Overview
What is Vhl Alliance Inc?
Vhl Alliance Inc, based in Boston, Massachusetts, is a nonprofit organization dedicated to supporting individuals and families affected by Von-Hippel-Lindau (VHL) disease. Their mission encompasses research, education, and support to increase awareness, facilitate diagnosis, enhance treatment options, and improve the overall quality of life for those living with VHL disease. The organization offers a variety of services, including a quarterly newsletter, online resources, and telephone outreach, enabling VHL patients and their families to stay informed about the latest research and medical advancements. Additionally, Vhl Alliance Inc provides educational materials such as patient handbooks and brochures, organizes medical and research symposiums, annual conferences, and recurring seminars. They also maintain educational and research programs, including the Tissue Bank and the Central VHL Database, to further their mission. With a team of 6 dedicated employees, Vhl Alliance Inc serves as a vital resource for the VHL community.
Official website here: www.vhl.org
Is Vhl Alliance Inc legitimate?
Vhl Alliance Inc is a legitimate nonprofit organization registered as a 501(c)(3) entity. Vhl Alliance Inc submitted a form 990, which is a tax form used by tax-exempt organizations in the U.S., indicating its operational transparency and adherence to regulatory requirements. Donations to this organization are tax deductible.
Here are some key statistics you may want to consider:
Executive Compensation: $92,623
Professional Fundraising Fees: $0
Other Salaries and Wages: $259,111
For more financial information, click here
Official website here: www.vhl.org
What is the mission statement of Vhl Alliance Inc?
The Vhl Alliance Inc is committed to advancing research, education, and support to enhance awareness, diagnosis, treatment, and quality of life for individuals affected by Von-Hippel-Lindau (VHL) disease. Their mission is to provide a supportive network for patients and their families, educate the public and medical community on recent developments in VHL research, and promote informed decisions regarding diagnosis and treatment options. To achieve this, the Vhl Alliance Inc offers resources such as a quarterly newsletter, online services, telephone outreach, patient handbooks, and brochures. They also host medical/research symposiums, annual conferences, and seminars, and maintain educational and research programs like the Tissue Bank and the Central VHL Database.
Official website here: www.vhl.org
Who is the CEO of Vhl Alliance Inc?
What is the revenue of Vhl Alliance Inc?
Who are the executives of Vhl Alliance Inc and what are their salaries?
The average compensation at Vhl Alliance Inc during 2023 was $58,622. There are 6 employees at Vhl Alliance Inc.
Here are 15 key members and their salaries:
- William Engel (Director)
- Kwame Garrett Price (Director)
- Lee Willer Spector (Director)
- Stacy Yates (Director)
- Rohan Nirody (Vice Chairperson) [Trustee/Director]
- Cary Schwanitz (Director)
- Camron King (Director)
- Connie Rath Ed (Director)
- Emily Billcheck (Secretary & Director)
- Jennifer Galenkamp (Director)
- Prashant Kudva (Director)
- Seth Horwitz (Treasurer & Director)
- Stacy Lloyd Mph (Chairperson) [Trustee/Director]
- Othon Iliopoulos Md Phd (Director)
- John Josey (Director)
Official website here: www.vhl.org
Where can I find the form 990 for Vhl Alliance Inc?
The Vhl Alliance Inc’s most recent form 990 was submitted in 2023 and can be accessed here
Official website here: www.vhl.org
Learn more at the official website: www.vhl.org
Mission Statement of Vhl Alliance Inc
Vhl Alliance Inc, a nonprofit organization, is devoted to supporting efforts to cure Von-Hippel-Lindau (VHL) disease. Their mission extends beyond just curing the disease; they also aim to provide a supportive network for patients and their families. Furthermore, Vhl Alliance Inc is committed to educating and informing the public and the medical community about the latest developments in VHL research and medical treatments.
The Vhl Alliance Inc is deeply dedicated to improving awareness, diagnosis, treatment, and the quality of life for those affected by VHL disease. They accomplish this through various initiatives. For instance, the organization distributes a quarterly newsletter to keep VHL patients and their families updated on the latest research and medical information. Additionally, Vhl Alliance Inc offers online services and telephone outreach, enabling effective communication among the VHL community.
Moreover, Vhl Alliance Inc provides educational materials such as patient handbooks and brochures, which are essential resources for individuals living with VHL disease. The organization also hosts medical/research symposiums, annual conferences, and recurring seminars, providing an opportunity for individuals to learn from experts in the field. Vhl Alliance Inc further supports its mission through education and research programs such as the Tissue Bank and the Central VHL Database. These initiatives aim to advance understanding of VHL disease and contribute to the development of effective treatments.
Impact
This information is meant to be a general summary of Vhl Alliance Inc. Please take the time to review official sources before making any decisions based upon the content provided here.
Saturday, July 20, 2024
Vhl Alliance Inc's impact is significant in supporting efforts to cure Von-Hippel-Lindau (VHL) disease, providing a strong support network for patients and their families, and educating both the public and the medical community about current developments in VHL research and treatment. Through services such as a quarterly newsletter, online resources, telephone outreach, and educational materials like patient handbooks and brochures, the organization empowers individuals affected by VHL to access vital information and connect with others facing similar challenges. Additionally, Vhl Alliance Inc organizes medical/research symposiums, annual conferences, seminars, and maintains crucial education and research programs such as the tissue bank and central VHL database. By dedicating itself to research, education, and support, the VHL Alliance is making a meaningful difference in improving awareness, diagnosis, treatment, and quality of life for those impacted by VHL disease.
Financials
This financial information is from Propublica.
Other financial information:
This information is from the most recently submitted tax form from this organization, which was in 2023.
- Assets and Liabilities:
Programs
Programs are reported by nonprofits in their tax forms and are normally their tax-exempt activities.
CONFERENCES & SYMPOSIA
Revenue
$42,466
Organization Details
Founding Year
1993
Phone
(800) 767-4845
Principal Officer
Nancy Lee Spector
Main Address
PO BOX 844682, BOSTON, MA, 022844682
Website
www.vhl.org
NTEE Category
Code: E20Z - Health
If you are a representative of Vhl Alliance Inc and wish to learn more about how Give Freely can help you raise funds, please click here: https://givefreely.com/nonprofits/. Our services are offered at no cost to your organization.