Overview
What is The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc, based in Washington D.C., is a dedicated nonprofit organization that focuses on combating Duchenne Muscular Dystrophy. Their primary mission is to accelerate research, advocate for policy changes, promote optimal medical care, and ensure access to approved therapies for affected individuals and their families. The organization identifies and funds promising research in various therapeutic strategies, stimulates new research, facilitates industry collaborations, and supports early-stage biopharmaceutical companies. A notable initiative is the Duchenne Registry, which collects patient-reported data to bridge the gap between clinicians, researchers, and the patient community, contributing to therapeutic advancements. Additionally, the Care Program aims to improve health outcomes for patients by providing access to expert healthcare providers and approved treatments. The Parent Project for Muscular Dystrophy Research Inc strives to ensure that individuals with Duchenne live longer, stronger lives.
Official website here: www.parentprojectmd.org
Is The Parent Project For Muscular Dystrophy Research Inc legitimate?
The Parent Project For Muscular Dystrophy Research Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Parent Project For Muscular Dystrophy Research Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $296,765
Professional Fundraising Fees: $0
Other Salaries and Wages: $2,434,480
For more financial information, click here
Official website here: www.parentprojectmd.org
What is the mission statement of The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc, often referred to as PPMD, is dedicated to eradicating Duchenne Muscular Dystrophy. They accomplish this through various means, including funding promising research, advocating for policies, promoting optimal medical care, and educating the public. PPMD's research program actively supports and funds Duchenne research across various therapeutic strategies. They stimulate new research, facilitate industry interactions, and support data modeling consortia to accelerate drug development timelines. PPMD also operates the Duchenne Registry, a patient-reported registry that bridges the gap between clinicians, researchers, and the patient community, thereby improving medical care and fostering therapeutic advancements. Additionally, PPMD's Care Program aims to enhance the quality of life for individuals with Duchenne, providing access to expert healthcare providers, sub-specialists, and approved treatments. They identify gaps in care throughout the lifespan and collaborate with healthcare professionals worldwide to improve health outcomes for all Duchenne patients.
Official website here: www.parentprojectmd.org
Who is the CEO of The Parent Project For Muscular Dystrophy Research Inc?
Patricia A Furlong is the Board Chairman of The Parent Project For Muscular Dystrophy Research Inc. The CEO's salary of The Parent Project For Muscular Dystrophy Research Inc is $292,250 and their total compensation is $304,898.
Official website here: www.parentprojectmd.org
What is the revenue of The Parent Project For Muscular Dystrophy Research Inc?
The Parent Project For Muscular Dystrophy Research Inc's revenue in 2022 was $10,753,014.
Official website here: www.parentprojectmd.org
Who are the executives of The Parent Project For Muscular Dystrophy Research Inc and what are their salaries?
The average compensation at The Parent Project For Muscular Dystrophy Research Inc during 2022 was $109,250. There are 25 employees and 500 volunteers at The Parent Project For Muscular Dystrophy Research Inc.
Here are 17 key members and their salaries (The Parent Project For Muscular Dystrophy Research Inc's CEO's salary is $292,250 and their total compensation is $304,898):
- Patricia A Furlong (President And Ceo)
- Ryan Fischer (Chief Advocacy Officer)
- Kaylan Moitoso (Chief Business Officer)
- Rachel Schrader (Vice President, Clinical Care And Education)
- Ann Martin (Vp, Comm Research And Genetic Services)
- Anessa Fehsenfeld (Board Chairman) [Trustee/Director]
- Gretchen Egner (Vice Chair) [Trustee/Director]
- Lance Hester (Treasurer) [Trustee/Director]
- Deanne Friar (Secretary) [Trustee/Director]
- David N Hofstein (Executive Oversight Chair) [Trustee/Director]
- Rasha Alnaibari (Board Member) [Trustee/Director]
- Jeff Bigelow (Board Member) [Trustee/Director]
- Linda Cripe (Board Member) [Trustee/Director]
- Christopher Jones (Board Member) [Trustee/Director]
- Richard Klein (Board Member) [Trustee/Director]
- Colin Rensch (Board Member) [Trustee/Director]
- Beth White (Board Member) [Trustee/Director]
Official website here: www.parentprojectmd.org
Where can I find the form 990 for The Parent Project For Muscular Dystrophy Research Inc?
The The Parent Project For Muscular Dystrophy Research Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.parentprojectmd.org
Learn more at the official website: www.parentprojectmd.org
Mission Statement of The Parent Project For Muscular Dystrophy Research Inc
The Parent Project Muscular Dystrophy (PPMD) is an ambitious organization dedicated to ending Duchenne Muscular Dystrophy. They achieve this mission through a multi-faceted approach, encompassing research, advocacy, education, and promoting optimal medical care.
In terms of research, PPMD actively seeks out and funds the most promising Duchenne research across various therapeutic strategies. They strive to foster a thriving therapeutic pipeline by stimulating new research and facilitating industry collaborations. Additionally, PPMD supports early-stage biopharmaceutical companies to catalyze the development of novel therapies for Duchenne and Becker Muscular Dystrophy.
The organization's advocacy efforts are equally significant. PPMD raises its voice to impact policy and demand optimal care for every family affected by Duchenne. They strive to ensure access to approved therapies for all, and their advocacy has resulted in numerous legislative victories aimed at improving Duchenne and maternal health nationwide.
PPMD's care program is another critical component of their mission. They aim to help individuals living with Duchenne live longer, stronger lives by providing access to expert healthcare providers, a comprehensive team of sub-specialists, and approved treatments. PPMD identifies gaps in care throughout the lifespan of Duchenne patients and collaborates with healthcare professionals globally to improve health outcomes for all. Their Certified Duchenne Care Center Program (CDCC) ensures that centers comply with established standards of care and services for Duchenne patients.
Impact
This information is meant to be a general summary of The Parent Project For Muscular Dystrophy Research Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The Parent Project for Muscular Dystrophy Research Inc, also known as PPMD, is dedicated to ending Duchenne Muscular Dystrophy through research, advocacy, education, and optimal medical care. PPMD's impact is evident through its aggressive funding of promising research projects aimed at finding a cure for Duchenne. By stimulating new research, facilitating industry collaborations, and supporting data modeling consortia, PPMD is actively pushing the boundaries of what is possible in the field of muscular dystrophy research.
Furthermore, PPMD's establishment of the Duchenne Registry has bridged the information gap between clinicians, researchers, and the patient community, leading to advancements in medical care and therapeutic development. With over 5,000 families contributing their data, the registry has become a valuable resource for the Duchenne community.
Additionally, PPMD's Care Program ensures that individuals living with Duchenne have access to expert healthcare providers, specialized care teams, and approved treatments. By identifying care gaps and collaborating with healthcare professionals globally, PPMD is making a tangible difference in improving health outcomes for Duchenne patients.
In summary, PPMD's impact is profound and multi-faceted, encompassing research, advocacy, education, and healthcare provision to ultimately strive towards ending Duchenne Muscular Dystrophy.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE INCOME
Revenue
$483,304
FEES FOR SERVICE
Revenue
$315,171
Organization Details
Founding Year
1997
Phone
(201) 250-8440
Principal Officer
Patricia A Furlong
Main Address
1012 14TH STREET NW 500, WASHINGTON, DC, 20005
Website
www.parentprojectmd.org
NTEE Category
Code: P20Z - Human services
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