Overview
What is Myasthenia Gravis Foundation Of America Inc?
Myasthenia Gravis Foundation Of America Inc, located in Westborough, Massachusetts, is a dedicated nonprofit organization with a mission to eradicate myasthenia gravis and related disorders. They achieve this by funding high-impact research at esteemed universities and medical institutions, collaborating with partners like the American Brain Foundation and MGNet to nurture new scientists in the field. The organization manages the world's largest myasthenia gravis patient registry, boasting over 3,500 participants. They sponsor annual scientific sessions and international conferences, attracting renowned researchers from across the globe. Beyond research, Myasthenia Gravis Foundation Of America Inc offers information and support to over 40,000 constituents, keeping them informed about advancements and progress in the field. (Word count: 116)
Official website here: www.myasthenia.org
Is Myasthenia Gravis Foundation Of America Inc legitimate?
Myasthenia Gravis Foundation Of America Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Myasthenia Gravis Foundation Of America Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $231,757
Professional Fundraising Fees: $0
Other Salaries and Wages: $1,019,696
For more financial information, click here
Official website here: www.myasthenia.org
What is the mission statement of Myasthenia Gravis Foundation Of America Inc?
The Myasthenia Gravis Foundation of America Inc. is dedicated to finding a cure for myasthenia gravis and related disorders, enhancing treatment options, and offering support to individuals affected by myasthenia gravis. They achieve this goal through various means, including conducting research, providing education, organizing community programs, and advocating for the cause. The organization funds high-impact research at renowned universities and medical institutions, collaborating with partners like the American Brain Foundation and MGNet. They also maintain a global patient registry, sponsor scientific sessions, and organize international conferences to attract leading researchers in the field. The foundation disseminates information about research initiatives and progress to its extensive network of over 40,000 constituents.
Official website here: www.myasthenia.org
Who is the CEO of Myasthenia Gravis Foundation Of America Inc?
Samantha Masterson is the Chief Executive Officer of Myasthenia Gravis Foundation Of America Inc. The CEO's salary of Myasthenia Gravis Foundation Of America Inc is $228,332 and their total compensation is $231,757.
Official website here: www.myasthenia.org
What is the revenue of Myasthenia Gravis Foundation Of America Inc?
Myasthenia Gravis Foundation Of America Inc's revenue in 2022 was $4,388,529.
Official website here: www.myasthenia.org
Who are the executives of Myasthenia Gravis Foundation Of America Inc and what are their salaries?
The average compensation at Myasthenia Gravis Foundation Of America Inc during 2022 was $113,768. There are 11 employees and 2,500 volunteers at Myasthenia Gravis Foundation Of America Inc.
Here are 23 key members and their salaries (Myasthenia Gravis Foundation Of America Inc's CEO's salary is $228,332 and their total compensation is $231,757):
- Samantha Masterson (Chief Executive Officer)
- Craig Stenger (Vice President, Operations And Strategic Developme)
- Michael Antonellis (Vice President, Global Marketing & Communications)
- Wendi Huff (Vice President, Global Industry Affairs And Resear)
- Caroline Gaylor (National Director, Strategic Impact And Investment)
- Dova Levin (National Senior Director, Educational And Patient)
- Brian Gladden (Chair) [Trustee/Director]
- William Sauerwine (Vice Chair) [Trustee/Director]
- Michael Lifshitz (Secretary) [Trustee/Director]
- Justin Stachtiaris (Treasurer) [Trustee/Director]
- Adrejia Boutte (Director (Started 07/2022))
- Richard J Nowak Md (Director (Started 07/2022))
- Kevin O'Connor Md (Director)
- Jeffrey Pilgrim (Director)
- Sangeeta Sawhney Md (Director (Started 07/2022))
- Paul Strumph (Director)
- Celia Meyer (Secretary (Resigned 7/7/22)) [Trustee/Director]
- Phil Cogan (Director (Resigned 7/7/22))
- Kim Eldridge (Director (Resigned 7/7/22))
- Susie Johnson (Director (Resigned 2/4/22))
- Robert Ruff Md (Director (Resigned 7/9/22))
- Katherine Ruzhansky (Director (Resigned 2/4/22))
- Robert Thomas (Director (Started 07/2022))
Official website here: www.myasthenia.org
Where can I find the form 990 for Myasthenia Gravis Foundation Of America Inc?
The Myasthenia Gravis Foundation Of America Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.myasthenia.org
Learn more at the official website: www.myasthenia.org
Mission Statement of Myasthenia Gravis Foundation Of America Inc
The Myasthenia Gravis Foundation of America Inc is dedicated to pursuing a cure for myasthenia gravis and related disorders, enhancing treatment options, and offering support and information to those affected by myasthenia gravis. This nonprofit organization accomplishes its mission through research, education, community programs, and advocacy.
In the realm of research, the Myasthenia Gravis Foundation of America Inc plays a significant role in funding high-impact studies at reputable universities and medical institutions. They collaborate with strategic partners like the American Brain Foundation and MGNet to bring fresh researchers to myasthenia gravis research by offering fellowships, funding pilot grants, and supporting special projects. Moreover, the foundation maintains the global Myasthenia Gravis patient registry, which now includes over 3,500 participants.
To educate and support individuals with myasthenia gravis, the Myasthenia Gravis Foundation of America Inc holds annual scientific sessions in collaboration with AANEM, attracting over 250 attendees. Additionally, they organize an International Conference every three years, which attracts leading myasthenia gravis researchers from around the world, with over 350 participants attending. The foundation provides information to over 40,000 constituents, keeping them informed about research initiatives and progress.
Impact
This information is meant to be a general summary of Myasthenia Gravis Foundation Of America Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
The Myasthenia Gravis Foundation Of America Inc is dedicated to finding a cure for myasthenia gravis and closely related disorders. They work towards this goal by funding critical research at prominent universities and medical institutions, providing information and support to individuals affected by myasthenia gravis, and advocating for improved treatment options.
Through their efforts, the organization has made significant strides in advancing MG research. They fund high-impact research projects, collaborate with strategic partners to bring new scientists into the field, and maintain a global MG patient registry with nearly 3,500 participants. Additionally, they host scientific sessions and international conferences that attract leading researchers from around the world, furthering knowledge and collaboration in the field of myasthenia gravis.
Overall, the Myasthenia Gravis Foundation Of America Inc's impact can be seen in their contributions to advancing research, providing support to individuals with myasthenia gravis, and advocating for improved treatment options in the medical community. Their dedication to finding a cure for this disorder aligns with their mission of improving the lives of those affected by myasthenia gravis.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
Conference registrations
Revenue
$280,975
Research studies
Revenue
$171,148
Organization Details
Founding Year
1952
Phone
(800) 541-5454
Principal Officer
Samantha Masterson
Main Address
290 Turnpike Rd 5-315, Westborough, MA, 01581
Website
www.myasthenia.org
NTEE Category
Code: H56Z - Medical research
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