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Williams Syndrome Association Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 223305007 ✦ Newark, NJ ✦ Designated as a 501(c)(3)

Overview

What is Williams Syndrome Association Inc?

Williams Syndrome Association Inc, located at 243 BROADWAY, NEWARK, NJ, 07104, is a dedicated nonprofit organization. Their primary mission is to support individuals with Williams Syndrome, their families, and professionals working with them. They achieve this by developing programs and services, helping build strengths and overcome challenges from early childhood through adulthood. In addition, they raise public awareness and understanding of Williams Syndrome, and encourage and support research into various issues related to the condition. The association aims to advance the interests of individuals with Williams Syndrome throughout their lifespan, providing programming, resources, fostering partnerships and connections, and ensuring the organization's infrastructure has the capacity to meet its goals. With a staff of 16 individuals, the Williams Syndrome Association Inc is committed to making a significant impact in the lives of those affected by this syndrome.


Official website here: www.williams-syndrome.org

Is Williams Syndrome Association Inc legitimate?

Williams Syndrome Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Williams Syndrome Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $220,607
Professional Fundraising Fees: $0
Other Salaries and Wages: $531,464

For more financial information, click here


Official website here: www.williams-syndrome.org

What is the mission statement of Williams Syndrome Association Inc?

The Williams Syndrome Association Inc's mission is centered around enhancing the lives of individuals with Williams Syndrome throughout their lifespan. They accomplish this by offering programming and resources, supporting research, fostering partnerships and connections, and ensuring their organizational infrastructure is equipped to guide the community towards its goals. This is achieved by providing information and emotional support to individuals with Williams Syndrome, their families, and professionals who work with them. The association also develops programs and services to help individuals build their strengths and overcome challenges. Additionally, they work towards increasing public awareness and understanding of Williams Syndrome, and encourage and support research into various issues related to the condition.


Official website here: www.williams-syndrome.org

Who is the CEO of Williams Syndrome Association Inc?

Mary Van Haneghan is the President of Williams Syndrome Association Inc.


Official website here: www.williams-syndrome.org

What is the revenue of Williams Syndrome Association Inc?

Williams Syndrome Association Inc's revenue in 2022 was $2,421,502.


Official website here: www.williams-syndrome.org

Who are the executives of Williams Syndrome Association Inc and what are their salaries?

The average compensation at Williams Syndrome Association Inc during 2022 was $47,004. There are 16 employees and 100 volunteers at Williams Syndrome Association Inc.

Here are 15 key members and their salaries:

    Terry Monkaba (Executive Director Thru Jul'22)
  • Compensation: $130,135
  • Related: $0
  • Other: $7,972

    • Mary Van Haneghan (Executive Director As Of Jul'22)
  • Compensation: $82,500
  • Related: $0
  • Other: $0

    • Cyndra Cole (President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Scott Ottenheimer (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Matt Bartow (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Meredith Greene (Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ryan Cordy (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kelly Wei (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Brendan Lemieux (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ellen Hoch (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Clancey Hopper (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Amy Nussbaum (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Aine Smalley (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Melissa Murphy (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Bill Palmer (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.williams-syndrome.org

    Where can I find the form 990 for Williams Syndrome Association Inc?

    The Williams Syndrome Association Inc’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.williams-syndrome.org

    Learn more at the official website: www.williams-syndrome.org

    Mission Statement of Williams Syndrome Association Inc

    The Williams Syndrome Association Inc is committed to enhancing the lives of individuals with Williams Syndrome throughout their lifespan. To achieve this, the organization provides programming and resources, supports research, fosters partnerships and connections, and ensures its infrastructure is capable of leading the community towards its goals.

    In essence, the Williams Syndrome Association Inc serves as a vital support system for individuals with Williams Syndrome, their families, and professionals working with them. It offers emotional support and information, assisting them in navigating the unique challenges associated with this condition. The association also develops programs and services aimed at building strengths and addressing challenges from early childhood through adulthood.

    Moreover, the Williams Syndrome Association Inc plays a significant role in raising public awareness and understanding of Williams Syndrome. By promoting understanding, the organization aims to foster an inclusive and supportive community for those affected by this condition. Additionally, the association encourages and supports research into various aspects related to Williams Syndrome, contributing to the advancement of knowledge and potential treatments.

    Impact

    This information is meant to be a general summary of Williams Syndrome Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    Williams Syndrome Association Inc advances the interests of individuals with Williams Syndrome by supporting research, providing family services, and raising community awareness. They provide information and emotional support to individuals with Williams Syndrome characteristics, their families, and professionals. Additionally, the organization develops programs and services to help build strengths and meet challenges from early childhood through adulthood. By increasing public awareness and understanding of Williams Syndrome and encouraging research into related issues, the association plays a vital role in supporting the Williams Syndrome community and improving quality of life for those affected by the condition.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $57,546
  • Program Service Revenue: $491,682
  • Gross Receipts: $2,506,334

    • Assets and Liabilities:
  • Total Assets: $2,892,153
  • Total Liabilities: $268,814
  • Net Assets: $2,623,339
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    CONVENTION

    Revenue

    $489,801

    REGIONAL PROGRAMS AND

    Revenue

    $1,881

    Organization Details

    Founding Year

    1993

    Principal Officer

    Mary Van Haneghan

    Main Address

    243 BROADWAY 9188, NEWARK, NJ, 07104

    NTEE Category

    Code: G20Z - Disease

    If you are a representative of Williams Syndrome Association Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.