Overview
What is Dravet Syndrome Foundation Inc?
The Dravet Syndrome Foundation Inc, situated in Cherry Hill, New Jersey, serves as a dedicated nonprofit organization that is committed to combating Dravet syndrome and related epilepsies. Their primary mission is to raise funds, support research, increase awareness, and offer assistance to affected individuals and families. Since its inception, they have awarded over $6.4 million to 56 research projects, focusing on various areas such as SUDEP, gene therapy, drug discovery, and genetics. In 2020, the foundation hired a Scientific Director to strengthen their involvement in research projects and facilitate collaboration with other institutions like the NIH, PDA, and pharmaceutical companies. With a staff of seven individuals, the Dravet Syndrome Foundation Inc remains an active force in the pursuit of better treatments and a potential cure for Dravet syndrome and related epilepsies.
Official website here: www.dravetfoundation.org
Is Dravet Syndrome Foundation Inc legitimate?
Dravet Syndrome Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dravet Syndrome Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $243,560
Professional Fundraising Fees: $0
Other Salaries and Wages: $223,704
For more financial information, click here
Official website here: www.dravetfoundation.org
What is the mission statement of Dravet Syndrome Foundation Inc?
The Dravet Syndrome Foundation's mission is primarily focused on actively raising funds for Dravet syndrome and related epilepsies. They also support and finance research in these fields. The organization is committed to increasing public awareness about these conditions and offering assistance to those affected and their families. The foundation recognizes the importance of funding innovative research, finding better treatments, and maintaining transparency and accountability in their funding process. Furthermore, they advocate for global collaboration to eventually discover a cure for Dravet syndrome and related epilepsies.
Official website here: www.dravetfoundation.org
Who is the CEO of Dravet Syndrome Foundation Inc?
Ted Odlaug is the Executive Director of Dravet Syndrome Foundation Inc.
Official website here: www.dravetfoundation.org
What is the revenue of Dravet Syndrome Foundation Inc?
Dravet Syndrome Foundation Inc's revenue in 2022 was $2,515,782.
Official website here: www.dravetfoundation.org
Who are the executives of Dravet Syndrome Foundation Inc and what are their salaries?
The average compensation at Dravet Syndrome Foundation Inc during 2022 was $66,752. There are 7 employees and 50 volunteers at Dravet Syndrome Foundation Inc.
Here are 13 key members and their salaries:
- Mary Anne Meskis (Executive Director)
- Veronica Hood (Scientific Director)
- Jamie Cohen (Chief Financial Officer)
- Kate Hintz (President) [Trustee/Director]
- Ted Odlaug Phd (Vice President) [Trustee/Director]
- Josh Goldman (Treasurer) [Trustee/Director]
- Tim Wood (Past Treasurer) [Trustee/Director]
- Ross Nicholas (Secretary) [Trustee/Director]
- Nathan Batt (Trustee)
- Claire Carey (Trustee)
- Ashley Kerns (Trustee)
- Joseph Sullivan Md (Trustee)
- Jenny Tischer (Past Trustee)
Official website here: www.dravetfoundation.org
Where can I find the form 990 for Dravet Syndrome Foundation Inc?
The Dravet Syndrome Foundation Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.dravetfoundation.org
Learn more at the official website: www.dravetfoundation.org
Mission Statement of Dravet Syndrome Foundation Inc
The Dravet Syndrome Foundation is committed to vigorously raising funds for Dravet syndrome and related epilepsies. Its mission extends beyond financial support, aiming to advance research in these areas, boost awareness, and provide assistance to those affected by these conditions and their families. The organization recognizes the importance of funding innovative research, the urgency in finding improved treatments, and the dedication of its donors to make a significant impact in the field of Dravet syndrome and related epilepsies. Furthermore, Dravet Syndrome Foundation prioritizes transparency and accountability in both its own operations and the research it funds, as well as advocating for global collaboration to ultimately discover a cure.
Impact
This information is meant to be a general summary of Dravet Syndrome Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The impact of Dravet Syndrome Foundation Inc is significant in the field of epilepsy research. Since 2009, the foundation has awarded over $6.4 million to 56 research endeavors focused on Dravet syndrome and related epilepsies. By funding initial research hypotheses that have not been fully explored, DSF helps bring untested research to a point where it can qualify for larger governmental funding. Additionally, in 2020, the foundation hired a Scientific Director to enhance collaboration with the medical and scientific community, develop research strategies, and facilitate the progress of research projects. Through these efforts, DSF is actively contributing to the advancement of knowledge and potential treatments for Dravet syndrome and related epilepsies.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Professional Education & Meetings
Revenue
$149,500
Research Grants
Revenue
$10,000
Patient & Family Services
Revenue
$503,096
Organization Details
Founding Year
2009
Phone
(203) 392-1955
Principal Officer
Ted Odlaug
Main Address
PO Box 3026, Cherry Hill, NJ, 08034
Website
www.dravetfoundation.org
NTEE Category
Code: T30 - Philanthropy
If you are a representative of Dravet Syndrome Foundation Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.