Overview
What is Osteogenesis Imperfecta Foundation?
The Osteogenesis Imperfecta Foundation (OIF) is a nonprofit organization primarily dedicated to enhancing the lives of individuals affected by Osteogenesis Imperfecta (OI), a bone disorder. Established in 1970, the foundation is headquartered in Gaithersburg, Maryland, with a mission to improve their quality of life through research, education, awareness, and mutual support. To achieve this, OIF funds grants for OI-related research, awards fellowships to young investigators, collaborates with organizations such as the National Institutes of Health, and hosts virtual and in-person town hall meetings. They also provide medically verified information on OI through their website, respond to over 11,000 inquiries annually, and have launched an ECHO clinic to spread knowledge about rare bone conditions among healthcare professionals. The foundation's efforts extend to supporting cardiopulmonary research and organizing scientific meetings, aiming to develop better treatment options and a deeper understanding of OI.
Official website here: www.oif.org
Is Osteogenesis Imperfecta Foundation legitimate?
Osteogenesis Imperfecta Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Osteogenesis Imperfecta Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $246,343
Professional Fundraising Fees: $0
Other Salaries and Wages: $683,027
For more financial information, click here
Official website here: www.oif.org
What is the mission statement of Osteogenesis Imperfecta Foundation?
The Osteogenesis Imperfecta Foundation aims to enhance the quality of life for individuals affected by Osteogenesis Imperfecta (OI), a bone disorder, through research into treatments and a potential cure, education, awareness, and mutual support. The organization supports various research initiatives and provides funding for relevant projects, including the Michael Geisman Fellowship Program and the NIH Brittle Bone Disorders Consortium. The foundation also engages in patient-centered outcomes research to empower the OI community and improve healthcare for patients. Additionally, it hosts scientific meetings, provides medically verified information through its Information Center, and organizes OI Clinic and Bone Health Town Hall Meetings.
Official website here: www.oif.org
Who is the CEO of Osteogenesis Imperfecta Foundation?
Tracy Smith Hart is the President of Osteogenesis Imperfecta Foundation. The CEO's salary of Osteogenesis Imperfecta Foundation is $205,452 and their total compensation is $232,463.
Official website here: www.oif.org
What is the revenue of Osteogenesis Imperfecta Foundation?
Osteogenesis Imperfecta Foundation's revenue in 2022 was $2,112,061.
Official website here: www.oif.org
Who are the executives of Osteogenesis Imperfecta Foundation and what are their salaries?
The average compensation at Osteogenesis Imperfecta Foundation during 2022 was $84,488. There are 11 employees and 100 volunteers at Osteogenesis Imperfecta Foundation.
Here are 17 key members and their salaries (Osteogenesis Imperfecta Foundation's CEO's salary is $205,452 and their total compensation is $232,463):
- Tracy Smith Hart (Chief Executive Officer)
- Katherine E Carter (Chief Program Officer)
- Ted Trahan (President) [Trustee/Director]
- Cameron R Penn (Previous President) [Trustee/Director]
- James M Early (Vice President) [Trustee/Director]
- Christine Wyman Rossi (Vice President) [Trustee/Director]
- Sharon Mutnick (Treasurer) [Trustee/Director]
- Kenneth Finkel (Secretary) [Trustee/Director]
- Francis Glorieux (Medical Advisor Council Chair) [Trustee/Director]
- Karen Braitmayer (Board Member) [Trustee/Director]
- Michelle Fynan (Board Member) [Trustee/Director]
- Tracy Mulroy (Board Member) [Trustee/Director]
- Wendy Sacks (Board Member) [Trustee/Director]
- James Sharples (Board Member) [Trustee/Director]
- Michael Sheridan (Board Member) [Trustee/Director]
- V Reid Sutton Md (Board Member) [Trustee/Director]
- S Jacinta Whyte (Board Member) [Trustee/Director]
Official website here: www.oif.org
Where can I find the form 990 for Osteogenesis Imperfecta Foundation?
The Osteogenesis Imperfecta Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.oif.org
Learn more at the official website: www.oif.org
Mission Statement of Osteogenesis Imperfecta Foundation
The Osteogenesis Imperfecta Foundation, often referred to as OIF, is a non-profit organization dedicated to improving the quality of life for individuals affected by Osteogenesis Imperfecta (OI), a bone disorder. Their primary mission is to conduct research to find treatments and a potential cure for OI, provide education and awareness, and offer mutual support to those affected.
The OIF supports this mission by funding grants for research relevant to OI, awarding fellowships to post-doctoral trainees working on OI-related projects, and collaborating with initiatives such as the NIH Brittle Bone Disorders Consortium to better understand and expand treatment options. Through programs like the PCORI Engagement Awards, the OIF aims to provide doctors and care providers with information relevant to the OI community, empowering them to provide better care and allowing the OI community to advocate for themselves.
The OIF also hosts scientific meetings, virtual and in-person OI clinic and bone health town hall meetings, and collaborates with other organizations to bring together medical professionals treating patients with OI. They provide medically verified information related to OI through their website and respond to over 11,000 direct inquiries annually. The OIF's mission is to provide a comprehensive support system for individuals with OI, from research and treatment options to education and mutual support.
Impact
This information is meant to be a general summary of Osteogenesis Imperfecta Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
Osteogenesis Imperfecta Foundation has a significant impact in improving the quality of life for individuals affected by Osteogenesis Imperfecta (OI). Through research funding, educational initiatives, awareness campaigns, and mutual support programs, the Foundation plays a crucial role in advancing the understanding and treatment of OI. The Foundation's contributions include supporting research grants, participating in scientific meetings, hosting educational events, and providing accurate and up-to-date information on OI through various channels. By engaging in activities such as the Bone Disorders Consortium, Rare Bone Disorder ECHO Clinic, PCORI Engagement Awards, and the OI Registry, the Foundation actively promotes collaboration among scientists, healthcare professionals, and individuals living with OI. Overall, the Osteogenesis Imperfecta Foundation's efforts have a positive and far-reaching impact on the OI community, aiming to enhance care, empower individuals, and drive progress towards improved treatments and ultimately, a cure.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
1970
Phone
(301) 947-0083
Principal Officer
Tracy Smith Hart
Main Address
656 QUINCE ORCHARD ROAD 650, GAITHERSBURG, MD, 20878
Website
www.oif.org
NTEE Category
Code: H50J - Medical research
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