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Choroideremia Research Foundation Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 043511754 ✦ Springfield, MA ✦ Designated as a 501(c)(3)

Overview

What is Choroideremia Research Foundation Inc?

Choroideremia Research Foundation Inc, located at 23 E BRUNDRETH STREET in Springfield, Massachusetts, is a nonprofit organization committed to addressing Choroideremia, a hereditary retinal-degenerative disease leading to blindness. Their primary mission involves gathering funds for extensive scientific research aimed at discovering a treatment or a cure. Furthermore, they offer educational programs for individuals affected by the disease and the general public, fostering awareness and understanding. With a team of eight dedicated employees, their work extends beyond research, encompassing advocacy initiatives that aim to support and empower those touched by this condition.


Official website here: www.curechm.org

Is Choroideremia Research Foundation Inc legitimate?

Choroideremia Research Foundation Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Choroideremia Research Foundation Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $0
Professional Fundraising Fees: $0
Other Salaries and Wages: $161,146

For more financial information, click here


Official website here: www.curechm.org

What is the mission statement of Choroideremia Research Foundation Inc?

The Choroideremia Research Foundation Inc is dedicated to funding scientific research with the goal of discovering a treatment or cure for Choroideremia, a hereditary retinal-degenerative disease that leads to blindness. They also aim to educate individuals affected by the disease and the general public about this condition. Their mission encompasses providing grants for research and initiating programs focused on patient and family education and advocacy.


Official website here: www.curechm.org

Who is the CEO of Choroideremia Research Foundation Inc?

Kathi Wagner is the President of Choroideremia Research Foundation Inc.


Official website here: www.curechm.org

What is the revenue of Choroideremia Research Foundation Inc?

Choroideremia Research Foundation Inc's revenue in 2022 was $664,881.


Official website here: www.curechm.org

Who are the executives of Choroideremia Research Foundation Inc and what are their salaries?

The average compensation at Choroideremia Research Foundation Inc during 2022 was $20,143. There are 8 employees at Choroideremia Research Foundation Inc.

Here are 19 key members and their salaries:

    Neal Bench (President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Trott (1St Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Michael Mullen (2Nd Vice President) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Tara Cassidy-Driscoll (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Brian Mayer (Secretary) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Michael Laengsfeld (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jason Mckinney (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dr Christopher Moen (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • John Oster (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dan Peterson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Tracey Pretorius (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Angela Ricketts (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dr John Ross Rizzo (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Craig Rowley (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Jon Salois (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kayla Schiller (Treasurer) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Bob Hiller (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Dr Stephanie Vetere Sims (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Kathi Wagner (Executive Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.curechm.org

    Where can I find the form 990 for Choroideremia Research Foundation Inc?

    The Choroideremia Research Foundation Inc’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.curechm.org

    Learn more at the official website: www.curechm.org

    Mission Statement of Choroideremia Research Foundation Inc

    The Choroideremia Research Foundation Inc is committed to raising funds for scientific research aimed at discovering a treatment or cure for Choroideremia, a hereditary retinal-degenerative disease that leads to blindness. Beyond funding research, this organization also focuses on educating individuals affected by the disease and the general public about Choroideremia. Their mission encompasses providing grants for research, as well as advocacy and educational programs to support those impacted by this condition.

    Impact

    This information is meant to be a general summary of Choroideremia Research Foundation Inc. Please take the time to review official sources before making any decisions based upon the content provided here.




    Wednesday, July 24, 2024

    Choroideremia Research Foundation Inc's impact is significant as it focuses on raising funds to support scientific research aimed at finding a treatment or cure for Choroideremia, a hereditary retinal-degenerative disease that leads to blindness. By providing grants for research and education programs, the foundation plays a crucial role in advancing knowledge about the disease and supporting those affected by it. Through its efforts, the foundation contributes to the development of potential breakthroughs in the field of Choroideremia research, offering hope to patients and their families.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $11,682
  • Program Service Revenue: $707
  • Gross Receipts: $664,881

    • Assets and Liabilities:
  • Total Assets: $985,906
  • Total Liabilities: $0
  • Net Assets: $985,906
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    Miscellaneous

    Revenue

    $707

    Organization Details

    Founding Year

    2000

    Principal Officer

    Kathi Wagner

    Main Address

    23 E BRUNDRETH STREET, SPRINGFIELD, MA, 011092110

    NTEE Category

    Code: U05 - Science research

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