Overview
What is Lgs Foundation Inc?
Lgs Foundation Inc, formally known as the Lennox-Gastaut Syndrome (LGS) Foundation, is a compassionate nonprofit organization situated in San Diego, California. With a mission to enhance the lives of those affected by Lennox-Gastaut Syndrome (LGS), the foundation offers various support services. These include patient navigation, family assistance, biennial conferences, and an extensive online community, reaching over 101,000 members in 2022. Their efforts extend internationally, with 51 ambassadors and family navigators in 7 countries. In 2022 alone, they welcomed 784 new members and provided aid to numerous grieving families. The foundation's work encompasses research, awareness, education, and support, aiming to lessen the challenges faced by individuals and families dealing with LGS.
Official website here: www.lgsfoundation.org
Is Lgs Foundation Inc legitimate?
Lgs Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Lgs Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $129,150
Professional Fundraising Fees: $0
Other Salaries and Wages: $393,585
For more financial information, click here
Official website here: www.lgsfoundation.org
What is the mission statement of Lgs Foundation Inc?
The LGS Foundation, a nonprofit organization, is committed to enhancing the lives of individuals affected by Lennox-Gastaut Syndrome (LGS). This is achieved by fostering research advancements, raising awareness, providing education, and offering family support. The foundation's mission is to serve as a trusted resource for families, offering patient navigator services and emotional support. They host biennial conferences to bring together the LGS community, including patients, families, researchers, clinicians, and professionals. The foundation's online community has grown significantly, reaching over 101,000 members in 2022, and provides a supportive space through a private Facebook group. In addition, the LGS Foundation has ambassadors and family navigators in various countries to assist local families and has funded patient assistance to provide necessary equipment and items to families in need.
Official website here: www.lgsfoundation.org
Who is the CEO of Lgs Foundation Inc?
Tracy Dixon-Salazar Phd is the Executive Director of Lgs Foundation Inc.
Official website here: www.lgsfoundation.org
What is the revenue of Lgs Foundation Inc?
Who are the executives of Lgs Foundation Inc and what are their salaries?
The average compensation at Lgs Foundation Inc during 2022 was $65,342. There are 8 employees and 150 volunteers at Lgs Foundation Inc.
Here are 8 key members and their salaries:
- Tracy Dixon-Salazar Phd (Executive Director)
- Melanie Huntley (Member) [Trustee/Director]
- Brittany Brown (Member) [Trustee/Director]
- Dale Todd (Member) [Trustee/Director]
- Karen Groff Med (Vice President) [Trustee/Director]
- Natalie Gilmore (President) [Trustee/Director]
- Christopher Mitchell Jd (Secretary) [Trustee/Director]
- Kevin Merritt Cfa (Treasurer) [Trustee/Director]
Official website here: www.lgsfoundation.org
Where can I find the form 990 for Lgs Foundation Inc?
The Lgs Foundation Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.lgsfoundation.org
Learn more at the official website: www.lgsfoundation.org
Mission Statement of Lgs Foundation Inc
The LGS Foundation, a nonprofit organization, is committed to enhancing the lives of individuals affected by Lennox-Gastaut Syndrome (LGS). This is accomplished through several avenues: advancing research, increasing awareness, promoting education, and offering family support. The primary goal of the LGS Foundation is to improve the quality of life for those living with this condition, providing them with the resources and assistance they need to navigate their journey.
The organization recognizes that receiving a diagnosis of LGS can be overwhelming, leaving families with numerous unanswered questions. To address this, the LGS Foundation offers patient navigator and family support services, ensuring that no one has to face this challenge alone. The foundation also hosts a biennial professional and family conference, bringing together patients, families, caregivers, researchers, clinicians, and other professionals to create a united community.
In addition to these initiatives, the LGS Foundation has an extensive online presence, with over 101,000 members across various platforms in 2022. They also maintain a private Facebook support group with over 6,200 members. The organization also boasts a network of 51 ambassadors and family navigators in 7 countries, providing local support to families navigating the LGS journey. In 2022, the LGS Foundation welcomed over 784 new members and distributed over 500 New Family Welcome Kits to help families get started on their LGS journey. Moreover, the foundation has provided financial assistance to bereaved families who have lost loved ones to LGS, offering much-needed support during their time of grief.
Impact
This information is meant to be a general summary of Lgs Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The impact of Lgs Foundation Inc extends to improving the lives of individuals impacted by Lennox-Gastaut Syndrome (LGS) through various initiatives. By providing patient navigation and family support, the organization ensures that those affected by LGS do not have to face their journey alone. The hosting of professional and family conferences serves to unite patients, families, caregivers, researchers, clinicians, and other professionals in the LGS community.
With a significant online presence boasting over 101,000 members across various platforms, Lgs Foundation Inc has been successful in creating a strong support network. The organization's outreach efforts also extend globally, with 51 ambassadors and family navigators in 7 countries providing local support to families navigating the challenges of LGS.
In addition, Lgs Foundation Inc has welcomed over 784 new members in 2022 and sent out over 500 New Family Welcome Kits to aid families at the start of their LGS journey. The foundation's commitment is further demonstrated through the provision of over $100,000 in patient assistance for much-needed durable medical equipment and other essential items for families in need. Furthermore, offering support to bereaved families who have lost loved ones to LGS showcases the compassion and holistic approach of Lgs Foundation Inc in addressing the multifaceted needs of those affected by LGS.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Registration
Revenue
$159,161
Contracts
Revenue
$23,734
Organization Details
Founding Year
2008
Principal Officer
Tracy Dixon-Salazar Phd
Main Address
6030 Santo Road STE 1 STE 420878, San Diego, CA, 92142
Website
www.lgsfoundation.org
NTEE Category
Code: G80 - Disease
If you are a representative of Lgs Foundation Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.