Overview
What is Hereditary Neuropathy Foundation Inc?
Hereditary Neuropathy Foundation Inc, based in New York City, New York, is a dedicated nonprofit organization. Its primary mission involves supporting projects through the Therapeutic Research in Accelerated Discovery (TRIAD) program. This collaborative initiative brings together academia, government, and industry leaders in healthcare, biotech, and pharmaceuticals to develop treatments and potential cures for Charcot-Marie-Tooth (CMT) disease. HNF's patient registry, Global Registry for Inherited Neuropathies (GRIN), collects comprehensive natural history studies for all CMT subtypes, integrating both patient-reported and clinical data, which is essential for drug discovery. Furthermore, education and support of the CMT community are key components of HNF's mission, aiming to improve the quality of life for those affected by the condition. With a team of just two individuals, HNF Inc. demonstrates a strong commitment to its cause.
Official website here: www.hnf-cure.org
Is Hereditary Neuropathy Foundation Inc legitimate?
Hereditary Neuropathy Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Hereditary Neuropathy Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $60,000
Professional Fundraising Fees: $0
Other Salaries and Wages: $53,077
For more financial information, click here
Official website here: www.hnf-cure.org
What is the mission statement of Hereditary Neuropathy Foundation Inc?
The Hereditary Neuropathy Foundation Inc is a non-profit organization dedicated to supporting projects through the Therapeutic Research in Accelerated Discovery (TRIAD) program. This collaborative effort involves academia, government, and industry to develop treatments for Charcot-Marie-Tooth (CMT), a group of inherited neurological disorders. The TRIAD program spans the drug discovery, development, and diagnostics continuum, with education and support of the CMT community as a key component of the foundation's mission. The aim is to improve the quality of life for individuals affected by CMT.
Official website here: www.hnf-cure.org
Who is the CEO of Hereditary Neuropathy Foundation Inc?
Allison Moore is the Founder And Chief Executiv of Hereditary Neuropathy Foundation Inc.
Official website here: www.hnf-cure.org
What is the revenue of Hereditary Neuropathy Foundation Inc?
Hereditary Neuropathy Foundation Inc's revenue in 2022 was $1,259,879.
Official website here: www.hnf-cure.org
Who are the executives of Hereditary Neuropathy Foundation Inc and what are their salaries?
The average compensation at Hereditary Neuropathy Foundation Inc during 2022 was $56,538. There are 2 employees and 12 volunteers at Hereditary Neuropathy Foundation Inc.
Here are 15 key members and their salaries:
- Courtney Hollett (Executive Director)
- Allison Moore (Founder And Chief Executiv) [Trustee/Director]
- Joy Andal Kaye (Board Member) [Trustee/Director]
- Kara Sprague (Treasurer) [Trustee/Director]
- Matthew Downing (Chairman) [Trustee/Director]
- Debi Houilares (Board Member) [Trustee/Director]
- Kerin Reilly (Board Member) [Trustee/Director]
- Gretchen Cappiello (Board Member) [Trustee/Director]
- Deborah Newcomb (Board Member) [Trustee/Director]
- Brooke Warren (Secretary) [Trustee/Director]
- Robert Kauffman (Board Member) [Trustee/Director]
- Dominic Hadeed (Board Member) [Trustee/Director]
- Sital Bhavsar (Board Member) [Trustee/Director]
- Poya Ghasri (Board Member) [Trustee/Director]
- Natalia Salejko (Board Member) [Trustee/Director]
Official website here: www.hnf-cure.org
Where can I find the form 990 for Hereditary Neuropathy Foundation Inc?
The Hereditary Neuropathy Foundation Inc’s most recent form 990 was submitted in 2022 and can be accessed here
Official website here: www.hnf-cure.org
Learn more at the official website: www.hnf-cure.org
Mission Statement of Hereditary Neuropathy Foundation Inc
The Hereditary Neuropathy Foundation Inc, a non-profit organization, is committed to supporting projects through the Therapeutic Research in Accelerated Discovery (TRIAD) program. This program is a collaborative effort involving academia, government, and industry, with the primary goal of developing treatments for Charcot-Marie-Tooth (CMT), a hereditary neuropathy. The TRIAD program involves numerous groups spanning the drug discovery, drug development, and diagnostics continuum.
Beyond this, the mission of Hereditary Neuropathy Foundation Inc extends to providing education and support for the CMT community. This aim is crucial in improving the quality of life for those affected by this condition. The foundation's efforts in this regard involve more than just providing medical solutions. It is also dedicated to empowering and uplifting the CMT community, ensuring they have the resources and support they need to navigate their daily lives more effectively.
Impact
This information is meant to be a general summary of Hereditary Neuropathy Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Thursday, August 15, 2024
Hereditary Neuropathy Foundation Inc's impact is significant in advancing research and development efforts to find treatments and cures for Charcot-Marie-Tooth (CMT) disease. Through the Therapeutic Research in Accelerated Discovery (TRIAD) program, HNF actively collaborates with academia, government, and industry to fund research grants and venture philanthropy initiatives that support drug discovery, translation, and clinical trial readiness for CMT. By partnering with academic institutions, research organizations, and industry leaders, HNF aims to accelerate the development of therapies for this rare condition.
Additionally, HNF's Global Registry for Inherited Neuropathies (GRIN) plays a crucial role in collecting comprehensive natural history data on all subtypes of CMT. This database is essential for both patient care and drug discovery processes, as it collects both patient-reported and clinical data. With a focus on education and support for the CMT community to enhance quality of life, HNF is making a tangible difference in the lives of individuals affected by this condition.
Overall, Hereditary Neuropathy Foundation Inc's dedication to advancing medical research through its TRIAD program and its commitment to supporting individuals with CMT through initiatives like GRIN underscores its impactful contribution to the field of rare disease treatment and patient care.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2022.
- Assets and Liabilities:
Organization Details
Founding Year
2001
Phone
(212) 722-8396
Principal Officer
Allison Moore
Main Address
1641 3RD AVE 28K, NEW YORK CITY, NY, 10128
Website
www.hnf-cure.org
NTEE Category
Code: H129 - Medical research
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