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The Fibrolamellar Cancer Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 270341021 ✦ Greenwich, CT ✦ Designated as a 501(c)(3)

Overview

What is The Fibrolamellar Cancer Foundation?

The Fibrolamellar Cancer Foundation is a nonprofit organization situated in Greenwich, Connecticut. Established to raise awareness and financial support for Fibrolamellar Carcinoma, a rare form of liver cancer predominantly affecting adolescents and young adults, the foundation currently lacks viable treatment options beyond liver resection surgery. The organization's mission is twofold: to discover a cure and reliable treatment options for those diagnosed with this disease and foster better communication between healthcare professionals and patients. With a team of three dedicated individuals, the foundation grants funds to research organizations to further their studies on Fibrolamellar Carcinoma.


Official website here: www.fibrofoundation.org

Is The Fibrolamellar Cancer Foundation legitimate?

The Fibrolamellar Cancer Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Fibrolamellar Cancer Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $200,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $286,543

For more financial information, click here


Official website here: www.fibrofoundation.org

What is the mission statement of The Fibrolamellar Cancer Foundation?

The Fibrolamellar Cancer Foundation was established with a mission to increase awareness and fund research for Fibrolamellar Carcinoma, a rare form of liver cancer predominantly affecting adolescents and young adults. Currently, there are limited treatment options beyond liver resection surgery. The foundation's goal is to discover a cure and reliable treatment options for those diagnosed with this rare disease. Additionally, the foundation aims to improve communications among healthcare professionals and patients associated with Fibrolamellar Carcinoma.


Official website here: www.fibrofoundation.org

Who is the CEO of The Fibrolamellar Cancer Foundation?

Kurt Losert is the Co-Chairperson of The Fibrolamellar Cancer Foundation. The CEO's salary of The Fibrolamellar Cancer Foundation is $0 and their total compensation is $0.


Official website here: www.fibrofoundation.org

What is the revenue of The Fibrolamellar Cancer Foundation?

The Fibrolamellar Cancer Foundation's revenue in 2022 was $6,076,635.


Official website here: www.fibrofoundation.org

Who are the executives of The Fibrolamellar Cancer Foundation and what are their salaries?

The average compensation at The Fibrolamellar Cancer Foundation during 2022 was $162,181. There are 3 employees and 50 volunteers at The Fibrolamellar Cancer Foundation.

Here are 12 key members and their salaries (The Fibrolamellar Cancer Foundation's CEO's salary is $0 and their total compensation is $0):

    John Hopper (President (Thru 9/30/22))
  • Compensation: $200,000
  • Related: $0
  • Other: $31,391

    • Dr Mark Furth (Scientific Director)
  • Compensation: $159,650
  • Related: $0
  • Other: $16,079

    • Marna O Davis (Co-Chairperson) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Charles W Beerman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Derek Gilchrist (Director, Secretary)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Anne Adler (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Craig (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Tal Friedman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Charles A Davis (Co-Chairperson) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Leslie Graves (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Craig Martin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kurt Losert (Ceo (From 10/4/22)) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.fibrofoundation.org

    Where can I find the form 990 for The Fibrolamellar Cancer Foundation?

    The The Fibrolamellar Cancer Foundation’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.fibrofoundation.org

    Learn more at the official website: www.fibrofoundation.org

    Mission Statement of The Fibrolamellar Cancer Foundation

    The Fibrolamellar Cancer Foundation, established with the aim to raise awareness and research funds for Fibrolamellar carcinoma, a rare form of liver cancer predominantly affecting teens and young adults, has a mission to find a cure and reliable treatment options for those diagnosed with this disease. Currently, the only viable treatment option is liver resection surgery. The foundation's objective extends beyond medical advancements, aiming to enhance communications among healthcare professionals and patients, fostering a collaborative approach in the battle against this rare disease.

    Impact

    This information is meant to be a general summary of The Fibrolamellar Cancer Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    The Fibrolamellar Cancer Foundation's impact is significant in the fight against fibrolamellar carcinoma, a rare form of liver cancer primarily affecting teens and young adults. With a mission to raise awareness and research funds for this disease, the Foundation aims to find a cure and develop reliable treatment options beyond liver resection surgery. By granting funds to research organizations conducting studies on fibrolamellar carcinoma, the Foundation is actively working towards enhancing communications between healthcare professionals and patients to improve outcomes for those diagnosed with this rare and challenging disease.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $3,055
  • Program Service Revenue: $0
  • Gross Receipts: $6,266,126

    • Assets and Liabilities:
  • Total Assets: $10,981,422
  • Total Liabilities: $1,707,920
  • Net Assets: $9,273,502
  • Organization Details

    Founding Year

    2009

    Principal Officer

    Kurt Losert

    Main Address

    20 HORSENECK LANE 2ND FLOOR, GREENWICH, CT, 06830

    NTEE Category

    Code: G193 - Disease

    If you are a representative of The Fibrolamellar Cancer Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.