Overview
What is National Pku Alliance Inc?
National Pku Alliance Inc, based in New York City, is a dedicated nonprofit organization with a mission to enhance the lives of individuals living with Phenylketonuria (PKU) and work towards finding a cure. They accomplish this by investing in peer-reviewed and targeted research projects, aiming to advance PKU treatment and ultimately discover a cure. The organization offers education and support to individuals affected by PKU, serving as a national voice for advocacy at the federal level. Their board comprises leaders from local organizations across the nation, as well as representatives from the academic medical community and industry. With a team of eight employees, National Pku Alliance Inc is committed to expanding PKU research and accelerating the timeline for a cure.
Official website here: www.npkua.org
Is National Pku Alliance Inc legitimate?
National Pku Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. National Pku Alliance Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $179,780
Professional Fundraising Fees: $0
Other Salaries and Wages: $278,720
For more financial information, click here
Official website here: www.npkua.org
What is the mission statement of National Pku Alliance Inc?
The National Pku Alliance Inc, abbreviated as NPKUA, is committed to bettering the lives of individuals with PKU and working towards a cure. They achieve this by investing in peer-reviewed and targeted research to accelerate the timeline for a cure. The organization provides education and support to people living with PKU, serving as a vital resource for them. In addition to its research and support efforts, NPKUA advocates for PKU at the federal level, acting as a national voice in this regard. The alliance's board of directors comprises leaders from local organizations across the nation, as well as representatives from the academic medical community and industry.
Official website here: www.npkua.org
Who is the CEO of National Pku Alliance Inc?
What is the revenue of National Pku Alliance Inc?
Who are the executives of National Pku Alliance Inc and what are their salaries?
The average compensation at National Pku Alliance Inc during 2022 was $57,312. There are 8 employees and 150 volunteers at National Pku Alliance Inc.
Here are 16 key members and their salaries:
- Lisa Milberg (Executive Director (Since May))
- Christine Schlegel (Executive Director (Part-Year))
- Jerry Elkins (President) [Trustee/Director]
- Richard Michaux (Vice President) [Trustee/Director]
- Jeb Haber (Vice President) [Trustee/Director]
- J Glenn Haber (Treasurer) [Trustee/Director]
- Rhonda Connolly (Secretary) [Trustee/Director]
- Elizabeth Aselage (Director)
- Susan Berry (Director)
- Heather Bomar (Director)
- Brittany Holmes (Director)
- Lillian Isabella (Director)
- Heidi Maxfield (Director)
- David Mickle (Director)
- Brandon Morgan (Director)
- Alison Reynolds (Director)
Official website here: www.npkua.org
Where can I find the form 990 for National Pku Alliance Inc?
The National Pku Alliance Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.npkua.org
Learn more at the official website: www.npkua.org
Mission Statement of National Pku Alliance Inc
The National Pku Alliance Inc, as an organization, is dedicated to enhancing the lives of individuals affected by PKU and strives towards discovering a cure. The Alliance, commonly known as NPKUA, invests in peer-reviewed and targeted research with the aim of accelerating the timeline for a cure. This commitment to scientific advancement is a critical part of their mission.
Beyond research, NPKUA provides education and support to those living with PKU. This involves equipping individuals with the knowledge they need to manage their condition effectively. The Alliance serves as a national advocate for PKU at the federal level, ensuring that the voices of those affected by the condition are heard in policy discussions.
The leadership of NPKUA includes representatives from local organizations across the nation, as well as experts from the academic medical community and industry. This diverse board brings a wealth of experience and expertise to the table, enabling the Alliance to make a significant impact in the field of PKU research and advocacy.
Impact
This information is meant to be a general summary of National Pku Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
National PKU Alliance Inc's impact is significant in improving the lives of individuals with PKU and pursuing a cure. They have awarded $435,718 in their research program to projects aimed at enhancing PKU treatment and finding a cure. The organization, based in New York, works towards expanding PKU research and accelerating the timeline for a cure by investing in peer-reviewed and targeted research. They provide education and support to people living with PKU and serve as the national voice for advocacy at the federal level. The board of directors includes leaders of local organizations nationwide, representatives of the academic medical community, and industry professionals. Their focus on medical research in the field of PKU showcases their commitment to making a real difference in the lives of those affected by this condition.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCE FEES
Revenue
$44,989
Organization Details
Founding Year
2008
Phone
(516) 443-5820
Principal Officer
Jerry Elkins
Main Address
945 LEXINGTON AVENUE 269, NEW YORK, NY, 10021
Website
www.npkua.org
NTEE Category
Code: H25 - Medical research
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