Overview
What is Myotonic Dystrophy Foundation Inc?
Myotonic Dystrophy Foundation Inc, located in Oakland, California, is a nonprofit organization dedicated to combating myotonic dystrophy, a chronic and degenerative disease. They accomplish this mission by mobilizing resources and fostering collaboration in the areas of education, advocacy, and research. The foundation raises additional funds in the private sector to accelerate research efforts, with the ultimate goal of discovering a treatment and ultimately a cure for this condition. With a team of five dedicated individuals, the Myotonic Dystrophy Foundation Inc is actively working towards improving the lives of those affected by this disease.
Official website here: www.myotonic.org
Is Myotonic Dystrophy Foundation Inc legitimate?
Myotonic Dystrophy Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Myotonic Dystrophy Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $247,902
Professional Fundraising Fees: $0
Other Salaries and Wages: $348,019
For more financial information, click here
Official website here: www.myotonic.org
What is the mission statement of Myotonic Dystrophy Foundation Inc?
The Myotonic Dystrophy Foundation Inc is committed to leading efforts and garnering resources towards managing, treating, and ultimately curing myotonic dystrophy. This is achieved through a multifaceted approach that includes education, advocacy, and research. The organization's mission is to accelerate the understanding of the disease by raising additional funds in the private sector for scientific research. The aim is to discover a treatment and, eventually, find a cure for this chronic, degenerative condition.
Official website here: www.myotonic.org
Who is the CEO of Myotonic Dystrophy Foundation Inc?
Tanya Stevenson is the Ceo of Myotonic Dystrophy Foundation Inc. The CEO's salary of Myotonic Dystrophy Foundation Inc is $226,657 and their total compensation is $247,902.
Official website here: www.myotonic.org
What is the revenue of Myotonic Dystrophy Foundation Inc?
Myotonic Dystrophy Foundation Inc's revenue in 2022 was $2,774,035.
Official website here: www.myotonic.org
Who are the executives of Myotonic Dystrophy Foundation Inc and what are their salaries?
The average compensation at Myotonic Dystrophy Foundation Inc during 2022 was $119,184. There are 5 employees and 104 volunteers at Myotonic Dystrophy Foundation Inc.
Here are 13 key members and their salaries (Myotonic Dystrophy Foundation Inc's CEO's salary is $226,657 and their total compensation is $247,902):
- Tanya Stevenson (Ceo)
- Kleed Cumming (Comm/Tech Manager)
- Jeremy Kelly (Chair) [Trustee/Director]
- Martha Montag Brown (Vice-Chair) [Trustee/Director]
- Elizabeth Florence (Secretary) [Trustee/Director]
- David Herbert (Treasurer) [Trustee/Director]
- David Berman (Director)
- John W Day (Director)
- Charles Thornton (Director)
- John Fitzpatrick (Director)
- Joel Revill (Director)
- Tom Mcpeek (Director)
- Belen Esparis (Director)
Official website here: www.myotonic.org
Where can I find the form 990 for Myotonic Dystrophy Foundation Inc?
The Myotonic Dystrophy Foundation Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.myotonic.org
Learn more at the official website: www.myotonic.org
Mission Statement of Myotonic Dystrophy Foundation Inc
The Myotonic Dystrophy Foundation Inc is committed to spearheading and rallying resources towards the management, treatment, and ultimately, the cure for myotonic dystrophy. This is achieved through a three-pronged approach that encompasses education, advocacy, and research. The organization's mission is to leverage its resources effectively in order to advance our understanding of this chronic, degenerative disease, with the ultimate goal of finding a treatment and, eventually, a cure.
To accomplish this, the Myotonic Dystrophy Foundation Inc raises additional funds in the private sector. These funds are then channeled towards accelerating research in both the clinical and scientific realms. The objective is to gain a more comprehensive understanding of the disease, with the aim of developing effective treatment options and ultimately, a cure. The foundation's dedication to research is instrumental in the quest to alleviate the suffering of those affected by myotonic dystrophy and to improve their quality of life.
Impact
This information is meant to be a general summary of Myotonic Dystrophy Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
Myotonic Dystrophy Foundation Inc is dedicated to leading and mobilizing resources towards effective management, treatment, and ultimately a cure for myotonic dystrophy. Through their focus on research, the organization raises additional funds in the private sector to accelerate the understanding of the disease. By supporting both clinical and scientific research, their goal is to find a treatment and eventually a cure for this chronic, degenerative disease. Their impact is evident in their ongoing efforts to advance knowledge, provide support, and drive progress in the fight against myotonic dystrophy.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference Registration
Revenue
$66,768
Organization Details
Founding Year
2006
Phone
(415) 800-7745
Principal Officer
Tanya Stevenson
Main Address
663 THIRTEENTH STREET SUITE 100, OAKLAND, CA, 94612
Website
www.myotonic.org
NTEE Category
Code: G40 - Disease
If you are a representative of Myotonic Dystrophy Foundation Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.