Overview
What is Beyond Batten Disease Foundation?
The Beyond Batten Disease Foundation, headquartered in Austin, Texas, is a dedicated nonprofit organization. Its primary objective is to combat Juvenile Batten Disease, a debilitating condition, by funding and partnering with academic institutions, biotechnology firms, and other relevant entities. Their goal is to accelerate the discovery and development of potential treatments or cures for this disease. The foundation also organizes think-tank conferences and forms unique partnerships to propel Juvenile Batten Disease research forward. Their mission is twofold: to eradicate Juvenile Batten Disease through awareness-raising and fundraising efforts for research, ultimately aiming to find a viable treatment or cure.
Official website here: www.beyondbatten.org
Is Beyond Batten Disease Foundation legitimate?
Beyond Batten Disease Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Beyond Batten Disease Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $0
For more financial information, click here
Official website here: www.beyondbatten.org
What is the mission statement of Beyond Batten Disease Foundation?
The Beyond Batten Disease Foundation is committed to eradicating juvenile Batten disease. They achieve this by raising awareness and securing funds for research aimed at discovering a treatment or cure. The organization accelerates this process by providing financial support and contracting services with academic institutions, biotechnology companies, and other organizations capable of aiding in achieving their goals. Beyond Batten Disease Foundation also spearheads the development of think-tank conferences and unique partnerships to drive research into juvenile Batten disease.
Official website here: www.beyondbatten.org
Who is the CEO of Beyond Batten Disease Foundation?
Mary Beth Kiser is the Board Chair of Beyond Batten Disease Foundation. The CEO's salary of Beyond Batten Disease Foundation is $0 and their total compensation is $0.
Official website here: www.beyondbatten.org
What is the revenue of Beyond Batten Disease Foundation?
Beyond Batten Disease Foundation's revenue in 2022 was $1,219,815.
Official website here: www.beyondbatten.org
Who are the executives of Beyond Batten Disease Foundation and what are their salaries?
- Danielle Kerkovich (Scientific Officer)
- T Craig Benson (Board Chair) [Trustee/Director]
- Mary Beth Kiser (President/Ceo And Secretary)
- Jeff Hunt (Director)
- Sabrina Brown (Director)
- Wayne Herndon (Director)
- Will Murphy (Director)
- Caroline Goodner (Director)
- Steven Silber Md (Director)
Official website here: www.beyondbatten.org
Where can I find the form 990 for Beyond Batten Disease Foundation?
The Beyond Batten Disease Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.beyondbatten.org
Learn more at the official website: www.beyondbatten.org
Mission Statement of Beyond Batten Disease Foundation
Beyond Batten Disease Foundation is committed to eradicating juvenile Batten disease. They accomplish this by raising awareness and securing funds for research aimed at discovering a treatment or a cure for this debilitating condition. This mission is carried out by granting funds and contracting services to academic institutions, biotechnology companies, and other organizations with the capacity to aid in achieving their goals. The foundation also plays a significant role in initiating think-tank conferences and establishing unique partnerships to propel juvenile Batten disease research forward. By doing so, Beyond Batten Disease Foundation is actively working towards accelerating the discovery and development of medicines that can prevent, treat, and ultimately cure juvenile Batten disease.
Impact
This information is meant to be a general summary of Beyond Batten Disease Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The Beyond Batten Disease Foundation's impact is focused on accelerating the discovery and development of medicines to prevent, treat, and cure Juvenile Batten Disease. They achieve this by raising awareness and funds for research, granting funds to academic institutions, biotechnology companies, and other organizations, and forming unique partnerships to drive research efforts. Through their initiatives, they are working towards eradicating Juvenile Batten Disease and making a significant difference in the lives of those affected by this rare genetic disorder.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2008
Phone
(512) 275-2600
Principal Officer
Mary Beth Kiser
Main Address
3305 STECK AVE, AUSTIN, TX, 78757
Website
www.beyondbatten.org
NTEE Category
Code: B90 - Education
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