Overview
What is The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation, identified as MDS Foundation Inc, is an international organization based in Yardville, New Jersey. Established by a group of physicians and researchers, its primary mission is to serve as a hub for sharing information related to Myelodysplastic Syndromes (MDS) and related myeloid neoplasms. The foundation focuses on supporting patients and healthcare providers through various means, such as patient information initiatives, newsletters, and digital platforms. The team communicates daily with patients and caregivers, providing guidance and education on MDS, treatment options, and clinical trials. On-site patient liaison support is also available, including referrals to MDS Centers of Excellence and responses to emails and social media inquiries. The foundation's workforce comprises 9 dedicated individuals, committed to accelerating progress in the control and cure of MDS diseases.
Official website here: www.mds-foundation.org
Is The Myelodysplastic Syndromes Foundation legitimate?
The Myelodysplastic Syndromes Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. The Myelodysplastic Syndromes Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $147,110
Professional Fundraising Fees: $0
Other Salaries and Wages: $373,122
For more financial information, click here
Official website here: www.mds-foundation.org
What is the mission statement of The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation, established by a group of international physicians and researchers, is dedicated to providing continuous information exchange related to MDS. Its mission, as an international organization, is to support and educate patients and healthcare providers, while also driving innovative research in the fields of MDS and related myeloid neoplasms. The goal is to accelerate progress towards controlling and curing these diseases. In 2022, the foundation continued its extensive patient advocacy outreach initiatives, communicating daily with patients and caregivers through various platforms, including patient information via the "Building Blocks of Hope" initiative, newsletters, and social media campaigns. On-site patient liaison support is also provided, offering referrals to MDS Centers of Excellence, information on current treatment options and clinical trials, and responding to emails and social media inquiries. In summary, The Myelodysplastic Syndromes Foundation focuses on providing information, support, and education to patients and healthcare providers, while driving research to control and cure MDS and related myeloid neoplasms. The organization's outreach initiatives aim to support and empower patients and their caregivers through various means of communication.
Official website here: www.mds-foundation.org
Who is the CEO of The Myelodysplastic Syndromes Foundation?
Tracey A Iraca is the Executive Di of The Myelodysplastic Syndromes Foundation.
Official website here: www.mds-foundation.org
What is the revenue of The Myelodysplastic Syndromes Foundation?
The Myelodysplastic Syndromes Foundation's revenue in 2022 was $2,521,375.
Official website here: www.mds-foundation.org
Who are the executives of The Myelodysplastic Syndromes Foundation and what are their salaries?
The average compensation at The Myelodysplastic Syndromes Foundation during 2022 was $57,804. There are 9 employees and 30 volunteers at The Myelodysplastic Syndromes Foundation.
Here are 8 key members and their salaries:
- Tracey A Iraca (Executive Di)
- Janice Butchko (Secretary)
- Sandra Kurtin Phd Anp-C Aocn (Treasurer) [Trustee/Director]
- Luca Malcovati Md (Board Member) [Trustee/Director]
- Michael R Savona Md (Board Member) [Trustee/Director]
- Peter L Greenberg Md (Board Member) [Trustee/Director]
- Stephen D Nimer Md (Chairman) [Trustee/Director]
- Pierre Fenaux Md Phd (Board Member) [Trustee/Director]
Official website here: www.mds-foundation.org
Where can I find the form 990 for The Myelodysplastic Syndromes Foundation?
The The Myelodysplastic Syndromes Foundation’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.mds-foundation.org
Learn more at the official website: www.mds-foundation.org
Mission Statement of The Myelodysplastic Syndromes Foundation
The Myelodysplastic Syndromes Foundation, established by a group of international physicians and researchers, is committed to advancing the understanding and treatment of Myelodysplastic Syndromes (MDS) and related myeloid neoplasms. This nonprofit organization's primary mission is to support and educate patients and healthcare providers, with a focus on promoting innovative research in the field. The Myelodysplastic Syndromes Foundation aims to accelerate progress towards controlling and curing these diseases, ultimately leading to improved outcomes for affected individuals.
In pursuit of its mission, The Myelodysplastic Syndromes Foundation engaged in extensive patient advocacy outreach initiatives in 2022. The organization's staff communicates daily with patients and their caregivers, providing support and education through various formats. These include patient information through the Foundation's "Building Blocks of Hope" initiative, MDS Foundation newsletters, and social media campaigns. On-site patient liaison support is also provided, including referrals to MDS Centers of Excellence, information on current treatment options and available clinical trials, responses to email and social media inquiries, and facilitating connections between MDS patients upon request. By leveraging these outreach efforts, The Myelodysplastic Syndromes Foundation continues to make a significant impact in the lives of those affected by MDS.
Impact
This information is meant to be a general summary of The Myelodysplastic Syndromes Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The Myelodysplastic Syndromes Foundation has made a significant impact by providing crucial support and education to patients and healthcare providers in the field of MDS and related myeloid neoplasms. Through initiatives such as the "Building Blocks of Hope" program, newsletters, website, and social media campaigns, the foundation offers valuable information to those affected by these diseases. Additionally, their patient liaison support, referrals to MDS Centers of Excellence, and assistance in navigating treatment options and clinical trials have truly made a difference in the lives of individuals dealing with Myelodysplastic Syndromes. The foundation's continuous efforts are contributing to accelerating progress towards the control and cure of these diseases.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
PROGRAM INCOME
Revenue
$405,541
Organization Details
Founding Year
1999
Phone
(800) 637-0839
Principal Officer
Tracey A Iraca
Main Address
4573 S BROAD STREET SUITE 150, YARDVILLE, NJ, 08620
Website
www.mds-foundation.org
NTEE Category
Code: G30 - Disease
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