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Cystic Fibrosis Foundation

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 131930701 ✦ Bethesda, MD ✦ Designated as a 501(c)(3)

Overview

What is Cystic Fibrosis Foundation?

The Cystic Fibrosis Foundation is a leading nonprofit organization, headquartered with a mission to eradicate Cystic Fibrosis (CF) and improve the lives of those diagnosed with this condition. They are dedicated to funding research to find a cure for CF and providing essential support to individuals and families dealing with the challenges it presents. With a worldwide reputation as a pioneer in CF research, the Cystic Fibrosis Foundation's efforts are geared towards offering hope and opportunities for a full, satisfying life to all those living with CF.


Official website here: www.cff.org

Is Cystic Fibrosis Foundation legitimate?

Cystic Fibrosis Foundation is a legitimate nonprofit organization registered as a 501(c)(3) entity. Cystic Fibrosis Foundation submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $6,916,442
Professional Fundraising Fees: $176,400
Other Salaries and Wages: $84,064,519

For more financial information, click here


Official website here: www.cff.org

What is the mission statement of Cystic Fibrosis Foundation?

The Cystic Fibrosis Foundation is dedicated to finding a cure for cystic fibrosis (CF) and enabling those diagnosed with the condition to live long, fulfilling lives. As a global leader in CF research, the foundation is committed to advancing treatments and ultimately finding a cure for this disease. The organization also provides essential support to individuals and families dealing with the challenges of CF, ensuring they receive the care and resources they need to navigate their journey. Through its mission, the Cystic Fibrosis Foundation aims to make a significant impact on the lives of those affected by this condition.


Official website here: www.cff.org

Who is the CEO of Cystic Fibrosis Foundation?

Michael P Boyle Md is the President & Ceo of Cystic Fibrosis Foundation. The CEO's salary of Cystic Fibrosis Foundation is $393,943 and their total compensation is $456,111.


Official website here: www.cff.org

What is the revenue of Cystic Fibrosis Foundation?

Cystic Fibrosis Foundation's revenue in 2022 was $248,630,352.


Official website here: www.cff.org

Who are the executives of Cystic Fibrosis Foundation and what are their salaries?

The average compensation at Cystic Fibrosis Foundation during 2022 was $102,226. There are 890 employees and 54,572 volunteers at Cystic Fibrosis Foundation.

Here are 32 key members and their salaries (Cystic Fibrosis Foundation's CEO's salary is $393,943 and their total compensation is $456,111):

    Jack Mahler Md (Chief Investment Officer)
  • Compensation: $2,463,847
  • Related: $0
  • Other: $230,935

    • Michael P Boyle Md (President & Ceo) [Trustee/Director]
  • Compensation: $950,256
  • Related: $0
  • Other: $399,526

    • Earl Lee (Managing Director, Investments)
  • Compensation: $1,023,013
  • Related: $0
  • Other: $234,362

    • Eric Koehrsen (Managing Director, Investments)
  • Compensation: $921,034
  • Related: $0
  • Other: $248,237

    • Bruce Marshall Md (Evp & Chief Medical Officer)
  • Compensation: $692,205
  • Related: $0
  • Other: $104,713

    • John P Clancy Md (Svp, Clinical Research)
  • Compensation: $551,336
  • Related: $0
  • Other: $154,612

    • Mary Dwight (Chief Policy & Advocacy Officer)
  • Compensation: $543,012
  • Related: $0
  • Other: $129,909

    • Marybeth Mcmahon (Chief Of Staff)
  • Compensation: $552,564
  • Related: $0
  • Other: $92,779

    • Anthony Durmowicz Md (Vp, Clinical Development)
  • Compensation: $574,023
  • Related: $0
  • Other: $64,672

    • Irena Barisic (Evp, Cfao, Asst. Sec. & Asst. Trsr.)
  • Compensation: $557,940
  • Related: $0
  • Other: $71,381

    • William Skach Md (Evp & Chief Scientific Officer)
  • Compensation: $455,835
  • Related: $0
  • Other: $61,418

    • Preston Campbell Md (Former Ceo & Strategic Advisor)
  • Compensation: $393,943
  • Related: $0
  • Other: $62,168

    • Michael B Cavadel (Svp, Chief Legal Officer, & Sec.)
  • Compensation: $194,080
  • Related: $0
  • Other: $28,360

    • Chris Gegelys (Former Chief Legal Officer)
  • Compensation: $176,462
  • Related: $0
  • Other: $0

    • Marc S Ginsky (Former Coo)
  • Compensation: $160,000
  • Related: $0
  • Other: $0

    • Vera H Twigg (Former Evp, Cfo)
  • Compensation: $103,286
  • Related: $0
  • Other: $0

    • Louis A Defalco (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Carole B Griego Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Catherine C Mcloud (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Chad T Moore (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • David A Mount (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Robert H Niehaus (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Eric R Olson Phd (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dominic J Caruso (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Paul A Motenko (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Teresa L Elder (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Eric Schneider Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Steven Shak Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John S Weinberg (Executive Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Paul W Whetsell (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kc Bryan White (Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jessica H Boyd Md (Trustee)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.cff.org

    Where can I find the form 990 for Cystic Fibrosis Foundation?

    The Cystic Fibrosis Foundation’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.cff.org

    Learn more at the official website: www.cff.org

    Mission Statement of Cystic Fibrosis Foundation

    The Cystic Fibrosis Foundation, a renowned organization, is committed to curing cystic fibrosis (CF) and enabling all those afflicted by this condition to live long, fulfilling lives. This mission makes the Foundation a global leader in the relentless pursuit of a cure for CF. It offers essential support to patients and their families, assisting them in navigating the challenges that come with managing this disease.

    The Cystic Fibrosis Foundation's vision is twofold: eradicating CF through innovative research and ensuring that those with the condition can thrive. By funding cutting-edge research, the Foundation is at the forefront of the scientific community's efforts to find a cure for CF. Simultaneously, it provides crucial resources and services to patients and their families, helping them cope with the daily struggles of living with the disease.

    The Foundation's unwavering commitment to its mission has made it a beacon of hope for the CF community. It is a world-class organization that not only strives to find a cure but also offers vital assistance to patients and their families. By combining groundbreaking research with compassionate care, the Cystic Fibrosis Foundation remains a steadfast ally in the fight against CF.

    Impact

    This information is meant to be a general summary of Cystic Fibrosis Foundation. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    The Cystic Fibrosis Foundation's impact is centered around curing cystic fibrosis and providing all people with CF the opportunity to lead long, fulfilling lives. As a world leader in the search for a cure, the foundation supports patients and families in managing the challenges of CF. Its mission is to eliminate this disease and improve the quality of life for those affected by it.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $128,066,687
  • Program Service Revenue: $2,555,705
  • Gross Receipts: $1,350,372,542

    • Assets and Liabilities:
  • Total Assets: $4,735,058,992
  • Total Liabilities: $291,339,976
  • Net Assets: $4,443,719,016
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    SCIENTIFIC CONFERENCE

    Revenue

    $2,290,846

    DATA SAFETY MONITORING

    Revenue

    $264,859

    Organization Details

    Founding Year

    1955

    Principal Officer

    Michael P Boyle Md

    Main Address

    4550 MONTGOMERY AVENUE 1100N, BETHESDA, MD, 20814

    NTEE Category

    Code: G20 - Disease

    If you are a representative of Cystic Fibrosis Foundation and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.