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International Foundation For Cdkl5 Research

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 270950477 ✦ Wadsworth, OH ✦ Designated as a 501(c)(3)

Overview

What is International Foundation For Cdkl5 Research?

The International Foundation For Cdkl5 Research is a nonprofit organization, located in Wadsworth, Ohio. Its primary mission is to fund research aimed at discovering a cure for CDKL5, a rare genetic disorder. They achieve this goal by receiving contributions from various sources, including individuals, corporations, and foundations. These funds are then utilized to grant money for research, aiming to improve the quality of life for children affected by CDKL5. Additionally, the organization hosts a family conference every two years to provide support and resources to families impacted by this disorder. Their efforts are dedicated to finding a cure and enhancing the lives of those affected by CDKL5.


Official website here: www.cdkl5.com

Is International Foundation For Cdkl5 Research legitimate?

International Foundation For Cdkl5 Research is a legitimate nonprofit organization registered as a 501(c)(3) entity. International Foundation For Cdkl5 Research submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0

For more financial information, click here


Official website here: www.cdkl5.com

What is the mission statement of International Foundation For Cdkl5 Research?

The International Foundation for CDKL5 Research is committed to funding research with the ultimate goal of discovering a cure for CDKL5, a rare genetic disorder. To achieve this, they organize a family conference every two years, offering support to families affected by this condition. Their mission also encompasses funding studies to enhance the quality of life for children with CDKL5 and conducting tests to identify potential neurologic modifiers. Through various fundraisers and contributions from individuals, corporations, and foundations, they were able to grant a substantial sum of $574,624 in 2022 to further their research endeavors.


Official website here: www.cdkl5.com

Who is the CEO of International Foundation For Cdkl5 Research?

Amanda Jaksha is the President of International Foundation For Cdkl5 Research.


Official website here: www.cdkl5.com

What is the revenue of International Foundation For Cdkl5 Research?

International Foundation For Cdkl5 Research's revenue in 2022 was $606,589.


Official website here: www.cdkl5.com

Who are the executives of International Foundation For Cdkl5 Research and what are their salaries?

Here are 8 key members and their salaries:

    Karen Utley (President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Rick Upp (Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Paul Miller (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Amanda Jaksha (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Miriam Blase (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Garrett Decker (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Marissa Bishop (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Melissa Ralston (Board Member Emeritus) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.cdkl5.com

    Where can I find the form 990 for International Foundation For Cdkl5 Research?

    The International Foundation For Cdkl5 Research’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.cdkl5.com

    Learn more at the official website: www.cdkl5.com

    Mission Statement of International Foundation For Cdkl5 Research

    The International Foundation For Cdkl5 Research is dedicated to funding research with the ultimate goal of discovering a cure for CDKL5, a rare and debilitating genetic disorder. Recognizing the profound impact this condition has on affected families, the organization also funds a family conference every two years to offer support and solidarity to those whose loved ones are living with CDKL5. Through various fundraising activities and generous contributions from individuals, corporations, and foundations, the Foundation was able to allocate grants totaling $574,624 in 2022 to support research aimed at finding a cure. Additionally, the organization seeks to enhance the quality of life for children with CDKL5 and explore potential neurologic modifiers through scientific studies.

    Impact

    This information is meant to be a general summary of International Foundation For Cdkl5 Research. Please take the time to review official sources before making any decisions based upon the content provided here.




    Wednesday, July 24, 2024

    International Foundation For CDKL5 Research has made a significant impact by funding research aimed at finding a cure for CDKL5, a rare genetic disorder. Through various fundraisers and donations from individuals, corporations, and foundations, the organization was able to award grants totaling $574,624 in 2022. These funds support research that will lead to a cure for this debilitating disease in the near future. Additionally, the organization provides support to families affected by CDKL5 by funding a family conference every two years. Their goals include aggressive research, studies to enhance the quality of life for children with CDKL5, and testing of compounds to identify neurologic modifiers.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $574
  • Program Service Revenue: $0
  • Gross Receipts: $634,813

    • Assets and Liabilities:
  • Total Assets: $631,046
  • Total Liabilities: $312,257
  • Net Assets: $318,789
  • Organization Details

    Founding Year

    2009

    Principal Officer

    Amanda Jaksha

    Main Address

    P O Box 926, Wadsworth, OH, 44282

    NTEE Category

    Code: T30 - Philanthropy

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