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Clinical Data Interchange Standards Consortium Inc

Learn about this cause: Is it Legit? Do I like the mission? What is the CEO's salary?

EIN: 043503931 ✦ Austin, TX ✦ Designated as a 501(c)(3)

Overview

What is Clinical Data Interchange Standards Consortium Inc?

Clinical Data Interchange Standards Consortium Inc (CDISC) is a nonprofit organization situated in Austin, Texas. Their primary mission is to develop and uphold globally applicable, platform-independent data standards that foster information system interoperability, thereby enhancing medical research and related healthcare sectors. As of now, CDISC has established therapeutic area standards for over 44 disease areas and continues to revise and expand these standards when necessary. In 2022, significant new versions of key CDISC standards, such as SEND, CDASH, SDTM, SDTMIG, ADAM, Controlled Terminology, and Data Exchange Standards, were developed. The Trial Master File Reference Model (TMF RM) standard also became part of CDISC's suite of standards. CDISC frequently updates its library with new features and versions of the standards. Furthermore, the CDISC Core Rule Engine and Rule Editor software has been made available as open-source software. CDISC also coordinates numerous hackathons and workshops to promote, support, and occasionally sponsor open-source software focused on implementing or developing CDISC standards, driving innovation in the field. With a workforce of 47 employees, CDISC is dedicated to improving medical research and related healthcare areas through data standards.


Official website here: www.cdisc.org

Is Clinical Data Interchange Standards Consortium Inc legitimate?

Clinical Data Interchange Standards Consortium Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Clinical Data Interchange Standards Consortium Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.

Here are some key statistics you may want to consider:

Executive Compensation: $1,346,011
Professional Fundraising Fees: $0
Other Salaries and Wages: $3,956,514

For more financial information, click here


Official website here: www.cdisc.org

What is the mission statement of Clinical Data Interchange Standards Consortium Inc?

Clinical Data Interchange Standards Consortium Inc's mission is centered around developing and supporting global, platform-independent data standards. These standards aim to enable information system interoperability, thereby improving medical research and related areas of healthcare. To date, CDISC has developed therapeutic area standards for over 44 disease areas and continues to update and expand them. In 2022, significant new versions of the CDISC foundationals standards, such as SEND, CDASH, SDTM, SDTMIG, ADAM, controlled terminology, and data exchange standards, are being developed. The Trial Master File Reference Model (TMF RM) standard has been incorporated into CDISC's suite of standards. CDISC has also released updates to its library, adding new features and versions of the standards. Furthermore, the CDISC Core Rule Engine and Rule Editor software have been released as open source, with the team making ongoing progress. The CDISC Digital Data Flow Project has released a reference architecture as a standard and is working on version 3. CDISC also promotes, supports, and sometimes sponsors open-source software focused on implementing or developing the CDISC standards to drive innovation.


Official website here: www.cdisc.org

Who is the CEO of Clinical Data Interchange Standards Consortium Inc?

David Evans is the President & Ceo of Clinical Data Interchange Standards Consortium Inc. The CEO's salary of Clinical Data Interchange Standards Consortium Inc is $410,719 and their total compensation is $524,972.


Official website here: www.cdisc.org

What is the revenue of Clinical Data Interchange Standards Consortium Inc?

Clinical Data Interchange Standards Consortium Inc's revenue in 2022 was $8,105,543.


Official website here: www.cdisc.org

Who are the executives of Clinical Data Interchange Standards Consortium Inc and what are their salaries?

The average compensation at Clinical Data Interchange Standards Consortium Inc during 2022 was $112,820. There are 47 employees and 950 volunteers at Clinical Data Interchange Standards Consortium Inc.

Here are 23 key members and their salaries (Clinical Data Interchange Standards Consortium Inc's CEO's salary is $410,719 and their total compensation is $524,972):

    David Evans (President & Ceo)
  • Compensation: $410,719
  • Related: $0
  • Other: $114,253

    • Peter Van Reusel (Chief Standards Officer)
  • Compensation: $300,553
  • Related: $0
  • Other: $0

    • Rhonda Yvonne Facile (Vp, Development & Partnerships)
  • Compensation: $224,310
  • Related: $0
  • Other: $49,928

    • Samuel Hume (Vp, Data Science)
  • Compensation: $228,330
  • Related: $0
  • Other: $45,196

    • Sheila Leaman (Vp, Global Relations)
  • Compensation: $222,968
  • Related: $0
  • Other: $50,306

    • Beth Leroy Nieto (Head Of Standards Development)
  • Compensation: $168,200
  • Related: $0
  • Other: $35,375

