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Muscular Dystrophy Association Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 131665552 ✦ Chicago, IL ✦ Designated as a 501(c)(3)

Overview

What is Muscular Dystrophy Association Inc?

The Muscular Dystrophy Association Inc, based in Chicago, Illinois, is a leading nonprofit organization that empowers individuals living with muscular dystrophy, ALS, and related neuromuscular diseases. With a team of 231 employees, they have committed over $1 billion to research, aiming to discover therapies and cures. Their network of multidisciplinary clinics at top medical institutions offers best-in-class, comprehensive care from integrated healthcare specialists. They support families through one-on-one specialized assistance, educational materials, and community resource referrals. Annually, thousands of children and young adults learn life skills and gain independence at camps, staffed with healthcare professionals and trained volunteers. MDA's mission is to help people live longer, more independent lives.


Official website here: www.mda.org

Is Muscular Dystrophy Association Inc legitimate?

Muscular Dystrophy Association Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Muscular Dystrophy Association Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $1,168,200
Professional Fundraising Fees: $0
Other Salaries and Wages: $17,112,416

For more financial information, click here


Official website here: www.mda.org

What is the mission statement of Muscular Dystrophy Association Inc?

The Muscular Dystrophy Association (MDA) is a leading health organization in the United States, dedicated to improving the lives of individuals diagnosed with muscular dystrophy, ALS, and related neuromuscular diseases. For over seven decades, MDA has spearheaded efforts to accelerate research, advance care, and advocate for families affected by these conditions. Their mission is to empower those they serve to live longer, more independent lives. By providing essential resources, emotional support, and access to healthcare, MDA aims to enhance the overall well-being of those affected by these diseases. Through collaborations with various organizations, they also address healthcare access, long-term care, and other related issues.


Official website here: www.mda.org

Who is the CEO of Muscular Dystrophy Association Inc?

Dr Donald S Wood is the Principal Officer of Muscular Dystrophy Association Inc. The CEO's salary of Muscular Dystrophy Association Inc is $522,923 and their total compensation is $549,560.


Official website here: www.mda.org

What is the revenue of Muscular Dystrophy Association Inc?

Muscular Dystrophy Association Inc's revenue in 2022 was $63,227,837.


Official website here: www.mda.org

Who are the executives of Muscular Dystrophy Association Inc and what are their salaries?

The average compensation at Muscular Dystrophy Association Inc during 2022 was $79,137. There are 231 employees and 961 volunteers at Muscular Dystrophy Association Inc.

Here are 28 key members and their salaries (Muscular Dystrophy Association Inc's CEO's salary is $522,923 and their total compensation is $549,560):

    Donald Wood (President & Ceo)
  • Compensation: $522,923
  • Related: $0
  • Other: $26,637

    • Michael Kennedy (Treasurer & Cfo)
  • Compensation: $331,534
  • Related: $0
  • Other: $61,822

    • Kristine Welker (Chief Of Staff)
  • Compensation: $304,472
  • Related: $0
  • Other: $71,294

    • Sharon Hesterlee (Chief Research Officer)
  • Compensation: $229,015
  • Related: $0
  • Other: $60,219

    • Henry Lanman (Sec. & Chief Legal Officer)
  • Compensation: $188,632
  • Related: $0
  • Other: $36,652

    • Brian Beirne (Vp Of Multi-Channel Market)
  • Compensation: $214,346
  • Related: $0
  • Other: $6,820

    • Monica Pappas (Vp, Technology)
  • Compensation: $188,558
  • Related: $0
  • Other: $27,594

    • Angela Lek (Vp, Research)
  • Compensation: $186,779
  • Related: $0
  • Other: $10,511

    • Anjan Aralihalli (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Ankur Ghia (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Benjamin Cumbo Iii (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Charles D Schoor Esq (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Chris Rosa (Vice Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dan Fries (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Elizabeth Mcnally Md Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Eugene Williams (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Governor Brad Henry (Chairman) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Hon Robert E Pipia (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jennifer Gottlieb (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Costantino (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John E Howell (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Lilian Wu Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Louis Kunkel Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mark Smith (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Matt Plummer (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Nancy Kindelan (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Steve Farella (Outgoing Chairman) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Victor Wright (Director (Decd. Dec 2022))
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.mda.org

    Where can I find the form 990 for Muscular Dystrophy Association Inc?

    The Muscular Dystrophy Association Inc’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.mda.org

    Learn more at the official website: www.mda.org

    Mission Statement of Muscular Dystrophy Association Inc

    Muscular Dystrophy Association Inc, also known as MDA, is a leading voluntary health organization in the United States dedicated to improving the lives of those affected by muscular dystrophy, ALS, and related neuromuscular diseases. With over 70 years of experience, MDA has been at the forefront of accelerating research, advancing care, and advocating for the support of affected families.

    The mission of Muscular Dystrophy Association Inc is to empower the individuals it serves to live longer, more independent lives. By providing resources, support, and research, MDA strives to help those living with muscular dystrophy and related conditions to overcome the challenges they face. Through its advocacy efforts, MDA works to raise awareness and secure essential resources for families, ensuring they have access to the care and services they need.

    MDA's commitment to research is evident through its role as a trailblazer in the field. By funding groundbreaking studies and collaborating with researchers, MDA is driving the development of innovative treatments and therapies to help slow the progression of these diseases and ultimately find a cure. In addition to its research efforts, MDA offers a range of supportive services to help individuals and families cope with the daily challenges of living with neuromuscular diseases. From medical care to educational resources and counseling, MDA is there to provide the support and guidance needed to navigate the journey.

    Impact

    This information is meant to be a general summary of Muscular Dystrophy Association Inc. Please take the time to review official sources before making any decisions based upon the content provided here.




    Thursday, August 15, 2024

    Muscular Dystrophy Association Inc is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and related neuromuscular diseases. For over 70 years, MDA has been dedicated to empowering individuals in these communities to live longer, more independent lives. MDA's impact is seen through its commitment to research, care, and advocacy.

    MDA is a significant source of funding for neuromuscular disease research, having invested over $1 billion to accelerate the discovery of therapies and cures. The organization supports a vast network of multidisciplinary clinics at more than 150 top medical institutions. These clinics offer best-in-class, comprehensive care from integrated teams of healthcare specialists, ensuring coordinated individual care to fit the specific needs of each patient.

    Additionally, MDA provides valuable one-on-one specialized support to the community, educational conferences, events, and materials for families and healthcare providers. Thousands of children and young adults also benefit from MDA's summer camp and recreational programs, where they can learn vital life skills and gain independence at no cost to their families.

    Overall, Muscular Dystrophy Association Inc's impactful work in research, care, and advocacy is crucial in empowering individuals living with neuromuscular diseases and improving their quality of life.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $3,244,992
  • Program Service Revenue: $0
  • Gross Receipts: $68,508,927

    • Assets and Liabilities:
  • Total Assets: $64,403,820
  • Total Liabilities: $57,595,156
  • Net Assets: $6,808,664
  • Organization Details

    Founding Year

    1950

    Principal Officer

    Dr Donald S Wood

    Main Address

    161 N CLARK ST 3550, CHICAGO, IL, 60601

    NTEE Category

    Code: G50 - Disease

    If you are a representative of Muscular Dystrophy Association Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.