraising Fees: $0
Other Salaries and Wages: $655,580
For more financial information, click here
Official website here: www.rettsyndrome.org
What is the mission statement of International Rett Syndrome Foundation?
The International Rett Syndrome Foundation's mission is centered around accelerating comprehensive research to find a cure for Rett syndrome. Their primary objective is to empower affected families by providing them with essential knowledge. Through their research programs, they fund various types of studies globally, including basic, translational, and neuro-habilitation research. They support post-doctoral researchers, host scientific symposiums, fund compound development, and sponsor clinical trials. Additionally, they work towards expanding access to high-quality treatments and care by supporting the Natural History Study and sponsoring a national learning collaborative focused on evidence-based care for Rett syndrome patients.
Official website here: www.rettsyndrome.org
Who is the CEO of International Rett Syndrome Foundation?
Melissa Kennedy is the Trustee of International Rett Syndrome Foundation.
Official website here: www.rettsyndrome.org
What is the revenue of International Rett Syndrome Foundation?
International Rett Syndrome Foundation's revenue in 2022 was $3,669,308.
Official website here: www.rettsyndrome.org
Who are the executives of International Rett Syndrome Foundation and what are their salaries?
The average compensation at International Rett Syndrome Foundation during 2022 was $77,537. There are 14 employees and 200 volunteers at International Rett Syndrome Foundation.
Here are 14 key members and their salaries:
- Dominique Pichard (Chief Science Officer)
- Melissa Kennedy (Executive Director)
- Timothy Frank (Chief Marketing & Developm)
- Steve Tomes (Trustee)
- Beth Farnum (Trustee)
- William Babiarz (Board Chair) [Trustee/Director]
- Jospeh Horrigan Md (Trustee)
- Lisa Monteggia Phd (Trustee)
- David Pass Pharmd (Vice Chairman) [Trustee/Director]
- Mitch Bleske (Treasurer) [Trustee/Director]
- Christian Mcmahan (Secretary) [Trustee/Director]
- Gordon Rich (Founding Seat - Non Voting) [Trustee/Director]
- Alan Shukovsky (Trustee)
- Leslie Mehta (Trustee)
Official website here: www.rettsyndrome.org
Where can I find the form 990 for International Rett Syndrome Foundation?
The International Rett Syndrome Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.rettsyndrome.org
Learn more at the official website: www.rettsyndrome.org
Mission Statement of International Rett Syndrome Foundation
The International Rett Syndrome Foundation is dedicated to accelerating comprehensive research aimed at finding a cure for Rett syndrome. Their mission is threefold: firstly, they fund various types of research, including basic, translational, and neuro-habilitation studies worldwide. Secondly, they support the development of potential treatments by financially backing high-throughput screening systems and clinical trials. Lastly, they strive to enhance access to high-quality treatments and care by sponsoring initiatives such as the Natural History Study and a national learning collaborative focused on evidence-based care for patients with Rett syndrome. In essence, the International Rett Syndrome Foundation's mission is to financially empower researchers, drive advancements in treatment development, and ensure patients have access to the best possible care, all with the ultimate goal of finding a cure for Rett syndrome.
Impact
This information is meant to be a general summary of International Rett Syndrome Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The International Rett Syndrome Foundation is making a significant impact in the fight against Rett syndrome by funding cutting-edge research aimed at finding potential cures for this devastating condition. Through their research programs, they support basic, translational, and neuro-habilitation research grants worldwide. They also fund post-doctoral researchers, organize science symposia, and provide financial support for compound development and clinical trials. Additionally, the foundation works to improve access to high-quality treatments and care for individuals with Rett syndrome by supporting the Natural History Study and sponsoring a national learning collaborative. Their dedication to accelerating research and empowering families with knowledge is crucial in advancing towards a cure for Rett syndrome.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference Income
Revenue
$310,152
Organization Details
Founding Year
1999
Phone
(513) 874-3020
Principal Officer
Melissa Kennedy
Main Address
4500 Cooper Road Suite 204, Cincinnati, OH, 45242
Website
www.rettsyndrome.org
NTEE Category
Code: H128 - Medical research
If you are a representative of International Rett Syndrome Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.