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The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 237247844 ✦ Orlando, FL ✦ Designated as a 501(c)(3)

Overview

What is The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association?

The Epilepsy Association of Central Florida Inc, operating under the name Epilepsy Association, is a dedicated nonprofit organization based in Orlando, Florida. Their primary mission is to enhance the lives of individuals affected by epilepsy and seizure disorders. They accomplish this by providing prevention and education programs globally through the utilization of online technology. Reaching over four million people in over 150 countries, they offer accurate and timely information on epilepsy to various audiences, including public groups, schools, medical professionals, and families. Their initiatives include an educational website, EpilepsyU.com, and social media platforms, which collectively reach over four million people worldwide monthly. Additionally, the organization has launched a social enterprise, EpilepsyStore.com, to expand epilepsy awareness nationwide and raise funds for direct program services. The Epilepsy Association is also renowned for its education and prevention efforts against Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that may result in seizures or even death. Their award-winning video and teaching curriculum on SBIS is widely used across the globe.


Official website here: www.epilepsyassociation.com

Is The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association legitimate?

The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $336,811

For more financial information, click here


Official website here: www.epilepsyassociation.com

What is the mission statement of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association?

The Epilepsy Association of Central Florida Inc., commonly known as the Epilepsy Association, is dedicated to improving the quality of life for individuals affected by epilepsy and seizure disorders. Their mission is to identify, define, and advocate for the needs of these individuals, planning and implementing strategies to meet those needs. The organization has expanded its prevention and education programs globally through online technology, reaching over four million people monthly with epilepsy news, education, and support. They offer accurate and timely information on epilepsy to various groups, employ a full-time health educator, and maintain an online educational platform, EpilepsyU.com, for support groups, courses, webinars, and more. The association also launched a social enterprise, EpilepsyStore.com, to raise funds and expand epilepsy awareness nationwide. Additionally, the Epilepsy Association is a leader in the education and prevention of Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that may result in seizures or death.


Official website here: www.epilepsyassociation.com

Who is the CEO of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association?

Ardit Bitincka is the Director of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association.


Official website here: www.epilepsyassociation.com

What is the revenue of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association?

The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association's revenue in 2022 was $813,501.


Official website here: www.epilepsyassociation.com

Who are the executives of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association and what are their salaries?

Here are 14 key members and their salaries:

    David Manchon (Executive Director)
  • Compensation: $78,565
  • Related: $0
  • Other: $0

    • Bobby Isola (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jeff Day (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Colleen Salvage (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ardit Bitincka (President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Rebecca Devine (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jennifer Felder-Smith (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • George Nahas (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kran Riley (Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ahmed Sadek (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Aaron Thalwitzer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dale Crossley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Sean Fitzgerald (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Eric Wederbrand (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.epilepsyassociation.com

    Where can I find the form 990 for The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association?

    The The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.epilepsyassociation.com

    Learn more at the official website: www.epilepsyassociation.com

    Mission Statement of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association

    The Epilepsy Association, in its mission, is dedicated to enhancing the quality of life for individuals affected by epilepsy and seizure disorders. This nonprofit organization, known as The Epilepsy Association of Central Florida Inc D/B/A Epilepsy Association, aims to identify, define, and advocate for the needs of those living with epilepsy. To achieve this goal, they implement strategies to meet these needs.

    The Epilepsy Association has expanded its reach through the use of online technology, reaching over four million people each month in over 150 countries. Their programs offer accurate and timely information on epilepsy to various audiences, including public groups, schools, medical professionals, and families. They employ a full-time health educator to facilitate these programs, and their online platform, EpilepsyU.com, extends their reach further, now reaching over four million people monthly.

    The organization also launched a "social enterprise," EpilepsyStore.com, to raise funds and increase epilepsy awareness nationwide through the sale of epilepsy awareness merchandise. Additionally, The Epilepsy Association remains one of the leading educators and preventers of Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that may result in seizures or even death. Their award-winning video and teaching curriculum on SBIS is used worldwide, from school children and childcare workers to maternity hospitals and new father programs.

    Impact

    This information is meant to be a general summary of The Epilepsy Association Of Central Florida Inc D/B/A Epilepsy Association. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    The Epilepsy Association of Central Florida Inc, also known as Epilepsy Association, has a significant impact on improving the quality of life for individuals affected by epilepsy and seizure disorders. Through various prevention and education programs, the organization reaches over four million individuals in more than 150 countries each month. In 2020 alone, they conducted 156 in-person programs, providing accurate and timely information on epilepsy to a wide range of audiences including public groups, schools, medical professionals, employers, and more.

    One of the notable achievements of the organization is its leadership in educating and preventing Shaken Baby Impact Syndrome (SBIS), a traumatic brain injury that can lead to seizures or death. Their award-winning video and teaching curriculum on SBIS is used globally, from schools and childcare facilities to maternity hospitals and new father programs.

    Additionally, Epilepsy Association actively utilizes online platforms such as EpilepsyU.com and social media to offer support groups, courses, news articles, webinars, and other educational resources related to epilepsy. They have also established a social enterprise, EpilepsyStore.com, to raise funds for direct program services while expanding epilepsy awareness through the sale of merchandise.

    Overall, The Epilepsy Association of Central Florida Inc's dedication to advocating for the needs of individuals with epilepsy and implementing strategies to meet those needs has made a significant impact both locally and globally.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $46,103
  • Program Service Revenue: $4,639
  • Gross Receipts: $850,619

    • Assets and Liabilities:
  • Total Assets: $1,178,510
  • Total Liabilities: $206,410
  • Net Assets: $972,100
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    CLIENT SERVICE FEES

    Revenue

    $4,639

    Organization Details

    Founding Year

    1984

    Principal Officer

    Ardit Bitincka

    Main Address

    109 NORTH KIRKMAN ROAD, ORLANDO, FL, 32811

    NTEE Category

    Code: G54Z - Disease

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