Overview
What is Global Foundation For Peroxisomal Disorders?
The Global Foundation for Peroxisomal Disorders, based in Tulsa, Oklahoma, is a dedicated nonprofit organization with a mission to enhance the lives of individuals affected by peroxisomal disorders. They accomplish this through various initiatives, including funding research, fostering scientific collaboration, and providing educational programs and support services. Their efforts culminate in empowering both families and professionals in their quest for improved clinical outcomes. The organization's primary focus is on building health and scientific literacy for patients and their caregivers. They achieve this through user-friendly resources on their website, which reached numerous families worldwide in 2022, disseminating essential information, including peer-reviewed treatment guidelines for peroxisomal patients. Additionally, their social media platform boasts over 4,000 followers, with half of the content designed to equip caregivers with health information and tools for clinical outcomes. In person, the Global Foundation for Peroxisomal Disorders organized a biennial conference in 2022, attended by 294 participants, consisting of families, researchers, scientists, healthcare providers, and students. The conference included over 60 sessions focusing on scientific advancements, care provision, mental health support, and more, while also providing childcare through its Warrior Camp model. Furthermore, the conference offered pro bono consultations valued at over $100,000 from medical professionals, scientists, and allied health professionals to families worldwide. To augment these efforts, the organization hosted numerous virtual meetings, webinars, and support groups for parents and caregivers, aiming to increase health literacy, facilitate connections with care providers across the country, and provide emotional and behavioral support for caregivers. Additionally, they actively advocate for policy changes and rare disease patients' rights.
Official website here: www.thegfpd.org
Is Global Foundation For Peroxisomal Disorders legitimate?
Global Foundation For Peroxisomal Disorders is a legitimate nonprofit organization registered as a 501(c)(3) entity. Global Foundation For Peroxisomal Disorders submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $88,237
Professional Fundraising Fees: $0
Other Salaries and Wages: $7,342
For more financial information, click here
Official website here: www.thegfpd.org
What is the mission statement of Global Foundation For Peroxisomal Disorders?
The Global Foundation for Peroxisomal Disorders, in its mission, aims to enhance the lives of individuals afflicted with peroxisomal disorders. This is achieved through funding research, promoting scientific collaboration, and offering educational programs and support services to families and professionals. The organization is dedicated to building health and scientific literacy for patients and their caregivers through various communication channels, reaching numerous families worldwide. They host biennial conferences, providing a platform for families, patients, researchers, scientists, physicians, and other professionals to engage in learning, support, and knowledge exchange. The foundation also offers virtual meet-ups, webinars, and support groups to increase health literacy, improve clinical outcomes, and offer necessary emotional support for caregivers. Moreover, they provide access to pro bono consultations from healthcare professionals to families worldwide.
Official website here: www.thegfpd.org
Who is the CEO of Global Foundation For Peroxisomal Disorders?
Melissa Bryce is the Chair of Global Foundation For Peroxisomal Disorders.
Official website here: www.thegfpd.org
What is the revenue of Global Foundation For Peroxisomal Disorders?
Global Foundation For Peroxisomal Disorders's revenue in 2022 was $815,854.
Official website here: www.thegfpd.org
Who are the executives of Global Foundation For Peroxisomal Disorders and what are their salaries?
The average compensation at Global Foundation For Peroxisomal Disorders during 2022 was $47,790. There are 2 employees and 50 volunteers at Global Foundation For Peroxisomal Disorders.
Here are 14 key members and their salaries:
- Melissa Bryce (Executive Director)
- Kelly Dauer-Hubschmitt (Chair) [Trustee/Director]
- David Lapidus (Vice Chair) [Trustee/Director]
- Brian Tims Cpa (Treasurer) [Trustee/Director]
- Meghan Meyers (Secretary) [Trustee/Director]
- Corin Chapman (Director)
- Dennis Carlson (Director)
- Chad Johnson (Director)
- Erica Golle (Director)
- Josh Mateffy (Director)
- Chris Ostertag (Director)
- Natalie Clouse (Director)
- Carolina Alfaro (Director)
- Karoline Bethea-Jones (Director)
Official website here: www.thegfpd.org
Where can I find the form 990 for Global Foundation For Peroxisomal Disorders?
The Global Foundation For Peroxisomal Disorders’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.thegfpd.org
Learn more at the official website: www.thegfpd.org
Mission Statement of Global Foundation For Peroxisomal Disorders
The Global Foundation for Peroxisomal Disorders is committed to enhancing the lives of individuals affected by peroxisomal disorders. Their mission, in essence, revolves around funding research, fostering scientific collaboration, and offering educational programs and support services to empower families and professionals. The organization aims to improve the quality of life for those with peroxisomal disorders by funding groundbreaking research and encouraging collaboration among scientists and researchers. Furthermore, the Global Foundation for Peroxisomal Disorders engages in educational initiatives, providing resources and support to families and professionals, thereby empowering them to navigate the challenges associated with peroxisomal disorders more effectively.
Impact
This information is meant to be a general summary of Global Foundation For Peroxisomal Disorders. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The Global Foundation for Peroxisomal Disorders has a significant impact on individuals with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families and professionals through educational programs and support services.
Their family support program focuses on building health and scientific literacy for patients and caregivers through various communication mechanisms, including a redesigned website that provides access to resources and peer-reviewed treatment guidelines. With over 4,000 followers on social media, the GFPD actively empowers caregivers with health information and tools for better clinical outcomes.
The organization hosts biennial conferences that bring together families, patients, researchers, scientists, physicians, and other clinicians for learning and support. Sessions cover advancements in science and medicine, care provision, mental health support, and more. The GFPD also provides access to pro bono consultations worth over $100,000 for families worldwide.
Additionally, the GFPD conducts virtual meet-ups, webinars, and support groups to increase health literacy, connect caregivers with care providers, offer emotional support, and assist in advocacy and policy change for rare disease patients. Through these efforts, the Global Foundation for Peroxisomal Disorders is actively improving the lives of individuals affected by peroxisomal disorders.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2010
Phone
(918) 998-5798
Principal Officer
Melissa Bryce
Main Address
PO BOX 33238, TULSA, OK, 74153
Website
www.thegfpd.org
NTEE Category
Code: G12 - Disease
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