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Dystrophic Epidermolysis Bullosa Research Association Of America

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 112519726 ✦ New york, NY ✦ Designated as a 501(c)(3)

Overview

What is Dystrophic Epidermolysis Bullosa Research Association Of America?

The Dystrophic Epidermolysis Bullosa Research Association of America is a nonprofit organization headquartered in New York City, specifically at 75 Broad Street Suite 300. Their main mission is to raise awareness and educate both the public and healthcare professionals about Dystrophic Epidermolysis Bullosa (EB), a genetic condition characterized by chronic, painful blistering. The skin's fragility, often present at birth, can lead to blistering both internally and externally, affecting individuals of various races and ethnic groups. With no current cure or treatment, besides daily wound care and bandaging, the organization is dedicated to funding research aimed at discovering potential treatments and a cure. As of now, the organization has a workforce of 9 individuals committed to their cause.


Official website here: www.debra.org

Is Dystrophic Epidermolysis Bullosa Research Association Of America legitimate?

Dystrophic Epidermolysis Bullosa Research Association Of America is a legitimate nonprofit organization registered as a 501(c)(3) entity. Dystrophic Epidermolysis Bullosa Research Association Of America submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $260,635
Professional Fundraising Fees: $0
Other Salaries and Wages: $506,473

For more financial information, click here


Official website here: www.debra.org

What is the mission statement of Dystrophic Epidermolysis Bullosa Research Association Of America?

The Dystrophic Epidermolysis Bullosa Research Association of America is committed to finding a cure for Dystrophic Epidermolysis Bullosa (EB), a genetic disorder that affects 1 out of every 50,000 live births in the United States. This disease is characterized by chronically painful blistering of the skin and mucous membranes, making them exceptionally fragile to even the slightest touch. Affecting individuals of all races and ethnic groups, EB can occur due to spontaneous genetic mutations with no family history. Currently, there is no known cure or treatment for EB beyond daily wound care and bandaging. The organization is making strides in genetic research towards potential treatments and a future cure.


Official website here: www.debra.org

Who is the CEO of Dystrophic Epidermolysis Bullosa Research Association Of America?

Brett Kopelan is the Executive Director of Dystrophic Epidermolysis Bullosa Research Association Of America.


Official website here: www.debra.org

What is the revenue of Dystrophic Epidermolysis Bullosa Research Association Of America?

Dystrophic Epidermolysis Bullosa Research Association Of America's revenue in 2022 was $3,356,992.


Official website here: www.debra.org

Who are the executives of Dystrophic Epidermolysis Bullosa Research Association Of America and what are their salaries?

The average compensation at Dystrophic Epidermolysis Bullosa Research Association Of America during 2022 was $85,234. There are 9 employees at Dystrophic Epidermolysis Bullosa Research Association Of America.

Here are 12 key members and their salaries:

    Brett Kopelan (Executive Director)
  • Compensation: $260,635
  • Related: $0
  • Other: $0

    • J Alec Alexander (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Andrew Tavani (Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Richard Gallagher (Chair Emeritus) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Robert Ryan Ph D (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Lee (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • William Cornman (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • James Wetrich (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Leslie Rader (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Joui Uitto Md Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Angela Christiano Phd (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Thomas Trimarchi (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.debra.org

    Where can I find the form 990 for Dystrophic Epidermolysis Bullosa Research Association Of America?

    The Dystrophic Epidermolysis Bullosa Research Association Of America’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.debra.org

    Learn more at the official website: www.debra.org

    Mission Statement of Dystrophic Epidermolysis Bullosa Research Association Of America

    Dystrophic Epidermolysis Bullosa Research Association of America (DERA) is committed to finding a cure for Dystrophic Epidermolysis Bullosa (EB), a genetic disease affecting one in every 50,000 live births in the United States. Characterized by chronic, painful blistering, EB affects both men and women of various races and ethnicities, sometimes without a family history. Although there is no current cure or treatment for EB, except for daily wound care and bandaging, genetic research is making significant progress towards treatments and a potential cure. DERA, therefore, is dedicated to supporting this research to alleviate the suffering of those affected by EB.

    Impact

    This information is meant to be a general summary of Dystrophic Epidermolysis Bullosa Research Association Of America. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    The Dystrophic Epidermolysis Bullosa Research Association Of America is dedicated to finding a cure for Epidermolysis Bullosa (EB), a rare genetic disease that affects 1 out of every 50,000 live births in the United States. EB is characterized by chronic, painful blistering of the skin and mucous membranes, making the slightest touch a cause for severe blistering both inside and outside the body. Despite the lack of a cure or specific treatment, DEBRA is actively involved in genetic research to progress towards finding treatments and a cure for EB. Their impact includes public and professional education efforts to raise awareness about EB and support research initiatives aimed at alleviating the suffering of individuals affected by this disease.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $722
  • Program Service Revenue: $0
  • Gross Receipts: $3,502,081

    • Assets and Liabilities:
  • Total Assets: $2,090,353
  • Total Liabilities: $293,969
  • Net Assets: $1,796,384
  • Organization Details

    Founding Year

    1979

    Principal Officer

    Brett Kopelan

    Main Address

    75 BROAD ST SUITE 300, NEW YORK, NY, 10004

    NTEE Category

    Code: G40 - Disease

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