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Hemophilia Association Of New York Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 135650955 ✦ New york, NY ✦ Designated as a 501(c)(3)

Overview

What is Hemophilia Association Of New York Inc?

The Hemophilia Association of New York Inc, based in New York City, is a dedicated nonprofit organization that primarily focuses on providing assistance and resources to individuals and families affected by bleeding disorders. During 2020-2021, nearly half of the organization's efforts were dedicated to this service function, encompassing financial aid, problem resolution, counseling, referrals, education, advocacy, and distributing informational materials. In the fiscal year 21/22, they served 787 individuals and families with bleeding disorders, offering emergency financial assistance to 8% of their clients, amounting to $53,515. The association organizes group meetings, conferences, and publishes newsletters to educate and support the community. They also developed an educational pamphlet on mental health issues recognition and coping, available in both Spanish and English. The Hemophilia Association of New York Inc does not charge membership fees nor does it charge for attendance to any programs. It aims to provide information, advocacy, and direct assistance to people with bleeding disorders, and has been serving New York City, Long Island, and the Hudson Valley since its inception. The organization also funds research to improve treatments and potentially find cures for hemophilia and related conditions.


Official website here: www.hemophiliany.com

Is Hemophilia Association Of New York Inc legitimate?

Hemophilia Association Of New York Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hemophilia Association Of New York Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $189,907
Professional Fundraising Fees: $0
Other Salaries and Wages: $214,601

For more financial information, click here


Official website here: www.hemophiliany.com

What is the mission statement of Hemophilia Association Of New York Inc?

The Hemophilia Association of New York Inc. is dedicated to providing information, advocacy, and direct assistance to individuals with bleeding disorders. This non-profit organization has been serving the community since its inception, with a primary focus on New York City, Long Island, and the Hudson Valley. The association is a leading supporter of research aimed at improving treatments and funding potential cures for hemophilia and related conditions. A significant portion of the association's activities involves providing information and assistance to the bleeding disorders community. This includes financial aid, problem resolution, counseling, outreach, education, advocacy, and distributing informational materials. In the 2020-2021 fiscal year, 787 individuals with bleeding disorders and their families were served, with 8% of clients receiving emergency financial assistance or other forms of specific intervention. The association also organizes educational events, such as group meetings, conferences, and symposiums, and publishes newsletters and pamphlets to disseminate information about mental health issues and coping strategies. The Hemophilia Association of New York Inc. does not charge membership fees or attendance fees for its programs.


Official website here: www.hemophiliany.com

Who is the CEO of Hemophilia Association Of New York Inc?

Linda Mugford is the Chairperson of Hemophilia Association Of New York Inc.


Official website here: www.hemophiliany.com

What is the revenue of Hemophilia Association Of New York Inc?

Hemophilia Association Of New York Inc's revenue in 2022 was $563,478.


Official website here: www.hemophiliany.com

Who are the executives of Hemophilia Association Of New York Inc and what are their salaries?

The average compensation at Hemophilia Association Of New York Inc during 2022 was $67,418. There are 6 employees and 16 volunteers at Hemophilia Association Of New York Inc.

Here are 14 key members and their salaries:

    Linda Mugford (Executive Director)
  • Compensation: $148,113
  • Related: $0
  • Other: $32,942

    • Edward G Rogoff Phd (Chairperson) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mariam Voutsis (President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Eileen Margolies (Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jeffrey Zacharia (Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mark K Svenningson (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Joanna Baquero (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Theodore Bunin (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Brian Egan (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Robert M Greer (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mark Kovarik (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Joseph Mugford (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Maggie Pack Phd (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Aureo C Pinto Jr (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.hemophiliany.com

    Where can I find the form 990 for Hemophilia Association Of New York Inc?

    The Hemophilia Association Of New York Inc’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.hemophiliany.com

    Learn more at the official website: www.hemophiliany.com

    Mission Statement of Hemophilia Association Of New York Inc

    Hemophilia Association of New York Inc, a leading organization, is dedicated to providing information, advocacy, direct assistance, and funding for research to improve treatments and potentially find cures for bleeding disorders. The association's primary mission is to support individuals and families affected by these conditions, offering resources, counseling, out-referrals, education, and advocacy. During the fiscal year 2021-22, the organization served 787 individuals with bleeding disorders and their families, providing emergency financial assistance and specific interventions to 8% of the clients, amounting to $53,515.

    The Hemophilia Association of New York Inc also conducts group meetings, educational events, and publishes newsletters to educate and inform the community about bleeding disorders and related issues, including mental health. During the 2020-21 period, 52.7% of the organization's staff time and effort were dedicated to providing information and assistance to the bleeding disorders community. The association does not charge membership fees or admission for attending its programs, demonstrating its commitment to serving the community without financial barriers. By offering various services, the Hemophilia Association of New York Inc aims to improve the lives of individuals with bleeding disorders and their families, providing them with the resources and support they need to navigate their challenges.

    Impact

    This information is meant to be a general summary of Hemophilia Association Of New York Inc. Please take the time to review official sources before making any decisions based upon the content provided here.




    Wednesday, July 24, 2024

    The Hemophilia Association Of New York Inc has a significant impact on the bleeding disorders community in New York City, Long Island, and the Hudson Valley. They provide vital information, advocacy, and direct assistance to people with bleeding disorders, serving 787 individuals and their families in the fiscal year 21/22 alone.

    Their patient services include financial assistance, problem resolution, counseling, education, advocacy, and the distribution of informational and educational materials. In addition, the association hosts group meetings, conferences, symposiums, and publishes newsletters and educational pamphlets to support the community.

    Furthermore, the association is a leading supporter of research to improve treatments and fund cures for hemophilia and related conditions, contributing to advancements in the field. Through their multifaceted approach, the Hemophilia Association Of New York Inc plays a crucial role in enhancing the quality of life and well-being of those affected by bleeding disorders in the region.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $-89,315
  • Program Service Revenue: $0
  • Gross Receipts: $1,019,012

    • Assets and Liabilities:
  • Total Assets: $3,657,906
  • Total Liabilities: $156,971
  • Net Assets: $3,500,935
  • Organization Details

    Founding Year

    1958

    Principal Officer

    Linda Mugford

    Main Address

    131 WEST 33RD STREET 11D, NEW YORK, NY, 10001

    NTEE Category

    Code: G030 - Disease

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