    • Amy Palmer (Head Of Standards Development)
  • Compensation: $168,200
  • Related: $0
  • Other: $32,790

    • Anthony Chow (Head Of Data Science)
  • Compensation: $167,258
  • Related: $0
  • Other: $26,258

    • Charles Shadle (Head Of Data Science Operations)
  • Compensation: $166,968
  • Related: $0
  • Other: $25,541

    • Pam Howard (Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Erik Pulkstenis (Chair-Elect) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Margaret Keegan (Past-Chair) [Trustee/Director]
  • Compensation: $0
  • Related: $0
  • Other: $0

    • David Hardison (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Steve Rosenberg (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Chris Decker (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Pandu Kulkarni (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Brooke Hinkson (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Hiroshi Masumoto (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Wenjun Bao (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Mihoko Okada (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Christina Reith (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Karen Curran (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0

    • Lisa Lin (Director)
  • Compensation: $0
  • Related: $0
  • Other: $0


  • Official website here: www.cdisc.org

    Where can I find the form 990 for Clinical Data Interchange Standards Consortium Inc?

    The Clinical Data Interchange Standards Consortium Inc’s most recent form 990 was submitted in 2022 and can be accessed here


    Official website here: www.cdisc.org

    Learn more at the official website: www.cdisc.org

    Mission Statement of Clinical Data Interchange Standards Consortium Inc

    Clinical Data Interchange Standards Consortium Inc, often referred to as CDISC, is dedicated to a mission that seeks to advance global medical research and related healthcare sectors. The organization's primary objective is to develop and support platform-independent data standards, which enable information system interoperability. The ultimate goal is to improve the efficiency and effectiveness of medical research by facilitating the seamless exchange of data between various systems.

    CDISC has made significant strides in this area, having developed therapeutic area standards for over 44 different disease areas. The organization continues to update and expand these standards as necessary. In 2022, CDISC released significant new versions of its foundational standards, including SEND, CDASH, SDTM, SDTMIG, ADAM, Controlled Terminology, and Data Exchange Standards. The Trial Master File Reference Model (TMF RM) standard has also been incorporated into CDISC's suite of standards.

    CDISC has also released updates to its library, adding new features and new versions of the standards. Furthermore, CDISC has made its core rule engine and rule editor software available as open source, with the team continuing to make progress in this area. In addition, CDISC has released a reference architecture as a standard for the Digital Data Flow Project and is currently working on Version 3.

    CDISC promotes and supports open-source software focused on implementing or developing its standards to drive innovation. The organization regularly conducts hackathons and workshops to achieve this goal. By fostering collaboration and the development of open-source tools, CDISC aims to make its data standards more accessible and widely adopted, ultimately contributing to the advancement of medical research and healthcare.

    Impact

    This information is meant to be a general summary of Clinical Data Interchange Standards Consortium Inc. Please take the time to review official sources before making any decisions based upon the content provided here.




    Saturday, July 20, 2024

    Clinical Data Interchange Standards Consortium Inc's impact lies in its development and support of global, platform-independent data standards that enable information system interoperability to improve medical research and related areas of healthcare. CDISC has developed therapeutic area standards for over 44 disease areas, continually updating and expanding these standards. In 2022, CDISC is actively working on new versions of foundational standards such as SEND, CDASH, SDTM, SDTMIG, ADAM, controlled terminology, and data exchange standards. The inclusion of the Trial Master File Reference Model (TMF RM) standard as part of the CDISC suite of standards further enhances its impact. Through initiatives like the CDISC Digital Data Flow Project and the promotion of open-source software through hackathons and workshops, CDISC drives innovation in implementing and developing data standards, ultimately benefiting medical research and healthcare practices.





    Financials

    This financial information is from Propublica.

    Revenue
    Expenses
    Efficiency

    Other financial information:

    This information is from the most recently submitted tax form from this organization, which was in 2022.

  • Investment Income: $39,306
  • Program Service Revenue: $3,935,285
  • Gross Receipts: $8,105,543

    • Assets and Liabilities:
  • Total Assets: $5,085,701
  • Total Liabilities: $1,515,408
  • Net Assets: $3,570,293
  • Programs

    Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.

    P'SHIP & COLLABORATION

    Revenue

    $1,995,043

    EDUCATION COURSES

    Revenue

    $1,067,076

    EVENTS

    Revenue

    $551,796

    TECHNICAL PROJECTS

    Revenue

    $308,202

    ODM DATA COLLECTION

    Revenue

    $13,168

    Organization Details

    Founding Year

    2000

    Principal Officer

    David Evans

    Main Address

    401 WEST 15TH STREET 520, AUSTIN, TX, 78701

    NTEE Category

    Code: E052 - Health

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